Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gut Imbalance And Dysbiosis Behind Everything.

AliB

By AliB
in Food Intolerance & Leaky Gut

Recommended Posts

covsooze Enthusiast
covsooze
Posted

Hi Ali :)

What probiotics do you use then? As I'm in the UK too I should be able to get hold of the same type as you use. I'm 27 weeks pregnant and my digestive issues flare up really badly during pregnancy. I feel in need of some probiotics! I have been eating goat's yoghurt and am not sure what's in that.

I've skimmed this thread with great interest and will try to contribute later. (just trying to juggle typing with looking after DS at the mo!)

Susie x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 90
  • Created
  • Last Reply
AliB Enthusiast
AliB
Posted
  • Author
Hi Ali :)

What probiotics do you use then? As I'm in the UK too I should be able to get hold of the same type as you use. I'm 27 weeks pregnant and my digestive issues flare up really badly during pregnancy. I feel in need of some probiotics! I have been eating goat's yoghurt and am not sure what's in that.

I've skimmed this thread with great interest and will try to contribute later. (just trying to juggle typing with looking after DS at the mo!)

Susie x

Hi Susie. I don't take probios per se but purely through the yogurt. I use Total Greek yogurt (the 100% not the low fat one as I prefer the creamier taste) which contains Acidophilus and Streptococcus thermophilus as a starter. As I eat this as part of the Specific Carbohydrate Diet it is good backup, but Elaine Gottschall did warn that any probios need to be consumed as part of a low carb, no sugar diet otherwise it could lead to even the good bacteria becoming a problem.

Because, with so many of us our digestions can't cope with carbs and sugar instead of our bodies being able to utilise it it ends up feeding the bacteria instead.

Which goat's yoghurt do you use? Loseley? I am not sure what combination of bacteria is in that. Again, Elaine warns against taking bifidobacterium as that can end up taking over if we are not careful. If we don't get the gut properly balanced then we can just end up exchanging one set of problems for another.

Because the gut is displaced during pregnancy you might find that you are more likely to develop a hernia or similar at the diaphragm area. Are you already on gluten-free? Many gluten-free foods are high in carbs and sugar and that also can exacerbate gut problems, so you might be better sticking to plain foods for a while to see if that helps. I used to get a lot of wind and bloating before going gluten-free but realised pretty quickly that my problem was more than gluten so dropped dairy and most carbs and sugar too. That sorted out the bloating. I still get it a bit, especially if I have eaten too much carbs but if I can avoid them I am better for it.

Hope to chat with you further when you have more time!

AliB Enthusiast
AliB
Posted
  • Author

Whilst most in the States probably know of its existence, I have just found a copy of and have been reading 'Fast Food Nation'. Yuk and more yuk. Cows fed dead chickens and chickens fed dead cows - no wonder we are in such a mess.

I picked up on one interesting little point though - in Holland cattle are transported carefully to limit the amount of stress thus restricting the amount of bacteria being shed in their stool. If stress can do that to cattle then surely it can happen to humans too. As auto-immune diseases often seem to be triggered by stress, just perhaps there is a link between an imbalance in gut flora. If, during stress, for some reason the body sloughs off bacteria within the gut, it may be then opening the way for rogue bacteria to take over and produce antagonistic toxins that act as a trigger.

Apparently the toxins in E.Coli 157:H7 are so virulent they have actually given them the name of Shiga toxins. Other, usually harmless strains of E.Coli can also modify to produce these toxins and they are not always picked up as food-poisoning tests do not recognize them.

Interesting.

  • 2 weeks later...
Ken70 Apprentice
Ken70
Posted

I found a great probiotic for me at least. Dr. Ohhira's Probiotic Plus 12. This stuff is magic as far as I am concerned. I have tried alot of probiotics but this one is working really well. It doesn't even need to be refrigerated. Between this stuff and getting some sun I am feallng pretty good these days. I hope some of you find the same success......

confused Community Regular
confused
Posted

Ken,

what is that stuff free from. I am having trouble finding an probotic that is gluten, casein and soy free.

paula

AliB Enthusiast
AliB
Posted
  • Author

Paula, can you not just make the SCD yogurt? The long fermentation digest the lactose and changes the casein into a more digestible form. You can buy Probios but in my experience they are obscenely expensive for what you get.

