Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gelatin?


ksymonds84

Recommended Posts

ksymonds84 Enthusiast

Okay, I had a horrible D reaction that lasted all day yesterday from the home made pizza I made Monday night. I have pizza every week and normally use a frozen gluten free local brand that never gives me problems. Whole foods pizza crust gives me problems with D. So what I did was took out a piece of paper and put the ingredients to all 3 crusts in seperate columns so I could weed out which ingredients were the same but not in the crust that doesnt give me problems. I narrowed it down to two ingredients: apple cider vinegar and gelatin. I know for sure I am fine with apple cider vinegar but don't know about the unflavored gelatin. Did searches to find out exactly what it was and found out its from boiled animal bones and can act like msg. When I searched our sight I found a few entries most being old but Rachel 24 was in the threads so I hope she will comment. Does anyone else have a problem with gelatin?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



fedora Enthusiast

gelatin is gross. I don't eat it and haven't for years. Not because I am intolerant.

nikki-uk Enthusiast
Okay, I had a horrible D reaction that lasted all day yesterday from the home made pizza I made Monday night. I have pizza every week and normally use a frozen gluten free local brand that never gives me problems. Whole foods pizza crust gives me problems with D. So what I did was took out a piece of paper and put the ingredients to all 3 crusts in seperate columns so I could weed out which ingredients were the same but not in the crust that doesnt give me problems. I narrowed it down to two ingredients: apple cider vinegar and gelatin. I know for sure I am fine with apple cider vinegar but don't know about the unflavored gelatin. Did searches to find out exactly what it was and found out its from boiled animal bones and can act like msg. When I searched our sight I found a few entries most being old but Rachel 24 was in the threads so I hope she will comment. Does anyone else have a problem with gelatin?

Rachel 24 is still around - she's mainly found in the 'Other intolerances' section in the 'OMG - I may be on to something' thread

roxie Contributor

I also found out something interesting about gelatin. I was excited to find out that I could eat skittles because they are gluten and dairy free. However, when I called the company, they said that the gelatin in their product is derived from beef. Gross!

home-based-mom Contributor

No offense to anyone, and please do not fling rotten tomatoes at me, but you guys are exhibiting the exact same ignorance about the source of a common food substance as the people that get made fun of for not knowing that flour is made from wheat.

Where did you think gelatin came from?

The answer is you never thought about it, just as others never thought about where bread came from.

Here is the Open Original Shared Link article. Be sure to read all the way to the bottom to see all of the uses and concerns. You no doubt didn't know about those, either! (Neither did I! But I don't remember ever not knowing the source of gelatin. I must have been told that somewhere in early childhood.)

ksymonds84 Enthusiast

No offense to anyone, and please do not fling rotten tomatoes at me, but you guys are exhibiting the exact same ignorance about the source of a common food substance as the people that get made fun of for not knowing that flour is made from wheat.

Where did you think gelatin came from?

The answer is you never thought about it, just as others never thought about where bread came from.

I asked my mom and she didn't want me to know. She said I was picky enough as it was! She is a firm believer in the gelatin making your nail stronger etc. I don't eat gelatin anymore since my kids never cared for jello and never used the unflavored stuff (didn't even know where to look for it) until I made the home made pizza crust. I've found some other recipes for crust that don't use the gelatin. I'm not convinced it was the gelatin that made me sick, could be cross contamination but figured it was an ingredient I don't really need. I asked my chefs in both of my restaurants and none of them really knew about gelatin (we don't use it) except one of the older cooks so I don't think the gelatin companies like to promote what it really is anymore.

ksymonds84 Enthusiast

just wanted to clarify that my chef's did know it was beef originated because it a no no with a vegan dish but most didnt know how it was extracted etc. Not personally attacking you home based mom but ignorance is a strong word for me ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
No offense to anyone, and please do not fling rotten tomatoes at me, but you guys are exhibiting the exact same ignorance about the source of a common food substance as the people that get made fun of for not knowing that flour is made from wheat.

I'm not sure where anyone was ignorant about the source of gelatin in this thread?? We arent born knowing all of this stuff. We learn it along the way...by asking questions and by sharing info. as we learn it. Isn't that why we're all here afterall?

I dont consider myself to be ignorant because I wasnt aware of the source of gelatin until only a couple years ago. None of us can possibly know *everything* and I'm pretty sure none of my friends have any clue as to where gelatin comes from. Just as the vast majority of the population doesnt know they're consuming MSG when they eat this very common ingredient.

