Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Retarded Blue Shield


holdthegluten

Recommended Posts

holdthegluten Rising Star

I applied for an individual PPO because i got laid off of work and they denied me. I got a letter today stating that I wouldnt be covered by Blue Shield until I was symptom and treatment free for 5 years.........What is the point of the insurance then? How can I prove I am Symptom free, even though I am not. These insurance companies are getting ridiculous with choosing who they cover. Why dont they at least cover me and chrge a premium that is equal to the risk. Unbelievable. It isnt even an illnes that requires daily medication.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I can't think of enough horrible things to say about the health insurance industry! I'm so sorry you are going through this.

Please keep asking to speak to whoever actually makes the decision--appeal left and right, and hire an attorney if you can (Edgar Snyder comes to mind, as this is a kind of malpractice).

Folks, this is a good reason NOT to get the endoscopy/biopsy/firm diagnosis--if a gluten-free diet works, you have your answer--and the insurance companies have no excuse to deny you coverage. (If the gluten-free diet doesn't work, you are back to square one, but then you have it on record that the gluten-free diet didn't work, so they will hopefully look further for answers for you, and you won't have the celiac label.)

kbtoyssni Contributor

Gosh I'm sorry. Health insurance scares me for this very reason. I'm so scared I'll lose my job some day and be in this position. Can you get the continuing/COBRA coverage that's usually offered after losing a job? For some reason I thought there was a way to continue coverage without having to apply and deal with all the pre-existing condition stuff. But I might be making that up.

labbott Newbie
I applied for an individual PPO because i got laid off of work and they denied me. I got a letter today stating that I wouldnt be covered by Blue Shield until I was symptom and treatment free for 5 years.........What is the point of the insurance then? How can I prove I am Symptom free, even though I am not. These insurance companies are getting ridiculous with choosing who they cover. Why dont they at least cover me and chrge a premium that is equal to the risk. Unbelievable. It isnt even an illnes that requires daily medication.

I had major health issues and was finally dxd with celiacs. After I was laid off I had to find my own insurance and was also denied coverage because of my history. (of course if the stupid Drs had listened to me we could have avoided my whole history but whatever) Anyhoo, it is standard to deny coverage with anyone who looks like they are high risk. But if you have had continuous coverage they have to offer you a high risk policy. They don't volunteer that info though. You have to ask for it. Even though they are required by law to offer it they won't tell you about it unless you ask. Contact your state's insurance regluation group and they can tell you what you need to know so you can talk inteligently with the insurance company. Then when they tell you to fill out apps and they will review you have to follow up with them. Every day. There is a time limit of I think 45 days. So if you go more than 45 days without coverage then they don't have to offer you a policy. The insurance industry is criminal.

Jenny (AZ via TX) Enthusiast
Gosh I'm sorry. Health insurance scares me for this very reason. I'm so scared I'll lose my job some day and be in this position. Can you get the continuing/COBRA coverage that's usually offered after losing a job? For some reason I thought there was a way to continue coverage without having to apply and deal with all the pre-existing condition stuff. But I might be making that up.

I had also heard that as long as you didn't let the coverage lapse in between coverages, you were fine. When I had switched coverage (before celiac) from my work to my husband's, I had several tests at an ENT. I had to send proof that my coverage had never lapsed. After that I had no problems.

ShayFL Enthusiast

All insurances suck from what I can tell...I have had Aetna and Blue Cross/Blue Shield (current). Sometimes they pay for things and other times they dont. FOR THE SAME THING!!!! Like lab work.....

Phyllis28 Apprentice

You may qualify for insurance through a high risk pool available through your state. I know California has one and I believe many other state also have them.

Also check the availablity of insurance through your former employer using COBRA if you have not already done so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I too hate the insurance industry. Thankfully I do have full coverage through my job but its crazy. Our ER copay is 75 bucks..crazy!

Nancym Enthusiast

Yes, isn't US health care wonderful?

You should be eligible for COBRA for 1.5-3 years, why not sign up for that?

Silly Yak Pete Rookie

That is why we need socialized medicine in this country..

Lockheed Apprentice

yeah saying I'm a celiac did horrible things to my life insurance premium.

darlindeb25 Collaborator
That is why we need socialized medicine in this country

This most definitely is not the answer for the US. Socialized medicine is much worse. You can't get into a doctor for months at a time, they tell you where you can go, just the same...good doctors do not want socialized medicine, they would never beable to get tests done for you.

