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Does This Really Depress Anyone Else?


LuvMoosic4life

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LuvMoosic4life Collaborator

So I definitly stick to whole foods because of cost reasons, and since they are easier to digest. But I just have to have some gluten free replacement stuff once in a while so I don't feel deprived from my old ways of eating, otherwise I will binge on things when I buy them (not good, and a habit I am slowly getting better at breaking)

I used to be heavily into baking. I love to bake and experiment with creating my own recipes. I am actually happy that I found a new challenge: baking gluten free. Only problem, the cost of gluten free flours.

It depresses me and angers me that other people can just go out and buy a huge bag of regular flour and bake cookies and bread until it comes out of thier ears... and here I am looking through the isles at gluten free flours, which arent really all super expensive depending on brand, but considering the amount you get in a bag in comparison to regular flour, it's definitly not easy on the wallet.

I havent even baked anything yet b/c I just dont have the extra money, plus I have to buy new pans. Being a college student doesnt make this easy. I hope maybe some day these gluten-free alternatives will be bought more frequently and lowered in price, or at least sold in bigger bags.

just had to rant....


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nikky Contributor

hey

rant seconded, the price of gluten free food is just stupid, when you do get some ive heard a lot of praise for pamela's mix.

Good luck

cruelshoes Enthusiast

Do you have an asian market near you? I can get many of my flours there very inexpensively. White rice flour, tapioca, potato starch, cornstarch, etc. can be had for $.39 - $.99/lb. There are a few more expensive ones like brown rice flour and sorghum flour that I have to get at the health food store or on A.M.A.Z.O.N. If you are able to get some of your flours at the asian market for less, it may make the average cost of gluten-free flours on par with wheat flour.

You're right, it can be challenging from a financial standpoint to bake gluten-free.

sickchick Community Regular

Seriously I found a close asian market and it cut my shopping bill IN HALF.

I was dancing... the little asian couple was laughing at me and asking "Why you need so much Coconut Milk"???

:) I bought a lot

Jasmine rice, 50 pound bag 22 bucks! B) I paid $9+ at the grocery for 5 pounds.

a collective sigh of relief :)

And when I get overwhelmed with costs of food I eat rice and beans a few times that week.

Beth in NC Contributor

It gets to me too, and I've only just started this journey...I guess soon it's gonna get to my hubby too! :lol:

For me, I'm going to really have to talk myself through this. I have made our own fresh home ground whole wheat bread for several years now, 6 loaves at a time. It was so good! And "healthy" too! Weird...I used to add a whole cup of extra gluten to make it softer...little did I know what I was doing!

I went to WF and they were out of the Pamela's bread everyone is raving about. I bought a box mix of the 365 brand and let's just say...it NEEDS something. Overall it wasn't horrible, but it needed to be a bit sweeter.

Maybe it's a good thing that it doesn't taste wonderful, I'm hoping to loose weight doing this rather than gain.

Katsby Apprentice

It does get expensive. I bought a whole bunch when I first started, determined to make myself something/anything. It was a lot of trial and error really with many products and recipes so the cost just added up. Xanthan Gum is 10.00 for this little dinky bag, but the good thing is it goes far. I finally started buying Pamela's from amazon. It's a lot cheaper than in the stores and you can also get the extra 15% off if you do the subscription, and I didn't want the hassle of mixing my own flours. I've tried the 365 and Bob's flour mixes also and I didn't like either of those. Good luck.

LuvMoosic4life Collaborator

I will have to look into aisan markets. There are a lot of mexican and latino foods stores around here but I havent seen aisan, but then I havent really looked...

for those of you who buy at the aisian stores, are the flours really gluten-free? I have seen cheap rice flour at wal mart and other stores, but the back of the bag says processed in a facility that makes wheat....


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JayinUT Newbie

I just received my diagnosis 3 weeks ago after going through a balloon endoscopy and colonoscopy with the biopsy proving I had celiac (after 20 years thinking I had IBS) and have been gluten free since. I haven't had an issue adjusting, but the cost, man the cost. Thanks for the tips on the Asian Market. I believe we have several nearby. I'll say that I am actually cooking far more than I did and my wife is getting really good already at modifying receipes that are working quite well and are still tasty. We are finding that by planning out our menu, that is helping as is finding 6 to 8 main dishes that I'll repeat and that work with the family. My two teenagers actually like the diet better, say it tastes better (while, minus the bread).

Nancym Enthusiast

Fortunately the gluten free fruits, veggies and meat are the same price as the regular ones. :)

I've come to believe that it is really a blessing and that being forced away from food produced in factories is a step in the right direction.

VioletBlue Contributor

I tend to agree. Once I had to start reading labels and saw what was in most packaged foods and the huge impact of what I'd been eating most of my life hit me, I pretty much just stopped buying anything in a package.

It does get easier. For me now I buy a few special gluten free things that fit into my life; things like breakfast bars, rice noddles, flours and some Pamela products. I leave the rest behind in favor of whole foods or homemade versions of things like crackers or sauces. Unfortunately there are no asian markets within an hour of me and I react to potato flour and cornstarch and to a lesser degree corn. So I buy what flour I use off of Amazon. The last order was for white teff. It was ultimately cheaper that way even with shipping, then buying a single bag from the local organic store when they have it in stock. You can also sometimes find deals on gluten-free flour on ebay; things like Montina and teff mostly.

