Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bruising... Hair Loss... Weight Gain... Help!


AshleyRay

Recommended Posts

AshleyRay Newbie

I was diagnosed a year ago with severe celiac disease. My docs claimed I had the worst mal-absorption they have ever seen - lucky me. I will spare the details and misery. :0) I am gluten-free and DF. It's been hard but I haven't wavered. I'm doing a lot better and it has taken a long time. I used to eat tremendous amounts of food - I guess the mal-absorption was great for NOT gaining weight. Now that I'm healing I'm gaining more and more weight. I'm careful with my eating habits but this is out of control! Does this get better? I still don't have a lot of energy for exercise (three kids). I've grown out of my fat pants and I'm not getting more (fatter) pairs. Any suggestions!?!?!?

My hair fell out in my teenage years - I'm guessing celiac issue. I still have paper thin hair. This issue, among the many aesthetic concerns isn't getting better.

I have always bruised easily. My anemia is getting better but I'm covered in bruises. I won't wear shorts (not to mention I don't fit in them anymore) fearing that someone is going to assume domestic violence. I don't even know where most of them come from. They just appear (several at a time) every day. My platelets are ok and my iron is better. I'm at a loss of what else is going wrong. I don't want to spend thousands more dollars on tests. I take about $700 worth of supplements monthly. I have little faith in docs. They seem to prescribe invasive testing without clear results. I think most docs don't even care to address celiac disease b/c there is pharmaceutical treatment.

Anyone!!! Please offer advice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

My first comment is on the cost of your supplements. I cannot imagine spending that much! Are they pharmaceutical grade? If so, I'd suggest forgetting about them, and getting some from your local health store or online. The reason is that pharmaceutical companies can't patent natural vitamins, so they make "equivalent" ones, which are often inadequate, if not useless. For instance, vitamin D3 is the natural, healthy kind, but I've read that the prescription form is vitamin D2.

I'd recommend getting a decent sublingual methylcobalamin B12 supplement, such as Open Original Shared Link. Take at east 3mg per day. It should help with the health of the hair, skin and nails, as well as a myriad other things. Also, a magnesium supplement, B-complex, vitamin D3, zinc, vitamin A, vitamin E, and essential fatty acids. Coconut oil is a great source of healthy fatty acids, and has been shown to actually assist in weight loss goals. Flax seeds are also healthy, as are chia seeds. Never cook with these seeds, but rather sprinkle them onto your food after the cooking is done, or even on individual servings. Freshly grinding these seeds is the best way to have them, and I suppose a pepper grinder would work well for that.

Also be sure to get adequate fiber in your diet. This will assist in weight loss too. Grains like amaranth and teff are loaded with fiber as well as many nutrients.

I'm sure others will have great suggestions for you. Hope you feel better soon!

CarolAnne Apprentice

Perhaps you could check here Open Original Shared Link for a Naturopathic Doctor in your area who could help you.

Hair loss, weight gain, bruising, low energy, joint & muscle pain, sleeplessness, exhaustion...it took a Naturopathic ARNP to finally tell me that I was suffering Adrenal Exhaustion probably do to the stress that my Celiac Disease was causing on my body. Standard physicians don't generally treat Adrenal Exhaustion until it becomes Adrenal Failure...then they can give you prescription meds to live on for the rest of your life.

Adrenal Exhaustion can be treated with natural prescription strength supplements. It takes a 16hr saliva test to be tested properly...not the usual 24hr urine that most standard physicians want to use. You can find out more about the test here Open Original Shared Link

Good luck!! I hope things work out well for you.

sickchick Community Regular

I take 5000 mcg biotin a day for my hair (and nails) works. B)

good luck Sweetie

ShayFL Enthusiast

How is your Thyroid? TSH less than 2? Or ideally less than 1 (for most people)?

AliB Enthusiast

Before I discovered I was Celiac my hair was falling out all over the place. I took Milk Thistle capsules for a few weeks as they help to restore the liver. Hair loss is often a sign of a sluggish liver (if you do take some make sure they are gluten-free - mine weren't, as I discovered when I took some recently!).

I have always bruised easily - that may also be linked to poor liver function, but low Vitamin C can also contribute.

Along with the Milk Thistle I was taking a good Multivit and mineral, Vit C, Cod Liver Oil, and Calcium and Magnesium. Within a few weeks my hair stopped falling out and has been fine since.

Joni63 Collaborator

Hi AshleyRay,

I've read that a vitamin K deficiency can cause bruising. There are a number of things that can contribute and since you were severely malnutritioned you might want to get your vitamin A, E, K, all B's, D and your iron including serum ferritin, as well as calcium, magnesium, and folate checked if you haven't already had those done.

Here is some good information about bruises and it's causes:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AshleyRay Newbie

Thank you so much for the reply. I will look into your recommendations. I have been very diligent with regard to charting my progress. It all gets so overwhelming. My hair became really thin when I was in my teens. I think that was when the celiac "triggered." In the past years I have had some severely stressful events that (I believe) heightened my health issues. I feel like I have so little time to focus on my health - three kids. I guess it was meant to happen to re-direct some attention to my own health - important.

Thanks again!

ShayFL Enthusiast

I have been studying hairloss lately. Mine has thinned, but my sister's looks really sparse. I have read some interesting research that when Ferritin gets above 40 hair will start to grow back. I am at 19 and am shooting for 50. Taking iron supplements right now. I dont want to go above 50 because lots of research says this can contribute to cardiovascular disease and diabetes. Diabetes runs in my family. So shooting for between 40 and 50 on the Ferritin.

Has yours been checked? I keep copies of all of my labwork in a file for reference.

purple Community Regular

You gotta check this out if you pay that much for supplements!!! swansonvitamins.com Call for a catalog 1- 800- 437-4148 You won't believe how cheap they are. Dr. Mercola recently joined them. 5 bucks shipping on any size order and it comes in 4-5 business days, sometimes its free. Faster for an extra dollar or 2. The health food store is 2 to 3 times the price on some of the same products. They have a bigger catalog than the first one you might get. They sell name brands too and alot cheaper. Natures way, Enzymatic Therapy, Jarrow, Country Life, Natrol, Kyolic, Schiff. 100 percent money back guarantee. In business for 40 years. Example: I buy Kyolic garlic for about $12 and our co-op sells the same product for almost $25!

  • 1 year later...
twe0708 Community Regular

I take 5000 mcg biotin a day for my hair (and nails) works. B)

good luck Sweetie

Just wondering if you still take this much biotin a day and if it's still helping?

Reba32 Rookie

check your thyroid. All of your symptoms can be atributed to thyroid disease. Hashimoto's and Grave's disease are both autoimmune thyroid diseases that can both go hand in hand with Celiac.

burdee Enthusiast

I also bruised very easily before I got my good bacteria levels high enough to produce vitamin K. Deficiency of that vitamin often manifests in frequent bruising. I also eat lots of foods that contain vitamin K. However, taking lots of high dose probiotics for a long time (especially after treatment for gut bacteria, parasites or candida) helped decrease my bruising.

SUE

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,739
    • Most Online (within 30 mins)
      7,748

    Irving
    Newest Member
    Irving
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In general with pharmaceutical products cross-contamination is a much lower risk.
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
×
×
  • Create New...