I have heard many Canadians complain about it. Hospitals are not equipped to care for very sick patients, etc.

Open Original Shared Link

What we need is some kind of a cap put on the insurance compaines, and we need doctors to not run needless tests, which also brings up the cost of health care.

Tim-n-VA Contributor

Since members of this forum probably read more medical stuff than any group not employed by the health care industry, I have a slightly off topic question. Has anyone seen any studies that evaluate medical innovation by medical system - i.e. government funded versus for profite, etc? The potential concern would be that with profits capped, companies would not think it worth the risk to to conduct research.

The extra tests, etc. that drive health care costs are partially influenced in the US by our general tendency to sue for any less than optimum outcome. I suspect that has a lot to do with doctors not wanting to diagnose celiac without a positive blood and a positive biopsy.

rpf1007 Rookie

What we need is some kind of a cap put on the insurance compaines, and we need doctors to not run needless tests, which also brings up the cost of health care.

Fiddle-Faddle Community Regular

What about the fact that most health insurance companies USED to pay for just about every drug under the sun--then, when most people in this country actually believed that they NEEDED all those drugs, the HIC's said that they would only pay if said drug was on their formulary--and then the copays went up and up and up...

Synthroid used to be $4 for 30 pills. Now it's 5 times that much. Does it cost them 5 times to produce it? NO!

And what about all the elderly patients who are on 27 different medicines--how many of those medicines are necessary? Or how many of them are to mask side effects of other meds?

Insurance pays for vaccines--but not for titres to see if the patient is already immune, including the MMR, which gives lifetime immunity with one dose--but two doses are "required." And they don't pay a penny if you or your child has a terrible reaction to the vaccine.

They pay for antacids, H-2 blockers, thryoid meds, anxiety meds, insulin, anti-inflammatories, sleep meds, and all kinds of cortisone treatments (skin and pill form) to combat what we here all recognize as symptoms of gltuen toxicity, but then when you actually find out that you can't eat gluten (and can save them a bundle on prescriptions you no longer need), they deny you coverage. :ph34r:

debmidge Rising Star
You may qualify for insurance through a high risk pool available through your state. I know California has one and I believe many other state also have them.

Also check the availablity of insurance through your former employer using COBRA if you have not already done so.

Call your past employer immediately about COBRA availability

debmidge Rising Star

Open Original Shared Link

Info site about each state's health insurance rules and regs.

My E.R. Co pay is $100 per visit -

I am in the insurance business - keep in mind that the lower the co pays and deductibles the higher the annual premium.

debmidge Rising Star
I can't think of enough horrible things to say about the health insurance industry! I'm so sorry you are going through this.

Please keep asking to speak to whoever actually makes the decision--appeal left and right, and hire an attorney if you can (Edgar Snyder comes to mind, as this is a kind of malpractice).

Folks, this is a good reason NOT to get the endoscopy/biopsy/firm diagnosis--if a gluten-free diet works, you have your answer--and the insurance companies have no excuse to deny you coverage. (If the gluten-free diet doesn't work, you are back to square one, but then you have it on record that the gluten-free diet didn't work, so they will hopefully look further for answers for you, and you won't have the celiac label.)

Well......I am in insurance -- at the risk being unpopular I have to say that there's a lot of acturarial reasons

why an insurance company declines a "risk." Sometimes they'd like to write it at the higher premium but the State Dept. of Insurance is prohibiting them as the rate would be excessive and against public policy. All rates and rules are always approved by your State Dept of Insurance - so it's not necessarily the insurance company giving you the hard time.

Insurance is probably one of the only industries to allow "fair discrimination." This being said, an attorney will not take on a case such as this unless you are being denied coverage for your sex, marital status or religion. Health Insurance companies can deny based on health condition, maybe age too if you are eligible for Medicare - that's a grey area, and type of occupation/hazardous activities like skydiving

If an insurance company can prove actuarially to the State Dept of Insurance that they cannot make a profit in a "line" of insurance, they get permission from the state to decline or limit the coverage or just not write it at all.

You are absolutely correct about not pushing for a firm diagnosis - nothing on paper or in writing...however you can get snagged when you answer the question: Have you seen a doctor in the last 5 years? If you are still messing around with doctors because you have not been feeling well and you are going from Dr. to Dr. for an answer, the response to that question is probably going to be "yes."

My best advices are these:

1a) Always, always take COBRA if offered to you. If your employer is too small for COBRA law then you have a problem....always find out before you take a new job if the employer is subject to COBRA law or not.