Ksymonds,

Your mom was correct about the source of gelatin. I learned about this awhile back while I was doing some research on MSG.

Heres the details:

The gelatin in Jell-O is what lets you transform it into all sorts of different shapes. What exactly is gelatin? Gelatin is just a processed version of a structural protein called collagen that is found in many animals, including humans. Collagen actually makes up almost a third of all the protein in the human body. It is a big, fibrous molecule that makes skin, bones, and tendons both strong and somewhat elastic. As you get older, your body makes less collagen, and individual collagen fibers become crosslinked with each other. You might experience this as stiff joints (from less flexible tendons) or wrinkles (from loss of skin elasticity).

The gelatin you eat in Jell-O comes from the collagen in cow or pig bones, hooves, and connective tissues. To make gelatin, manufacturers grind up these various parts and pre-treat them with either a strong acid or a strong base to break down cellular structures and release proteins like collagen. After pre-treatment, the resulting mixture is boiled. During this process, the large collagen protein ends up being partially broken down, and the resulting product is called gelatin. The gelatin is easily extracted because it forms a layer on the surface of the boiling mixture.

home-based-mom Contributor
just wanted to clarify that my chef's did know it was beef originated because it a no no with a vegan dish but most didnt know how it was extracted etc. Not personally attacking you home based mom but ignorance is a strong word for me ;)

Ignorance just means you don't know something. No one knows everything so we are all ignorant about many things, which means we all have room to learn and grow. :)

Mango04 Enthusiast

I almost bought a bag of "organic" gummy bears made with gelatin today. I didn't, because I don't like where the stuff comes from, but after reading this thread, I'm now really glad I didn't. :lol:

Ignorance just means you don't know something. No one knows everything so we are all ignorant about many things, which means we all have room to learn and grow. :)

The word has a pretty negative connotation though, despite its dictionary definition. Stuff like this can get tricky, however, when communicating through the internet, where nobody can see your facial or body expressions... (Sorry, just my two cents...)

ksymonds84 Enthusiast

Thanks Rachel, I was hoping you would respond! I've never been able to handle MSG. I would eat at a chinese restaurant and almost not making it home in time if you catch my drift. I do think now after reading your post that it could be the gelatin after all, didn't know it meant msg just thought it acted like msg but I will test it out to be sure! Thank you for responding!

dollamasgetceliac? Explorer

Hi ;

I was told that I should not buy the "organic" home made Marshmelows because the Gelatin in that product might be derived from Fish. I am allergic to Fish, and it is particularily difficult to cook anything for me since I have many food allergies.

ksymonds84 Enthusiast
Hi ;

I was told that I should not buy the "organic" home made Marshmelows because the Gelatin in that product might be derived from Fish. I am allergic to Fish, and it is particularily difficult to cook anything for me since I have many food allergies.

I did read that gelatin can come from fish as well. I haven't noticed that marshmellows contain gelatin but never thought about it before :P

CarlaB Enthusiast

Gelatin is actually very healthy (I'm not talking about Jello). It's a very good source of minerals. When anyone in the house is sick, I take a whole chicken and boil it for hours. Then I make chicken/vegetable soup from the broth. Boiling the bones in this way allows the minerals to be extracted from the bones. This is a food that is then easily absorbed and high in minerals.

When you put the soup in the refrigerator, the gelatin will rise to the top and you can see it.

I also boil ham bones if we have a ham over the holidays. It can also be made from fish, but I have never made fish soup myself.

It seems gross that this is put in candy, but once you know how it's made, it's really not.

Rachel--24 Collaborator

Unfortunately, gelatin has become a very common allergen. I'm not sure if its because its high in glutamate or some other reason...but people have become sensitive to it more than they were in the past.

Since 1993, there have been several reports describing severe allergic reactions to gelatin. The initial report described a 17-year-old girl who experienced anaphylaxis to MMR vaccine. Subsequent reports followed describing anaphylactic reactions to other gelatin-containing vaccines and medications. This is the first case report of an allergic reaction to influenza vaccine due to gelatin allergy. Although, the incidence of anaphylaxis to gelatin is extremely low (about one case per 2 million doses), gelatin is the most common identifiable cause of severe allergic reaction to vaccines.

Dramatic decreases in anaphylactic/allergic reactions to live measles vaccines were observed immediately after each manufacturer marketed gelatin-free or gelatin (hypo-allergic)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    2. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

    5. - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748

    Dakota4
    Newest Member
    Dakota4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.