Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Slightly Official......


ohsotired

Recommended Posts

ohsotired Enthusiast

I've been waiting for just over two weeks for the rest of my blood work results. My original round of labs was drawn on 7/16 and those all came back "normal". The GI doc only had the TtG IgA test run, not the others.

I'm really, really glad I pushed for those additional blood tests, even though he didn't think we needed to do them "because the Ttg IgA is the most sensitive."

Today I get a phone call from the GI doc's office. The phone call I've been waiting for.

The MA tells me "It looks like you may have a slight case of celiac disease." :blink: LOL

Again, it is dreadfully obvious that this doctor has not ever dx'd a celiac patient before, nor does he seem to know much about it.

I didn't even ask her to read the numbers to me, I just asked if she would drop a copy of those results in the mail for me.

So, uh............can I join the cool kids club now? ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacAlli Apprentice
I've been waiting for just over two weeks for the rest of my blood work results. My original round of labs was drawn on 7/16 and those all came back "normal". The GI doc only had the TtG IgA test run, not the others.

I'm really, really glad I pushed for those additional blood tests, even though he didn't think we needed to do them "because the Ttg IgA is the most sensitive."

Today I get a phone call from the GI doc's office. The phone call I've been waiting for.

The MA tells me "It looks like you may have a slight case of celiac disease." :blink: LOL

Again, it is dreadfully obvious that this doctor has not ever dx'd a celiac patient before, nor does he seem to know much about it.

I didn't even ask her to read the numbers to me, I just asked if she would drop a copy of those results in the mail for me.

So, uh............can I join the cool kids club now? ;)

I don't know whether to say congratulations or not...haha, but I'm happy for you that you have a diagnosis=]

mirabella Apprentice

HELLO

:D Funny, I hope your not asking permission! Just join in!! Ive asked my GI dr. to put my results in the mail for me. That has been 4 weeks ago. I have a problem with the GI dr. My family dr is super nice. I believe I would of laughed if they told me that... Its like being SLIGHTLY PREGNANT. Either you are or arent. You have already been watching your gluten intake. Maybe its that more productive vein, better flow.

At least your getting somewhere.

What time is it where you are? Here it is6:30pm I can never figure out this time when we post. On the post time it says 2:30pm?????? *&%$

ShayFL Enthusiast

Is that like being slightly pregnant???......LOL

Welcome aboard!

ohsotired Enthusiast

Too funny that y'all mention the 'slightly pregnant' thing. I almost blurted that out on the phone to the nurse, and then when I hung up I DID say that to my husband. LOL

I forgot to tell y'all what else she said. "Go on a gluten free diet for a while and see how you feel."

Yeah, like you'll ever get me to willingly eat that stuff EVER again. No way. And I have no problem telling them where to stick it if they decide they "need" to do an endoscopy. I got what I need. ;)

Jenny (AZ via TX) Enthusiast

Crystal,

I'm so happy you pushed for the additional tests! You listened to your body and finally got the doc to listen to you. Good for you. Now you know for sure that you were on the right course to begin with.

home-based-mom Contributor
What time is it where you are? Here it is6:30pm I can never figure out this time when we post. On the post time it says 2:30pm?????? *&%$

Near the top of this page click on My Controls and then on the left click on Board Settings. Select your Time Zone and save the settings. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mirabella Apprentice
Near the top of this page click on My Controls and then on the left click on Board Settings. Select your Time Zone and save the settings. :)

Thanks for the info.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748

    Melissa McGowan
    Newest Member
    Melissa McGowan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.