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It's Slightly Official......


ohsotired

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ohsotired Enthusiast

I've been waiting for just over two weeks for the rest of my blood work results. My original round of labs was drawn on 7/16 and those all came back "normal". The GI doc only had the TtG IgA test run, not the others.

I'm really, really glad I pushed for those additional blood tests, even though he didn't think we needed to do them "because the Ttg IgA is the most sensitive."

Today I get a phone call from the GI doc's office. The phone call I've been waiting for.

The MA tells me "It looks like you may have a slight case of celiac disease." :blink: LOL

Again, it is dreadfully obvious that this doctor has not ever dx'd a celiac patient before, nor does he seem to know much about it.

I didn't even ask her to read the numbers to me, I just asked if she would drop a copy of those results in the mail for me.

So, uh............can I join the cool kids club now? ;)


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CeliacAlli Apprentice
I've been waiting for just over two weeks for the rest of my blood work results. My original round of labs was drawn on 7/16 and those all came back "normal". The GI doc only had the TtG IgA test run, not the others.

I'm really, really glad I pushed for those additional blood tests, even though he didn't think we needed to do them "because the Ttg IgA is the most sensitive."

Today I get a phone call from the GI doc's office. The phone call I've been waiting for.

The MA tells me "It looks like you may have a slight case of celiac disease." :blink: LOL

Again, it is dreadfully obvious that this doctor has not ever dx'd a celiac patient before, nor does he seem to know much about it.

I didn't even ask her to read the numbers to me, I just asked if she would drop a copy of those results in the mail for me.

So, uh............can I join the cool kids club now? ;)

I don't know whether to say congratulations or not...haha, but I'm happy for you that you have a diagnosis=]

mirabella Apprentice

HELLO

:D Funny, I hope your not asking permission! Just join in!! Ive asked my GI dr. to put my results in the mail for me. That has been 4 weeks ago. I have a problem with the GI dr. My family dr is super nice. I believe I would of laughed if they told me that... Its like being SLIGHTLY PREGNANT. Either you are or arent. You have already been watching your gluten intake. Maybe its that more productive vein, better flow.

At least your getting somewhere.

What time is it where you are? Here it is6:30pm I can never figure out this time when we post. On the post time it says 2:30pm?????? *&%$

ShayFL Enthusiast

Is that like being slightly pregnant???......LOL

Welcome aboard!

ohsotired Enthusiast

Too funny that y'all mention the 'slightly pregnant' thing. I almost blurted that out on the phone to the nurse, and then when I hung up I DID say that to my husband. LOL

I forgot to tell y'all what else she said. "Go on a gluten free diet for a while and see how you feel."

Yeah, like you'll ever get me to willingly eat that stuff EVER again. No way. And I have no problem telling them where to stick it if they decide they "need" to do an endoscopy. I got what I need. ;)

Jenny (AZ via TX) Enthusiast

Crystal,

I'm so happy you pushed for the additional tests! You listened to your body and finally got the doc to listen to you. Good for you. Now you know for sure that you were on the right course to begin with.

home-based-mom Contributor
What time is it where you are? Here it is6:30pm I can never figure out this time when we post. On the post time it says 2:30pm?????? *&%$

Near the top of this page click on My Controls and then on the left click on Board Settings. Select your Time Zone and save the settings. :)


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mirabella Apprentice
Near the top of this page click on My Controls and then on the left click on Board Settings. Select your Time Zone and save the settings. :)

Thanks for the info.

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      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
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