1b) Try to get coverage off of your spouse's policy at work, if your spouse works. If your spouse works part-time and only full-timers get health insurance, then perhaps your spouse should increase his/her hours in order to secure health insurance for your family. However, a Pre-existing condition may apply there too.

1c) Never let a lapse happen (see your state guide at site: http://www.healthinsuranceinfo.net)

1d) Group policies have more flexible rules than personal policies do. So always stay with the group or get COBRA from the group.

2) Never apply directly to the insurance company, if you can help it. Go through an expert agent who can

assist you in answering the tricky questions and/or the agent can assist when they know what

health insurance companies are more "with it" than other companies when it comes to celiac.

3a) And the ever unpopular: Keep in mind that insurance companies are not charitable organizations and are only in business for profit, like any other business. Unfortunately, there is a "blur" because the "Blues" used to be non-profit in many states. If insurance companies don't understand a "risk", like celiac, they'll put up

obstacles to coverage or decline outright. If you are not symptomatic, then take their coverage

with the waiting period if you feel that nothing "celiac" will happen in those 5 years. You can't come down with celiac again if you are on a gluten-free diet, etc. So what then exactly is "Blue" excluding in coverage? Any other new health condition shouldn't be attributed to celiac....that would be unlikely....I don't feel that any doctor would

connect a dot between A and B and write that down as an official diagnosis, especially when many doctors

don't know celiac when it's staring them in the face. Let's take advantage of their ignorance.

3b) Also unpopular is the fact that health insurance is not required by law, so therefore, insurance companies do not have a legal obligation to provide it to everyone - like assigned risk auto or workers' compensation, no matter what your health condition is.

I have had the unfortunate experience to know people who neglected to take COBRA and developed cancer while uninsured. These people have no insurance and no way to get it. They have had to sell their home to pay for the cancer treatments (and move in with their son). The sad fact is that they had the opportunity to take COBRA, and had the money for COBRA premiums, but still refused it. I can't stress enough to people that the consequences for not taking health coverage are high. It is the most expensive financial gamble you'll make. I'd like to say the situation can be fixed, but just like many things in life, it can't be fixed once you make a bad decision. A lot of times in life we "pay" for bad decisions. When you don't take COBRA, it's not the insurance industry's fault. COBRA was put into effect to alleviate the "pre existing" condition consequences.

4) Apply to several health insurance companies at once and "shop" it.

5) On applications, do not volunteer information or lengthy explanations

6) If you have insurance issues and would like to complain:

1) Make a written appeal to the insurance company - if they don't satisfy you then,

2) Make a written complaint to your State Dept. of Insurance

7) Please read the info found in: Open Original Shared Link before doing anything rash (#6 above)

8) Some states have more insurance consumer protection laws than others - again, the state has a lot to do with it too.

9) Contact your state legislators (not federal because the federal govt. does not regulate insurance....yet). Tell your state legislators about how you feel that you get denied coverage.

darlindeb25 Collaborator

I work for a doctor, I am on the inside looking out. It's the health industry in general, not the doctors causing the problem. It's like others have said, doctors order tests to cover themselves, just to protect themselves. Like with Medicare, the doctor is told what he must charge, it's not up to the doctor, Medicare sets the amount. With HMO's, the doctor, hospitals, etc, must accept whatever the insurance pays them.

I was prescribed physical therapy, I just received the EOB for the first visit from my insurance. The theripist charged them $290, he received $60, including my copay.

I work for an optometrist, we have one insurance company that pays him $15 for the visit, most of those patients do not have copays, and this insurance is taking over. There is a lot of overhead in a doctor's office, plus staff...with 2 paitents an hour, that's $30....this is what is raising the cost of health prices. It's not the doctors causing the problems.

They pay for antacids, H-2 blockers, thryoid meds, anxiety meds, insulin, anti-inflammatories, sleep meds, and all kinds of cortisone treatments (skin and pill form) to combat what we here all recognize as symptoms of gltuen toxicity, but then when you actually find out that you can't eat gluten (and can save them a bundle on prescriptions you no longer need), they deny you coverage.
This is so true, but the pharmacutical industry doesn't want celiac's to be diagnosed, they want us to think we need all these meds! That's why there isn't more research in celiac/gluten intolerance...it doesn't pad the pockets of the pharmacutical industry. Most research is backed by this industry. Celiac disease does not make them wealthy.

It's a never ending battle!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.