Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going To A Different Doctor This Week


blondebombshell

Recommended Posts

blondebombshell Collaborator

so i went to the doctor months ago. had an endoscopy and it came back negative for celiac.

bloating, constipation, etc. the whole nine yards and i also get hives when i ingest gluten. no doc is able to get me answers.

i am going to see a different doc within the same practice, as per my allergist.

when i get there, and re-tell him everything.

- chronic constipation

- bloating

- bloating after eating bagels, bread products, etc.

- had some bloodwork done by regular doc. said i had an egg allergy and wheat allergy

- since cutting gluten/wheat out of my diet, bloating has gone down

- when i ingest gluten, i get itchy hives all over my legs

do i just re-tell the other doc all of this? think he will do anything else


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

What do you expect the doctor to do? You know gluten is a problem, and you have been gluten-free for quite a while. Do you need a doctor to tell you what you already know? If he says you are wrong and you should start eating wheat again, will you do it?

If you are determined to stay on the gluten-free diet, then it shouldn't matter what any doctor says.

blondebombshell Collaborator

i dont know why i am always constipated and only go to the bathroom 1x a week

Joni63 Collaborator
so i went to the doctor months ago. had an endoscopy and it came back negative for celiac.

bloating, constipation, etc. the whole nine yards and i also get hives when i ingest gluten. no doc is able to get me answers.

i am going to see a different doc within the same practice, as per my allergist.

when i get there, and re-tell him everything.

- chronic constipation

- bloating

- bloating after eating bagels, bread products, etc.

- had some bloodwork done by regular doc. said i had an egg allergy and wheat allergy

- since cutting gluten/wheat out of my diet, bloating has gone down

- when i ingest gluten, i get itchy hives all over my legs

do i just re-tell the other doc all of this? think he will do anything else

Hi blondebombshell,

I'm not sure I understand your situation completely.

Have you been faithfully gluten free since August or have you been testing gluten sometimes?

It seems your symptoms are less when you don't injest egg/gluten so you have figured out some of the causes.

Also, you went gluten free for 4 months then had an endoscope (if I'm reading your signature right) so it's quite possible that you healed enough to cause the endoscope to be clear.

Many other foods can cause bloating and constipation. Have you tried eliminating dairy, soy, corn, nightshades or any of the typical culprits? Maybe that would help you discover what else could be bothering you?

Candida and parasites could also be other possibilities. You might want to try and anti-candida diet for a while and see if that makes a difference.

blondebombshell Collaborator

i was off gluten for about 4 months. had it for a few weeks prior to the endoscopy but that was it.

i have to admit. my whole life i had issues going to the bathroom. w/o laxatives i only went 1x a week, sometimes 1x every week and a half.

doc said that some people just have bathroom issues. thats it.

i felt that i need a better answer.

so you think it could be something else? parasite or candidia causes chronic constipation?

LuvMoosic4life Collaborator
so i went to the doctor months ago. had an endoscopy and it came back negative for celiac.

bloating, constipation, etc. the whole nine yards and i also get hives when i ingest gluten. no doc is able to get me answers.

i am going to see a different doc within the same practice, as per my allergist.

when i get there, and re-tell him everything.

- chronic constipation

- bloating

- bloating after eating bagels, bread products, etc.

- had some bloodwork done by regular doc. said i had an egg allergy and wheat allergy

- since cutting gluten/wheat out of my diet, bloating has gone down

- when i ingest gluten, i get itchy hives all over my legs

do i just re-tell the other doc all of this? think he will do anything else

I'm not really in the same situation as you, but I can understand why you want answers from a doctor. In my situation I havent seen a doctor, but i narrowed my problem down to being gluten, dairy and eggs. My whole family thinks this whole thing is just in my head. At one point they actually got me thinking that also, so I went off the gluten free diet and I started feeling horrible: tendon pains, bloating, gas,headace constipation ect...ect....

I am having a problem even finding a doctor to see, the closest appointment I can get is in 3 months from now. I really dont even want to go to the doctor, although I would like to find out if I have the gene for celiacs and get tested, but my main purpose is so that I can have somthing in writing to show my family so they dont think I'm on some diet where I dont want to eat thier food. It seems that people dont believe us about health problems unless it is confirmed by a doctor. I think its rediculous b/c nobody knows our bodies better than ourselves, but yet when I tell peopl I have a gluten intolerance, they tend to laugh at me and I feel that having some proof from a doctor would make them understaand where I am coming from and maybe actually believe me!

Joni63 Collaborator
i was off gluten for about 4 months. had it for a few weeks prior to the endoscopy but that was it.

i have to admit. my whole life i had issues going to the bathroom. w/o laxatives i only went 1x a week, sometimes 1x every week and a half.

doc said that some people just have bathroom issues. thats it.

i felt that i need a better answer.

so you think it could be something else? parasite or candidia causes chronic constipation?

I've always had constipation too. I find now on the gluten-free diet if I eat too many carbs/proteins and not enough veggies and fruits, it shows up quickly as constipation.

I don't believe some people just have bathroom issues unless there is a problem. Something must not be right! Do you eat lots of fruits/veggies and drink lots of water?

I don't know if parasites/candida can cause the chronic contipation - I was only suggesting that as maybe a possibility for bloating. But if you are constipated, you will also have bloating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blondebombshell Collaborator

no water.

i have a cup of coffee in the am, and maybe a bottle or two throughout the day and a glass of wine with dinner.

thats it, lol.

as for fruits and veggies, yes - i eat a ton of them.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748

    Cbear
    Newest Member
    Cbear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.