Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Many Of You Had To Avoid Dairy At First?

Hummingbird4

Recommended Posts

Hummingbird4 Explorer
Hummingbird4
Posted

I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted

After almost a year of gluten free diet I still can't tolerate lactose....

ShayFL Enthusiast
ShayFL
Posted

But some are able to eat it again within 3 or 4 months. Depends on how quickly the tips of your villi heal.

MELINE Enthusiast
MELINE
Posted

biopsy showed a healed villy....I guess I am lactose intolerant because I am lactose intolerant and not because of celiac. ...sorry :huh: for my previous post, I had to explain more.....here it is 3 after midnight and I am really tired.....

Darn210 Enthusiast
Darn210
Posted

During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.

oceangirl Collaborator
oceangirl
Posted

Hi, welcome to the board.

2 years after being gluten free I added in hard cheddar cheese with no problem and three years later I eat Greek yogurt every day, and can have all dairy with no problem. It may be shorter for you- everyone is different. I cook everything myself from whole foods (not the store, meaning "natural state" foods) and always bring my food with me wherever I go. You may have guessed that I am ultra-sensitive which I would never have believed before having lived it.

Patience- this takes time. Listen to your body and keep a detailed food log; that is the best advice I ever got.

good luck,

lisa

kbtoyssni Contributor
kbtoyssni
Posted
During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.

How did they check for lactose intolerance during a scope? I didn't realize this was possible.

I never eliminated dairy and still eat it with no problems. I guess I was one of the lucky ones! My mum, on the other hand, has had to eliminate casein.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dandelionmom Enthusiast
dandelionmom
Posted

I was severely lactose intolerant (couldn't even eat it with lactaid) for years before going gluten-free. Two months of the diet and I tried dairy with no problems.

Darn210 Enthusiast
Darn210
Posted
How did they check for lactose intolerance during a scope? I didn't realize this was possible.

It was actually a test on one of the biopsies where they check for the enzyme to process lactose. There were four or five other enzymes that they also checked. My daughter "officially" showed no damage but she had generalized dissacharidase deficiency . . . most of her sugar processing was low . . . that was read by the GI as "hidden" damage. That along with the positive blood test got her a positive diagnosis.

I had a great link about dissacharidase defiency . . . can't find it at the moment. I'll go look and post it if I can find it.

Edit:

OK . . . might have been helpful to spell it right . . . makes it much easier to find. Here it is . . .

Open Original Shared Link

SEAliac Rookie
SEAliac
Posted
I had a great link about dissacharidase defiency . . . can't find it at the moment. I'll go look and post it if I can find it.

Edit:

OK . . . might have been helpful to spell it right . . . makes it much easier to find. Here it is . . .

Open Original Shared Link

Thank you, thank you, thank you! This is a fantastic link. I'm starting month 6 gluten-free and have become increasingly frustrated about avoiding raw veggies and anything with lactose. I'm hoping I'll heal quickly, but the references in this thread to one-two-and-three years of lactose intolerance are hopefully making my expectations more realistic.

powerbraid Rookie
powerbraid
Posted
I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

yup - I had to eliminate dairy for about a year. Now, I am just starting to eat yogurt again, and cottage cheese, and all seems to be going well. There is hope! :)

CeliacAlli Apprentice
CeliacAlli
Posted
I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

It was a good 5 years for me and I can only tolerate small amounts now =/

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,955
    • Most Online (within 30 mins)
      7,748
    AnnaLousGFBakery
    Newest Member
    AnnaLousGFBakery
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.