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It's Slightly Official......

ohsotired

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ohsotired Enthusiast
ohsotired
Posted

I've been waiting for just over two weeks for the rest of my blood work results. My original round of labs was drawn on 7/16 and those all came back "normal". The GI doc only had the TtG IgA test run, not the others.

I'm really, really glad I pushed for those additional blood tests, even though he didn't think we needed to do them "because the Ttg IgA is the most sensitive."

Today I get a phone call from the GI doc's office. The phone call I've been waiting for.

The MA tells me "It looks like you may have a slight case of celiac disease." :blink: LOL

Again, it is dreadfully obvious that this doctor has not ever dx'd a celiac patient before, nor does he seem to know much about it.

I didn't even ask her to read the numbers to me, I just asked if she would drop a copy of those results in the mail for me.

So, uh............can I join the cool kids club now? ;)

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CeliacAlli Apprentice
CeliacAlli
Posted
I've been waiting for just over two weeks for the rest of my blood work results. My original round of labs was drawn on 7/16 and those all came back "normal". The GI doc only had the TtG IgA test run, not the others.

I'm really, really glad I pushed for those additional blood tests, even though he didn't think we needed to do them "because the Ttg IgA is the most sensitive."

Today I get a phone call from the GI doc's office. The phone call I've been waiting for.

The MA tells me "It looks like you may have a slight case of celiac disease." :blink: LOL

Again, it is dreadfully obvious that this doctor has not ever dx'd a celiac patient before, nor does he seem to know much about it.

I didn't even ask her to read the numbers to me, I just asked if she would drop a copy of those results in the mail for me.

So, uh............can I join the cool kids club now? ;)

I don't know whether to say congratulations or not...haha, but I'm happy for you that you have a diagnosis=]

mirabella Apprentice
mirabella
Posted

HELLO

:D Funny, I hope your not asking permission! Just join in!! Ive asked my GI dr. to put my results in the mail for me. That has been 4 weeks ago. I have a problem with the GI dr. My family dr is super nice. I believe I would of laughed if they told me that... Its like being SLIGHTLY PREGNANT. Either you are or arent. You have already been watching your gluten intake. Maybe its that more productive vein, better flow.

At least your getting somewhere.

What time is it where you are? Here it is6:30pm I can never figure out this time when we post. On the post time it says 2:30pm?????? *&%$

ShayFL Enthusiast
ShayFL
Posted

Is that like being slightly pregnant???......LOL

Welcome aboard!

ohsotired Enthusiast
ohsotired
Posted
  • Author

Too funny that y'all mention the 'slightly pregnant' thing. I almost blurted that out on the phone to the nurse, and then when I hung up I DID say that to my husband. LOL

I forgot to tell y'all what else she said. "Go on a gluten free diet for a while and see how you feel."

Yeah, like you'll ever get me to willingly eat that stuff EVER again. No way. And I have no problem telling them where to stick it if they decide they "need" to do an endoscopy. I got what I need. ;)

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

Crystal,

I'm so happy you pushed for the additional tests! You listened to your body and finally got the doc to listen to you. Good for you. Now you know for sure that you were on the right course to begin with.

home-based-mom Contributor
home-based-mom
Posted
What time is it where you are? Here it is6:30pm I can never figure out this time when we post. On the post time it says 2:30pm?????? *&%$

Near the top of this page click on My Controls and then on the left click on Board Settings. Select your Time Zone and save the settings. :)

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mirabella Apprentice
mirabella
Posted
Near the top of this page click on My Controls and then on the left click on Board Settings. Select your Time Zone and save the settings. :)

Thanks for the info.

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

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    • barb simkin
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      By barb simkin · Posted

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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