Fortunately the gluten free fruits, veggies and meat are the same price as the regular ones. :)

I've come to believe that it is really a blessing and that being forced away from food produced in factories is a step in the right direction.

hawaiimama Apprentice

sorghum (SP) is found in Indian markets as Juwar. I pay $1.97 for a two pound bag. And Millet is same price and sold as bajri flour. I buy my thai rice flour at the chinese grocery and its 69 cents for a one a pound bag. I feel silly going in and buying ten single pound bags but oh well. I also buy all my rice noodles at the chinese supermarket too. I get a spaghetti type noodle for 79 cents a bag. We have always consumed a lot of rice so we've always bought the giant bags of jasmine rice in chinatown. We have always ahd a rice cooker too which makes flawless rice everytime and SO worth the $.

Welda Johnson Newbie

Hi,

Hospital stays and doctors' visits were een more costly than the food I'm buying now, so I'm rejoicing. Today I bought 12 packages of corn spaghetti and 12 boxes of Stevia sweetener over the internet, and they're going to ship them to me, so I have avoided the $4.50 per gallon of gas and having to drive across town to the two health food stores in town. Thank You God! I get my daily ration of soy protein by mail as well (Genisoy), and it is so neat to have all these things delivered to my door. I eat a vegan diet, and live next door to Von's, so, all in all, I'm blessed, and am now healthy and happy as well. I hope all goes well for you in this, your new way of living. Welda

slmprofesseur Apprentice

I miss the convenience and feel your pain! Its hard at first. I have changed and I cook more. I moved to whole foods. I occasionally buy things out of a box for dinner. I use frozen veggies if I can't afford fresh. Beans and rice are a staple in this household! I also use up all leftovers. I cook a whole chicken on Sun with some roasted veggies and rice. On Tues. I make it into a soup or chicken casserole.

Most of the time I spend about $125/wk for a family of 4. I usually buy pasta 2x a month, and rice flour. The only Gluten-free special items are cereal (for daycare), oatmeal , and cookies/crackers for snacktime at daycare.

I will be canning/freezing veggies out of my garden like a crazy lady in 3 wks! I am so industrious that I have plans in the works for my own canned veggie soup, tomato, and pasta sauce. So I can come home from work, open the can (really glass jar) and have dinner in 20 minutes!

I remember buying Pamela's bread mix and returning it because of almond flour... (nut allergy)- does it still have almond flour?

brendygirl Community Regular

There were two college girls who came to my celiac support group who ate in the dorms, explaining that their gluten free diet had to be accommodated by the dorm cooks, and they LOVED it. They thought the diet was so easy- which annoyed the rest of us. We asked them what they had for dinner that night and they said falafel and that is was yummy. They didn't have to pay any extra.

Also, for those of us who work, I signed up for the 125 flexible spending account at work, where I can pretax the amount of money that is the difference in cost between gluten free items and regular items. You can see on my blog here under 125 plan.

The cost of gluten free products is high, but I try to be thankful that I don't have to buy medication or give myself shots or finger pricks, etc. In fact, after 2 years of gluten free living, there are days that go by without me even thinking about it now. :)

TammyK Apprentice

It depresses me and angers me that other people can just go out and buy a huge bag of regular flour and bake cookies and bread until it comes out of thier ears... and here I am looking through the isles at gluten free flours, which arent really all super expensive depending on brand, but considering the amount you get in a bag in comparison to regular flour, it's definitly not easy on the wallet.

/quote]

I have always had a "wine taste on a beer budget" even before I had to start cooking differntly. And, I have always comforted myself with mind games. At any give time, in your local grocery store or Walmart, sneak a peek into other people's carts. Look at all the junk they spend their money on. Ice cream, donuts and pastries, frozen entrees, chips, cookies, soda pop, hamburger helpers, case loads of beer, processed everything! This stuff may seem cheap but it really isn't. Not only does it make you feel wretched but it catches up with you eventually. Doctor bills and prescription drugs are very expensive. Worse case scenerio, cancer costs hundreds of thousands of dollars and a bypass surgery....

Investing into my health and my children's is top priority. We live a very modest lifestyle, live in a modest house with modest furniture, barely paying the bills and barely clothing our four teenagers. I rarely purchase anything that would adorn me or the house. A family vacation is something we have done only a couple of times in 25 years. My priorities are reflected in my budget. There is room for the gluten-free flours, natural foods and a needed supplement allowance. I figure my investment will pay me back later when my friends and family are spending huge amounts at the local pharmacy and doctor's office. I also look around occassionally to see all the thousands of other ways American's spend their money. Expensive vacations, trips to the theatre, fast food, new clothes, restaurants, new furniture, bigger, nicer house, etc... I'm just wondering if we could give up something unnecessary up in order to feed ourselves better. That's what we have to do. It's all in our priorities.

Most times when I am talking to someone about the importance of a healthy diet or taking a wonder supplement, like Cod liver Oil, I will hear a response like, "OH, we can't afford to live like that. So expensive! " One time this came from a friend who has Chrone's Disease. I still think it is a matter of priorities. Most people find away to get what really matters to them.

gluten-free flours are expensive but I view them as critical and valuable - better than gold. The cost doesn't bother me at all since I have watched my 11 yr old daughter's seizures, migraines and Asthma disappear. I no longer itch or having a pimpley rash on my neck and face. You can't put a price tag on those.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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