Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Slightly Official......


ohsotired

Recommended Posts

ohsotired Enthusiast

I've been waiting for just over two weeks for the rest of my blood work results. My original round of labs was drawn on 7/16 and those all came back "normal". The GI doc only had the TtG IgA test run, not the others.

I'm really, really glad I pushed for those additional blood tests, even though he didn't think we needed to do them "because the Ttg IgA is the most sensitive."

Today I get a phone call from the GI doc's office. The phone call I've been waiting for.

The MA tells me "It looks like you may have a slight case of celiac disease." :blink: LOL

Again, it is dreadfully obvious that this doctor has not ever dx'd a celiac patient before, nor does he seem to know much about it.

I didn't even ask her to read the numbers to me, I just asked if she would drop a copy of those results in the mail for me.

So, uh............can I join the cool kids club now? ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacAlli Apprentice
I've been waiting for just over two weeks for the rest of my blood work results. My original round of labs was drawn on 7/16 and those all came back "normal". The GI doc only had the TtG IgA test run, not the others.

I'm really, really glad I pushed for those additional blood tests, even though he didn't think we needed to do them "because the Ttg IgA is the most sensitive."

Today I get a phone call from the GI doc's office. The phone call I've been waiting for.

The MA tells me "It looks like you may have a slight case of celiac disease." :blink: LOL

Again, it is dreadfully obvious that this doctor has not ever dx'd a celiac patient before, nor does he seem to know much about it.

I didn't even ask her to read the numbers to me, I just asked if she would drop a copy of those results in the mail for me.

So, uh............can I join the cool kids club now? ;)

I don't know whether to say congratulations or not...haha, but I'm happy for you that you have a diagnosis=]

mirabella Apprentice

HELLO

:D Funny, I hope your not asking permission! Just join in!! Ive asked my GI dr. to put my results in the mail for me. That has been 4 weeks ago. I have a problem with the GI dr. My family dr is super nice. I believe I would of laughed if they told me that... Its like being SLIGHTLY PREGNANT. Either you are or arent. You have already been watching your gluten intake. Maybe its that more productive vein, better flow.

At least your getting somewhere.

What time is it where you are? Here it is6:30pm I can never figure out this time when we post. On the post time it says 2:30pm?????? *&%$

ShayFL Enthusiast

Is that like being slightly pregnant???......LOL

Welcome aboard!

ohsotired Enthusiast

Too funny that y'all mention the 'slightly pregnant' thing. I almost blurted that out on the phone to the nurse, and then when I hung up I DID say that to my husband. LOL

I forgot to tell y'all what else she said. "Go on a gluten free diet for a while and see how you feel."

Yeah, like you'll ever get me to willingly eat that stuff EVER again. No way. And I have no problem telling them where to stick it if they decide they "need" to do an endoscopy. I got what I need. ;)

Jenny (AZ via TX) Enthusiast

Crystal,

I'm so happy you pushed for the additional tests! You listened to your body and finally got the doc to listen to you. Good for you. Now you know for sure that you were on the right course to begin with.

home-based-mom Contributor
What time is it where you are? Here it is6:30pm I can never figure out this time when we post. On the post time it says 2:30pm?????? *&%$

Near the top of this page click on My Controls and then on the left click on Board Settings. Select your Time Zone and save the settings. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mirabella Apprentice
Near the top of this page click on My Controls and then on the left click on Board Settings. Select your Time Zone and save the settings. :)

Thanks for the info.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,413
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.