Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Tell What The Reaction Is From?!

jewi0008

Recommended Posts

jewi0008 Contributor
jewi0008
Posted

Does anyone know the typical timeframe from when you ingest gluten to when the symptoms come? I have been gluten free for almost 2 weeks. I've been eating great. I've been feeling great. Then, all of the sudden on Monday I got sick. I had smelly silent gas all day, a growling stomach and then it was capped off at night by 2 bowel movements of "dark pile." Tuesday morning I was a little gassy; nothing major. And then it all stopped. I wonder if it was something from Saturday or Sunday or before...I have a food journal and I want to try to pinpoint this!!

Thoughts?!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest j_mommy
Guest j_mommy
Posted

It sounds like you ate something or got CC'd. For me the first few months were hard. You think you are doing great and then you get hit. If I get CC'd(knock on wood b/c it's been awhile!) it is anywhere from an hour to the next day that I can tell.

Is there something in your food diary that you are questioning? Could something have been cooked on/in something that had gluten on it?

kenlove Rising Star
kenlove
Posted

everyone seems a little different, for me it depends if I inhale something or eat something with unknown gluten or its from cross contamination. Anywhere between 10 minutes to a few hours after.

The worst for me is when I inhale flour or something in the air. Just cant go into bakeries!

Does anyone know the typical timeframe from when you ingest gluten to when the symptoms come? I have been gluten free for almost 2 weeks. I've been eating great. I've been feeling great. Then, all of the sudden on Monday I got sick. I had smelly silent gas all day, a growling stomach and then it was capped off at night by 2 bowel movements of "dark pile." Tuesday morning I was a little gassy; nothing major. And then it all stopped. I wonder if it was something from Saturday or Sunday or before...I have a food journal and I want to try to pinpoint this!!

Thoughts?!

MDRB Explorer
MDRB
Posted

Hi,

I guess it depends on how sensitive you are and how much gluten you had. I had to go back onto gluten based meals to get an endoscopy done and became sick about half an hour after ingesting some normal bread. However, if I get CC'd or there is gluten hidden in a sauce or something, I usually go on blissfully unaware until the following morning.

gfp Enthusiast
gfp
Posted

For me the time frame is variable, the amount ofgluten doesn't sem to exert a measureable control over the other variability.

Issues like general health, what your immune system is up to as well wtc. seem to play a bigger part.

I can get sweats and mood effects after hours and gastro might take 4 hours or 4 days. Also once glutened it comes and goes. I might have a good day or two then it comes back. Sometimes I'll have an epidode where I literally run a fever and have explosive D, sometimes its far milder.

When you constantly take riss (like eating out every week) this can be very hard to pindown. One can overlap or you think you got glutened again and its just last weeks .. coming back for a single poop episode.

The only way I found this out was.

1/ Throw anything non gluten-free outof my kitchen

2/ Eat only at home for 3-4 months (and I mean only food prepared from scratch from home and I really mean scratch, no packets etc. just meat, veg, fruit)

3/ Keep a detailed food and symptom diary.

I did this for 6 months more or less (and its when I really got the last 10% better). Doing this I found that (for me) a single glutening might persist for weeks though it becomes less frequent and less violent overall. I found before a lot of the time I presumed I had slipped up again in the past it was a repercussion of an earlier glutening. With time you get a feeling for the differencebetween a delicate tum and gluten, I'm convnced that this is the only real way to do it though hard as it is and wish I'd known this to start off.

Lots of people say they are gluten-free yet take risks a lot. Apparently the average times a person should have D in a year is 4-6. 6 is nursing mothers and high risk groups. Any more and ... well its not normal.

Plently of people get told "oh you have IBS as well" I don't beleive this is true in 99% of the cases, I think its glutening and people don't realise because they never got to a place with 100% gluten-free. If you eat out, share a kitchen etc. these are allrisks and if you eat food from here 2-3 times a day the chance is you will get CC ..perhaps once a week, perhaps once a month... but because gluten and its effects takes so long to decay these all run together.

just my 2c

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jay Heying
      - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    2. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    3. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    4. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    5. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,885
    • Most Online (within 30 mins)
      7,748
    KateFC
    Newest Member
    KateFC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jay Heying
      Celiac friendly probiotics

      By Jay Heying · Posted

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.