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Prep For Specialist


Octoberme

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Octoberme Apprentice

Okay


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Octoberme Apprentice

Oh........and should I take a probiotic? What is the deal with these? I used to be able to handle s amll sihlohette yogurt and be fine before I got sick. After I got sick I thought all these yogurts with probiotics woudl help, so I started taking activia and that only made my D symptoms worse. Any thoughts on these?

Celiaction Rookie

Octoberme,

Perhaps I should be first to welcome you to the club. Every one of your concerns has been addressed in these blogs and soon you'll have some specific advise from the great people here who are more experienced than me. You can search the past blogs for specific past discussions to your concerns.

At least know that you are not alone. These blogs probably saved my life.

David

Octoberme Apprentice

Lol, thank you and yes, I am finding that already. These posts are all so very halpful, but I have to say after becoming obsessed with my health problems and reading these sometimes for 6 hours a day ( ya, no kidding, I am sure my work LOVES me right now ) my mind is just SWIMMING and I am not even sure which was is up anymore.

My concern is just that the specialist will just blow me off. And while I do not want to go in there all pompous and like I know more then him, I do not want him to think of me as a push over that will just take a " oh, it is just IBS " answer and walk out. NOT saying that I KNOW I have a gluten intolerance for sure, or that IBS is not a horrible thing to have.....but I want tests after test and I want to make SURE what it is that is wrong with me so that I can do all that I can to make myself better :-)

Lol....I need to know my stuff.....these male doc's tend to get " weirded " out when I cry, hahaha *jokes*

MDRB Explorer

Hi and welcome!

I guess the main thing to tell the GI is that you have been gluten free for a while. Most tests will be inaccurate if you have not been eating gluten. My GI put me back onto gluten for a month before doing an endoscopy (worst 4 weeks of my life!)

Also let the GI know that life has been easier since going gluten-free.

You didn't mention how long you had been gluten-free, it can take the body a long time to heal which may be why you are still having symptoms.

Even if your tests come back negative, if you feel better minus the gluten, just go for it! The only thing you would be denying yourself is not at all nutritionally valuable food that makes you sick!

Octoberme Apprentice
Hi and welcome!

I guess the main thing to tell the GI is that you have been gluten free for a while. Most tests will be inaccurate if you have not been eating gluten. My GI put me back onto gluten for a month before doing an endoscopy (worst 4 weeks of my life!)

Also let the GI know that life has been easier since going gluten-free.

You didn't mention how long you had been gluten-free, it can take the body a long time to heal which may be why you are still having symptoms.

Even if your tests come back negative, if you feel better minus the gluten, just go for it! The only thing you would be denying yourself is not at all nutritionally valuable food that makes you sick!

Lol, thanks. Yes, I had heard that going gluten free may not be the best idea before going in to see the specilaist, but I just could not wait anymore in that pain / torture. Honestly, I have only been gluten free for about two weeks now I think it is, not long, so yes, that is probably why I am still getting symptoms.

But thanks for the advice. And yes, i agree, if I feel better this way, I am sticking to it!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
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