Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post Diagnosis Appetite


006

Recommended Posts

006 Apprentice

Since I was diagnosed recently, I switched over to what I hope to be a gluten free diet. It's only been a couple weeks; but I'm noticing that as of about a week ago, my appetite has grown notably. I am eating large quantities of food; just like old bodybuilding days. I am training with about the same intensity as before, but make no mistake, I can eat that cow just to your right (in the Brown Cow ad) in one sitting!

Is this a sign of healing? Or, was the gluten foods simply more filling. What does this mean!?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

It happened to me too. I was starving for about 6 weeks. Even waking at 3 am just ravenous. Then it went away. There were many theories thrown around. But likely your body is trying to make up for lost time. The gluten kept you from absorbing nutrients and now your body is starting to be able to do so.

MELINE Enthusiast

It took me 10 months for my appetite to get back to normal. The answer my nd gave me was that when you eat gluten you actually press your body so much, the whole system is trying to kill the "intruder", and your metabolism is not working well...Now your metabolism is working back to normal, but your villy is not healed so you can't absorb any of the ingredients you are getting and your body needs huge amounts of food. Believe me, I had to eat every 2-3 hours, and I there was no food around I could burst in tears (and I am really really really skinny). I also lost 4 kilos when I started the gluten-free diet. Now that my villy is healed I can say that things are much better. I've put on some weight and I like it! And I am not eating so so so much anymore. Imagine I would have to eat apart from my 2-3 huge meals, 6-8 bananas, much much much peanut butter and many many many rice cakes just not to fall apart. My mom kept telling everyone that she was cooking for a whole family in the morning and in the afternoon there was nothing left to eat cuz of me. ............

This is very common, and it will get better. Enjoy it!!!

happygirl Collaborator

Apparently it is pretty common.

"Q: I feel hungry all the time. Is that normal?

Yes, it is very common. Your body is making up for the time it wasn't fully absorbing foods. Hunger levels tend to normalize within the first months after eliminating gluten and beginning a well balanced diet of gluten-free foods."

From: Open Original Shared Link

fedora Enthusiast

me too.

I was the type that gained weight easily, overnight even. I did not eat alot either. I think I was holding on to every bit of nourishment I got. I worked hard to not be overweight.

Then when I went gluten free I lost weight, 6 pounds, without trying and while eating alot of food. I was hungry too! But I stopped getting that awful low blood sugar feeling and naseaus feeling when I got hungry. I just felt hungry.

Things stabilized though. Now I feel normal hunger wise. My weight has stayed the same for several months.

006 Apprentice

I actually hope to gain some of my weight back. The only issue I have with my appetite is that it's expensive and I have to cook everything. I'm very afraid of restaurants; I do not trust them. I've seen too much that makes me prefer to prepare my own foods.

IMWalt Contributor
Is this a sign of healing? Or, was the gluten foods simply more filling. What does this mean!?

I too, experienced the same thing. I just could not seem to eat enough food to feel satisfied. I am still ravenous most of the time. I am a sponsored marathon runner, so I try to keep my weight down in order to perform at my peak, and I have been eating so much food that I was sure I would gain weight. However, that has not happened yet. For now, I just keep piling the food in because if I don't, I feel like I am starving.

Like you, I avoid eating out most of the time (I don't like other people touching my food), and I spend a LOT of money on food.

Walt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    5. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,346
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.