Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Many Of You Had To Avoid Dairy At First?


Hummingbird4

Recommended Posts

Hummingbird4 Explorer

I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast

After almost a year of gluten free diet I still can't tolerate lactose....

ShayFL Enthusiast

But some are able to eat it again within 3 or 4 months. Depends on how quickly the tips of your villi heal.

MELINE Enthusiast

biopsy showed a healed villy....I guess I am lactose intolerant because I am lactose intolerant and not because of celiac. ...sorry :huh: for my previous post, I had to explain more.....here it is 3 after midnight and I am really tired.....

Darn210 Enthusiast

During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.

oceangirl Collaborator

Hi, welcome to the board.

2 years after being gluten free I added in hard cheddar cheese with no problem and three years later I eat Greek yogurt every day, and can have all dairy with no problem. It may be shorter for you- everyone is different. I cook everything myself from whole foods (not the store, meaning "natural state" foods) and always bring my food with me wherever I go. You may have guessed that I am ultra-sensitive which I would never have believed before having lived it.

Patience- this takes time. Listen to your body and keep a detailed food log; that is the best advice I ever got.

good luck,

lisa

kbtoyssni Contributor
During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.

How did they check for lactose intolerance during a scope? I didn't realize this was possible.

I never eliminated dairy and still eat it with no problems. I guess I was one of the lucky ones! My mum, on the other hand, has had to eliminate casein.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

I was severely lactose intolerant (couldn't even eat it with lactaid) for years before going gluten-free. Two months of the diet and I tried dairy with no problems.

Darn210 Enthusiast
How did they check for lactose intolerance during a scope? I didn't realize this was possible.

It was actually a test on one of the biopsies where they check for the enzyme to process lactose. There were four or five other enzymes that they also checked. My daughter "officially" showed no damage but she had generalized dissacharidase deficiency . . . most of her sugar processing was low . . . that was read by the GI as "hidden" damage. That along with the positive blood test got her a positive diagnosis.

I had a great link about dissacharidase defiency . . . can't find it at the moment. I'll go look and post it if I can find it.

Edit:

OK . . . might have been helpful to spell it right . . . makes it much easier to find. Here it is . . .

Open Original Shared Link

SEAliac Rookie
I had a great link about dissacharidase defiency . . . can't find it at the moment. I'll go look and post it if I can find it.

Edit:

OK . . . might have been helpful to spell it right . . . makes it much easier to find. Here it is . . .

Open Original Shared Link

Thank you, thank you, thank you! This is a fantastic link. I'm starting month 6 gluten-free and have become increasingly frustrated about avoiding raw veggies and anything with lactose. I'm hoping I'll heal quickly, but the references in this thread to one-two-and-three years of lactose intolerance are hopefully making my expectations more realistic.

powerbraid Rookie
I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

yup - I had to eliminate dairy for about a year. Now, I am just starting to eat yogurt again, and cottage cheese, and all seems to be going well. There is hope! :)

CeliacAlli Apprentice
I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

It was a good 5 years for me and I can only tolerate small amounts now =/

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,861
    • Most Online (within 30 mins)
      7,748

    MEK5
    Newest Member
    MEK5
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.