Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had My Food Allergy Testing Today

Amyleigh0007

Recommended Posts

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

The bad news is I am allergic to nothing. I guess that could be good news too but I was really hoping to find the last piece of the puzzle. No such luck. The good news is the allergist diagnosed me with gluten intolerance! I got my "real" dx! She said from the sound of my symptoms and the positive response from the diet plus my son's history that she thought it was gluten intolerance. She also told me that there are many false negatives with Celiac bloodtests (I already knew that thanks to this forum!) and with my son having Celiac and my symptoms that she thought I might have it, despite a negative bloodtest, and I should get a biopsy. With that good news comes the bad news that I would have to start eating gluten again for the biopsy. I just can't do that right now. School is starting next week and I don't want to be sick. I can't just go to the restroom when I need to (I'm a first grade teacher). I might do it next summer. Anyway, I am satisfied with my appointment.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ohsotired Enthusiast
ohsotired
Posted

I don't think I would bother with the biopsy, but that's me.

Have you considered gene testing?

Congrats on the dx! Must be a relief to be official!

Live2BWell Enthusiast
Live2BWell
Posted

What type of allergy testing did you have done? I heard skin-prick type testing wasn't as reliable as the Lame Advertisement.

But, I am glad that you got a Dx, hope you feel better going gluten free :)

ravenwoodglass Mentor
ravenwoodglass
Posted

If you have had good results from the diet the need to biopsy is up to you. If you wait till next summer you will be facing at least 3 to 6 months of full glutenings to even have a chance at a positive result. I would take your return to health and just run with it but the choice of whether to do the long term challenge of course is yours alone.

Amyleigh0007 Enthusiast
Amyleigh0007
Posted
  • Author

I doubt I will do the biopsy. The diet is enough for me. I am happy where I am now. My allergist did the skin prick. I would have rather done it through blood testing but oh well. That's how that office does it. I do feel better now that I have an actually dx. I know that is lame but that's just how I am.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748
    Bea71
    Newest Member
    Bea71
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.