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Son Has Celiac, Next Step For Me Is?


Breila

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Breila Explorer

My son was just "officially" diagnosed as celiac after 4 years of suspecting it. We went the whole route if you will, down to the endoscopy, so that we could have the definitive diagnosis b/c he was only moderately symptomatic.

Genetics wise, I've always figured it came from my husband's side of the family, his father has a "wheat allergy", and he's always had what *I* call bowel issues, though HE says he's fine, LOL. I'm not looking for anyone to blame, just figured that was where it came from.

But I've been thinking recently about my own health. I've had intermittent nervous/sensitive stomach issues my whole adult life, though I've always linked them to stressful points in my life (needless to say, I'm a mess right now, LOL). I have frequent headaches, low energy, and skin problems.

I've decided to have the blood work done, especially in light of my son's diagnosis. I have to find a primary care dr. first, LOL. But here's what I'm wondering. If I DO have the blood tests done and they come back with high/abnormal numbers, is it reasonable to assume that I too have Celiac, or should I have an endoscopy done as well? What if the numbers come back in normal ranges?

What do you think?

Blessings,

Amy


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There are a great many people who are gluten intolerant without villi destruction. Those people would have normal blood work, and a negative biopsy. With them, the gluten primarily attacks the nervous system. Which is just as bad!

People might have peripheral neuropathy, gluten ataxia, pain in joints and muscles, fibromyalgia, depression, anxiety, schizophrenia, bi-polar, ADHD, autism, dementia, multiple sclerosis and a host of other ailments that all go away on a gluten-free diet. Plus they might get the more typical diarrhea and other gastrointestinal symptoms as well.

So, while it may be a good idea for you to get the testing done, too, I advise you to try the gluten-free diet after the tests are done, whether they are negative or positive. It is the diet that is the best and most reliable test of them all. If you feel better on it, then you shouldn't eat gluten. Period.

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  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
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      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
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      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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