Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dreaded Nightshades, Should I Avoid All?

onelildream

Recommended Posts

onelildream Rookie
onelildream
Posted

So I posted a topic a few days ago about my aweful weekend literally on the toilet and in front of the toilet. I had what was said to be gluten free at 2 seperate quick food places and after eating from Winger's (potato skins, chicken, fries, and veggies) I immediately got a severe migraine. I literally was throwing up for hours and was sick for 2.5 days straight. I felt like I could die or pass out. I'm pregnant and I should have gone to the ER, but I'm too stubborn at times! Anyway, I have been researching a lot about Nightshades. It really was after I at the potato skins that almost immediately my migraine came on. So, here's what I feel pretty confident about; I am pretty sure I can no longer have potatoes. My "food poisoning" -like symptoms were posted on many other forums when others had potatoes. So, what my question is is just this:

Do you think that it could just be potatoes and not all nightshades? I am really afraid to test anything right now. I was far too sick this weekend to even take care of my daughter and I don't want a repeat. But have any of you experienced only symptoms to potatoes? Is potato starch just as bad? How do I find gluten free breads and such without potato starch? Please help. I am really feeling depressed. Tomatoes are my favorite food and I love everything spicy with serano peppers!! And I'm obsessed with Pamela's pancakes, but they have potato starch.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Have you tried potatoes at home, that are 100% safe? I wonder if its not potatoes/nightshades, but cross-contamination (gluten) at the fast food places.

Whenever you are re-introducing one of these items that you are concerned about, make sure you are eating at home and you are sure that it is gluten free. Only then can you determine if its gluten or another food intolerance.

jerseyangel Proficient
jerseyangel
Posted
So I posted a topic a few days ago about my aweful weekend literally on the toilet and in front of the toilet. I had what was said to be gluten free at 2 seperate quick food places and after eating from Winger's (potato skins, chicken, fries, and veggies) I immediately got a severe migraine. I literally was throwing up for hours and was sick for 2.5 days straight. I felt like I could die or pass out. I'm pregnant and I should have gone to the ER, but I'm too stubborn at times! Anyway, I have been researching a lot about Nightshades. It really was after I at the potato skins that almost immediately my migraine came on. So, here's what I feel pretty confident about; I am pretty sure I can no longer have potatoes. My "food poisoning" -like symptoms were posted on many other forums when others had potatoes. So, what my question is is just this:

Do you think that it could just be potatoes and not all nightshades? I am really afraid to test anything right now. I was far too sick this weekend to even take care of my daughter and I don't want a repeat. But have any of you experienced only symptoms to potatoes? Is potato starch just as bad? How do I find gluten free breads and such without potato starch? Please help. I am really feeling depressed. Tomatoes are my favorite food and I love everything spicy with serano peppers!! And I'm obsessed with Pamela's pancakes, but they have potato starch.

My goodness, I'm sorry you were so sick!

Before you consider that potatoes are a problem, I would look more closely at the food from the fast food places. As regards cross contamination issues--did the server use clean utensils?, do they fry anything that contains gluten in the oil used to cook your foods?, if they used gloves, did they change them before handling your order?

Fast food restaurants are notorious for cross contamination....I would suggest eating at home for a while and focusing on whole foods--not packaged--until you feel better.

If you need to be out somewhere or at work, make your lunch at home and bring it with you--it's more of a hassle, but much safer.

Hope you feel better soon--once you are doing better, you can test foods like potatoes if you still think they could be a problem for you. Add one questionable food at a time with several days in between so you can get a good idea of how they affect you.

Rachel--24 Collaborator
Rachel--24
Posted
Whenever you are re-introducing one of these items that you are concerned about, make sure you are eating at home and you are sure that it is gluten free. Only then can you determine if its gluten or another food intolerance.

I agree.

Also, potatoes are often treated with sulfites (not fresh potatoes). A person who is sensitive can react to sulfites in the way that you described. If you try a plain fresh baked potato at home then you can figure out if it was the potato or something else.

mushroom Proficient
mushroom
Posted
Do you think that it could just be potatoes and not all nightshades?

I just posted on another thread that for me it seems to be tomatoes and green peppers only, although I have not yet challenged myself with eggplant. Potatoes don't seem to bother me, but I haven't tried eating them out, and red peppers are okay--after all, green peppers are just unripe red peppers. :P

ShayFL Enthusiast
ShayFL
Posted

I am nightshade free and have been for about a month. Potatoes have definately had a neurological effect on me for years. 10 years ago, I would wake in the night feeling "weird". Disoriented for a few seconds. A strange taste in my mouth. It would pass and and then I would go back to sleep. This went on for months, before I figured out that it only happened when I ate potatoes. No potatoes....no "seizures". I realized that they were in fact "seizures" when I did some research. But as years went by, I slowly added some back into my diet and before I knew it, I would wake up with numb hands. Once again, it could be traced to the potatoes.

So no potatoes.

And I've cut ALL nightshades because they ALL contain neurotoxins. Google it. Since the majority of my symptoms are neuro, I am leaving no stone unturned. Just found a nightshade free pasta sauce. I am hopeful. :) I do miss tomatoes the most of all of them.

mushroom Proficient
mushroom
Posted
And I've cut ALL nightshades because they ALL contain neurotoxins. Google it. Since the majority of my symptoms are neuro, I am leaving no stone unturned. Just found a nightshade free pasta sauce. I am hopeful. :) I do miss tomatoes the most of all of them.

I not only miss tomatoes, I mourn their loss :lol: Who makes the nightshade free pasta sauce?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

It's called "Nomato" and I found it in the gluten free mall advertised all over the sides of this forum. :) I will warn you that the color is something to behold A very bright red. Much brighter than regular tomato sauce, but it is pretty good. My family really liked it and they will be honest. In fact, I made a homemade salad dressing the other night and my daughter said, "Sorry Mom. This tastes like dirty gym socks." How would she know that?......LOL

home-based-mom Contributor
home-based-mom
Posted
In fact, I made a homemade salad dressing the other night and my daughter said, "Sorry Mom. This tastes like dirty gym socks." How would she know that?......LOL

:lol: I always wonder the same thing when someone says something tastes like cardboard!

Jestgar Rising Star
Jestgar
Posted

I live off of peppers and tomatoes, but potatoes do me in. I think you can react to one member of a family and not others.

ShayFL Enthusiast
ShayFL
Posted

Potatoes seem to be the worst offenders. Some day I might add back small amounts of tomatoes and peppers and see. After I have healed.

RiceGuy Collaborator
RiceGuy
Posted
In fact, I made a homemade salad dressing the other night and my daughter said, "Sorry Mom. This tastes like dirty gym socks." How would she know that?......LOL

:lol:

Perhaps she once took the words "put a sock in it" just a little too literally.

ShayFL Enthusiast
ShayFL
Posted

Even funnier is that I liked it. ***shrug***

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,077
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.