Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have Celiac, Keep My Baby gluten-free Until 1 Yr. Old?


CeliacMommy73

Recommended Posts

CeliacMommy73 Newbie

I have Celiac Disease, and have a 4 month old. My pediatrcian wants to keep him gluten-free until 1 year of age. I don't think she fully understands Celiac Disease... Should I keep him gluten-free for a year? If so, why?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dbmamaz Explorer

There is some indication that exposing kids to allergy-prone foods too early can increase the likelyhood of allergy. While its true that celiac isnt an allergy, your baby has a good chance of developing celiac, since its genetic. Why would you WANT to risk that before age 1? Of course, i've also seen in here that exposing them before the age of 3 mo decreases the likelihood of celiac . . . but I had a lot of allergies and was just super-careful to only feed the safest foods to my kids when they were tiny, and to introduce foods slowly to watch for reactions.

cruelshoes Enthusiast

Here is a study for you to discuss with your pediatrician. It indicates that the proper time to introduce gluten into an infant's diet may be between 4 - 6 months of age. You can check the May 15, 2005 issus of the JAMA out of the library if you want to see the full text - Open Original Shared Link. It may be available online somewhere, but I don't know a link offhand. We introduced gluten to our youngest at 5 months after consulting extensively with our pediatrician. She cautioned us against introducing wheat, becasue it is hightly allergenic (apart from celiac concerns), so we used barley and oat cereal. We kept it up until 9 months and then made our house gluten-free again. She is 2 now, and gets occasional gluten outside of the house. I'm sure you are going to get opinoins that run the gamut, but here is the study for your consideration.

Open Original Shared Link

Children exposed to wheat, barley, or rye in the first three months of life had a five-fold increased risk of celiac disease autoimmunity compared to those exposed at 4-6 months. Children not exposed until their seventh month or later were also at increased risk, but only slightly.

Among the 41 children who were at the greatest risk according to their genetic markers, those exposed to wheat, barley, or rye in the first three months of life had nearly an eight-fold increased risk of celiac disease autoimmunity compared to those exposed at four to six months.

No protective effect of breastfeeding was observed.

These findings were consistent even when the researchers limited their analysis to only the 25 cases of biopsy-confirmed celiac disease.

How Does This Affect You?

These findings indicate not only that it may be unsafe for genetically predisposed children to receive gluten-containing foods when they are too young

Amyleigh0007 Enthusiast

We are keeping our 10 month old gluten free, along with the rest of the family. Not only is it more convenient for our family (no CC issues, only one meal to cook) but I don't want her to go through the same health issues our son did. I would rather keep her healthy but not know for sure if she has Celiac then "experiment" with her health and have her possibly get ill. I bought a food grinder and she eats almost the same things we eat. So far it has worked. She has not even had a cold yet and is already starting to walk a bit. When my son was her age he was on his 5th ear infection and didn't walk until he was almost 2. She also sleeps through the night and takes great naps. My son was a terrible sleeper and never took naps. I don't know if there is a gluten connection with all of that but I'm not willing to take the risk.

kbtoyssni Contributor

Seems reasonable to keep your son gluten-free for at least a year. You've got a kid who's genetically predispositioned to have celiac. He's doing a lot of growing and developing in his first few years; if he were one of those kids who would develop active celiac soon after introducing gluten, seems like the developing years would be one of the worst times for a kid to not be absorbing nutrients properly, etc. Wait a few years and the potential health consequences could be lessened.

Fiddle-Faddle Community Regular

I think the interpretation of that study is ridiculous.

It's not a well-controlled study. "No protective effect of breast-feeding was observed," but they didn't track whether or not the mother was on a gluten-free diet at the time of breastfeeding, which means that the baby could have been exposed to gluten from the first day of life.

I am starting to learn that studies can be interpreted and manipulated any way you like.

I read in Discover Magazine that in clinical trials of the drug Lipitor, it was considered successful if the patient's cholesterol was lowered--whether or not the patient survived. (That part wasn't published int he study, of course.) It also said that OFTEN in these studies, patients whose adverse reactions (to the drug being studied) are so severe that they need to stop medications are listed in the study as "noncompliant," and their reactions are not reported as adverse.

Back to introducing babies to gluten: most pediatricians still advise that highly allergenic foods NOT be given to babies before 12 months. This study doesn't convince me to try it any earlier. Why would you WANT to try to give your baby something that, with your health history, stands a fair chance of being toxic? You wouldn't give your less-than-a-year-old baby peanuts, would you?

Guest cassidy

I'm in a similar situation. My son is 14 months and he has never had gluten since I have celiac. My holistic ped said he recommends that no child have gluten before one year. I'm still nursing and I did a lot of research and there wasn't a clear cut answer on the best way to do things. I'm going to introduce it while I'm still nursing and just try a little bit. He will still be primarily gluten-free since it is easier on me but I would like to know that he can have a taste of DH's food without worrying.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacMommy73 Newbie

Very good points. My son had his 4 month check-up today- Pediatrcian and I decided to keep him gluten-free until he is old enough to tell me "what hurts"... I'm also interested to see if he will be healthier all around- ear infections, etc. Interesting thing is that I contacted a GI specialist's office (specializes in Celiac Disease) at Boston's Children's Hospital and they recommend introducing foods as one normally would- and watching for symptoms. I guess there isn't much research out there proving that it's beneficial to wait. Interesting... I still won't take the chance.

Anya78 Explorer

After researching and finding no official guidelines on this topic, I can tell you what I decided to do personally for my son. He's almost 2 now and hasn't had any gluten. We did a genetic test (thru enterolab) and my husband and I both passed on genes that make him more susceptible than the average person (or a person with only one predisposing gene) to developing Celiac or gluten intolerance (I'm a Celiac, hubby isn't). Because I worry so much about stunted growth or cognitive development if I give him gluten and he has Celiac, I decided to wait until he is closer to 3 to give it to him. I;m hoping at that age he will more likely be able to tell me if his stomach hurts etc. There's not much rhyme or reason to my plan, but that's what I decided to do.

B'sgirl Explorer

There are too many differences in different studies to be able to base a decision off of them. I have seen ones that recommend introducing gluten between 4 and 6 months (although the current "trend" says that you should not even introduce solids until 6 months), 7 and 9 months, after 13 months, after 3 years. So go with your gut. I personally am not going to introduce it to my daughter until after a year because I had so much trouble with my son.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,678
    • Most Online (within 30 mins)
      7,748

    GGGrandpa
    Newest Member
    GGGrandpa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.