Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Completely Healed


holdthegluten

Recommended Posts

holdthegluten Rising Star

I dont understand why..........if i am completely healed and everything is normal (endoscopy), then why do i still have food sensitivities and dont feel back to normal. I still get the stiff neck and burning eyes when i eat certain foods (I still cant figure out what foods cause this). The fatigue and bloating still occurs frequently...........WHY!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

My first thought is that since damage to the villi is often spotty, and frequently missed, I wouldn't be surprised if there is still some recovery left to do. Therefore, malabsorption seem likely to be causing some of what you're describing. Also, food sensitivities aren't always expected to completely disappear on a gluten-free diet. If a particular food gives you problems, don't eat it. Figuring that can be tricky, but the typical advice is to start a food journal, and look for patterns in how you feel in relation to what you've eaten. The correlation may only be seen over the course of several days. It just depends on how long it takes for the symptoms to manifest.

Other than that, I'd recommend taking a few supplements, if you aren't already. For fatigue and bloating, try magnesium, a sublingual methylcobalamin (vitamin B12), zinc, vitamin E, vitamin C, vitamin D3, and a decent B-complex. Also avoid sugar and caffeine.

Burning eyes is something reported in related to candida overgrowth. Have you looked into that?

purple Community Regular

Info to help with the supplements: go to swansonvitamins.com. Cheap compared to health food stores. 5 bucks for shipping in less than a week. Ask them to send you a catalog 1-800-437-4148

Ex: super stress complex B vitamins 100caps $4.79 and vitamin C bioflavonoid complex 250 caps $6.99

aikiducky Apprentice

You know, I'm coming close to four years gluten free and I'm FINALLY feeling really really healthy. Last year was already good but this year I can clearly notice that I have more energy.

Even so, I have a list of foods that I still avoid, and I'm not expecting to introduce any of them any time soon, since I'm feeling so well right now.

One and a half years feels like a long time I know but you might just still need a year or two to really recover. I hope you're feeling at least some improvement though?

Pauliina

holdthegluten Rising Star
My first thought is that since damage to the villi is often spotty, and frequently missed, I wouldn't be surprised if there is still some recovery left to do. Therefore, malabsorption seem likely to be causing some of what you're describing. Also, food sensitivities aren't always expected to completely disappear on a gluten-free diet. If a particular food gives you problems, don't eat it. Figuring that can be tricky, but the typical advice is to start a food journal, and look for patterns in how you feel in relation to what you've eaten. The correlation may only be seen over the course of several days. It just depends on how long it takes for the symptoms to manifest.

Other than that, I'd recommend taking a few supplements, if you aren't already. For fatigue and bloating, try magnesium, a sublingual methylcobalamin (vitamin B12), zinc, vitamin E, vitamin C, vitamin D3, and a decent B-complex. Also avoid sugar and caffeine.

Burning eyes is something reported in related to candida overgrowth. Have you looked into that?

I have been tested twice through stool and blood and results were negative for candida

darlindeb25 Collaborator

You may always have food sensitivities, that may never go away. When you stop eating the foods that are causing the problem, that's the reason why you do start to feel better, reintorducing them to your diet, will cause you to feel bad again, as a rule. Sometimes, you can eat some of those foods again, but not always.

Rachel--24 Collaborator

Based on symptoms and everything you've mentioned in previous threads I'd guess that you have Leaky Gut. I also get stiff neck/burning eyes....as far as I know those two symptoms are common with regards to toxicity.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndrewNYC Explorer

I've said it before and I'll say it again: try an elemental diet formula for a couple weeks. No other foods. Tolerex or Vivonex are the hotness. They will give your stomach some time to recover. If you keep eating regular food and trying different elimination diets you most likely will never get to the heart of the problem.

holdthegluten Rising Star
Based on symptoms and everything you've mentioned in previous threads I'd guess that you have Leaky Gut. I also get stiff neck/burning eyes....as far as I know those two symptoms are common with regards to toxicity.

How do i get rid of leaky gut?

does Gastritis cause leaky gut?

RiceGuy Collaborator
How do i get rid of leaky gut?

Best I know is good diet and time. Avoid sugar, alcohol, caffeine, artificial stuff. Simple foods which are easier to digest would probably work better, while things like meat and soy might sit in the gut too long. Beans, nut, and peanut butter might not work well either. I know whenever I ate meat, it just made me feel awful. Intestinal yeast seem to love poor environments and leaky gut, so do be aware that it can creep up on you. I don't know how accurate blood and stool tests are for it, but apparently the Open Original Shared Link is highly regarded.

Fiber is supposed to help pull toxins from the body. I've read about apple pectin being good for this sort of thing too. Something tells me coconut oil would be a good idea as well.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.