Ken70 Apprentice
Ken70
Posted
Ken,

what is that stuff free from. I am having trouble finding an probotic that is gluten, casein and soy free.

paula

Off the side of the box it says " 100% vegan. no dairy, soy or gluten, non-GMO, chemical free, blister packed to ensure integrity. Refrigeration not required"

try the chrons website to purchase it but there are several others.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted
Paula, can you not just make the SCD yogurt? The long fermentation digest the lactose and changes the casein into a more digestible form. You can buy Probios but in my experience they are obscenely expensive for what you get.

I am afraid to make the scd yogurt, the only thing i use an heating pad is for my stomach lol. I am also afraid event he tiniest of leftover dairy will put me in an rage for weeks.

Off the side of the box it says " 100% vegan. no dairy, soy or gluten, non-GMO, chemical free, blister packed to ensure integrity. Refrigeration not required"

try the chrons website to purchase it but there are several others.

what is the crohns website. Can you pm the webiste and the place to buy the probotics. I would really appreciate it.

thank you

paula

julirama723 Contributor
julirama723
Posted

This is such a fascinating thread! Thanks to those who have offered information and experiences.

I believe that BOTH external environment as well as internal gut flora play a large part in our health (or lack thereof.) What it comes down to is stress; internal stress, external stress, physical stress, emotional stress, mental stress. Everything is connected.

Rachel--24 Collaborator
Rachel--24
Posted
What it comes down to is stress; internal stress, external stress, physical stress, emotional stress, mental stress. Everything is connected.

Absolutely. Every insult contributes to the total body burden. In my opinion everything plays a role.....its never just one thing.

  • 2 weeks later...
AliB Enthusiast
AliB
Posted
  • Author

Pele just posted this article on the SCD thread about gut dysbiosis and its link to Celiac.

Kind of makes me feel much better about banging on about the subject! Makes very interesting reading.......

https://www.celiac.com/articles/21685/1/Mor...ease/Page1.html

Thanks Roy for the article if you get to read this......

Ken70 Apprentice
Ken70
Posted

Open Original Shared Link

I was listening to NPR yesterday and the Science Friday show. They were discussing bacteria and bleach. The human body apparently makes its own bleach. The science is interesting but I posted the link because there are several other stories on the site that discuss bacteria and illnesses. The other interesting story discusses "bad" bacteria like H Pylori actually helping to lower rates of asthma and other allergy symptoms by increasing the number of T cells.

Ken70 Apprentice
Ken70
Posted
Pele just posted this article on the SCD thread about gut dysbiosis and its link to Celiac.

Kind of makes me feel much better about banging on about the subject! Makes very interesting reading.......

https://www.celiac.com/articles/21685/1/Mor...ease/Page1.html

Thanks Roy for the article if you get to read this......

Just read this. This is the first article I've read that put probiotics and sunlight together as treatment. Speaking from my own experience this is exactly what has worked for me.

AliB Enthusiast
AliB
Posted
  • Author

Oh yes Ken, and the following article, another by Roy Jamron, makes that link even stronger.

https://www.celiac.com/articles/21605/1/Do-...ease/Page1.html

The pieces of the puzzle are finally coming together.........whether they will ever work out what to do about it is another matter!

Ken70 Apprentice
Ken70
Posted

some more reading from NPR. check out related stories at the bottom of the page

Open Original Shared Link

AliB Enthusiast
AliB
Posted
  • Author

That is very interesting Ken, especially about the 'fat' bacteria - I must be well-endowed with those! :rolleyes: :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,670
    • Most Online (within 30 mins)
      7,748
    CDR40
    Newest Member
    CDR40
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.