Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are The Chances My Baby Could Have Celiac

kali-mist

Recommended Posts

kali-mist Apprentice
kali-mist
Posted

I'm really curious to know what the chances are the my baby will have or develop Celiac. Does anyone know? I would also like to know how long do I have to wait before I can get my baby tested. I would like to keep him/her away from gluten for awhile just in case but then I would have to give them a steady diet of gluten to get them tested right?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Julie,

I think the risk of inherited Celiac is around 20%.

Accurate testing in children is highly unreliable. There are many threads here about breastfeeding and when to introduce gluten. Try a search.

And, congratulations.

JulesH Rookie
JulesH
Posted
Accurate testing in children is highly unreliable.

Can you tell me more about this, or where I can find information about this? I suspect my nephew has celiac, but the blood test was negative so my sister-in-law says he doesn't. (This is despite the fact that my brother, her husband, had a negative blood test but CLEARLY has celiac, and is gluten-free.)

MDRB Explorer
MDRB
Posted

I can understand your desire to keep your child gluten free.

Unfortunately, celiac disease can't be detected if there is no damage to the villi. You can keep them off gluten and never really be sure if they actuallly are celiac, or you can give them gluten and wait to see if they get sick. It sounds horrible I know.

The other option you have is to get genetic tests done. They would not show if your child definetly has celiac disease as approximately a third of the population has the correct genes but never actually develop celiac disease, but if your child doesn't have the specific genes (I think there are three that imply that a person could get celiac disease, if you only have one or two then celiac disease is out of the question), it would rule out celiac disease 100%.

Its a really tough decision. I guess if it was me, I would keep them gluten free until they were old enough to make an informed decision.

Good luck

  • 2 weeks later...
B'sgirl Explorer
B'sgirl
Posted

In the forum for parents of kids with Celiac they were talking about this. There is lots of research about when to introduce gluten. Most says no earlier than 4 months and no later than 7, unless you wait until they are a year old. Also, if you breastfeed for the first year their chances of developing the disease are much less. My plan is to wait until my baby is at least a year old. If the immune and digestive systems are not fully developed it can cause more sensitivity. I can have her tested after I put her on it, there is no rush, and since my son is already on a gluten-free diet it won't be difficult for me to keep her on one. I had too much trouble with him as a baby to want to do the same thing to my new one, so I am waiting to introduce it.

par18 Apprentice
par18
Posted
I can understand your desire to keep your child gluten free.

Unfortunately, celiac disease can't be detected if there is no damage to the villi. You can keep them off gluten and never really be sure if they actuallly are celiac, or you can give them gluten and wait to see if they get sick. It sounds horrible I know.

The other option you have is to get genetic tests done. They would not show if your child definetly has celiac disease as approximately a third of the population has the correct genes but never actually develop celiac disease, but if your child doesn't have the specific genes (I think there are three that imply that a person could get celiac disease, if you only have one or two then celiac disease is out of the question), it would rule out celiac disease 100%.

Its a really tough decision. I guess if it was me, I would keep them gluten free until they were old enough to make an informed decision.

Good luck

Not quite sure what you mean when you say "if you only have one or two of them". Basically there are two genes (DQ2 or DQ8) in which the majority of those with Celiac possess either one or perhaps both. I have only one (DQ2) and I was diagnosed via biopsy. According to the statement on my blood test "greater than 95% of all persons with Celiac have either or both of these genes. By not being 100% I assume this means one may develop this condition with neither. Someone please correct me if this is wrong.

Tom

  • 2 weeks later...
jhow32000 Rookie
jhow32000
Posted

I think PPs info is right---except Michelle RB. The tests for diagnosis are so unreliable at times and the symptoms of celiac disease can be so painful that I would never put my child through gluten trials when he could easily stay gluten-free. I can easily see when my child gets contaminated foods as he gets very gassy, diarrhea, and a belly ache with rash. I personally suspect celiac disease from both sides in my family and on both sides for my son. I have kept him gluten-free right along with me and he has never been sick in the 19 months of his life. It is much simpler than messing with gluten. However, I have more incentive to keep him grain free since I am of the group that believes unsprouted grains have anti-nutrient properties and should not be consumed regularly by anyone.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748
    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.