Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Ever Just Wish


sickchick

Recommended Posts

sickchick Community Regular

You could lay down, take a year long nap, and when you wake up it's your time and your body is all healed? lol B)

I'm setting my alarm for Oct 2009. Cool! I just washed my sheets! :lol:

ni ni!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munkee41182 Explorer

Good Night!!! 44 days until I get married...I got contaminated Tuesday night, had my first fitting last night with a bloated belly. SO PO'D!!!!! I'd love to sleep for the enxt 43 days......wake up, everything fit, not have a bloated belly and call it a wedding! I gues I need to wash my sheets now too!

ShayFL Enthusiast

Honestly, I feel every day is a blessing even if I am sick. I almost died at birth, drowned but was revived at 9, almost died at 13 with a ruptured appendix and survived a horrible car accident. Clearly I have a purpose here. :) I hate being sick. But at my lowest and sickest point I asked God to help me be able to mother my daughter (she is now 12) and I feel that getting that privilege is worth staying positive. I dont want to miss a year of teaching her and watching her grow. I also wouldnt want to miss a year of snuggling with my husband every night and playing with my doggies everyday.

sickchick Community Regular

Jami... you must be a little frazzled to say the least :lol:

WOW Shay that is pretty awesome :):):)

lovelove

roxie Contributor

Your post reminded me of a dream I had not too long ago. I dreamed that I jumped out of an airplane and started floating through the beautiful star-lit sky. I kept saying, "I'm Free - I'm Free!" I was thinking of NOTHING but floating. I feel like Celiac Disease has consumed my life. I want to be free again!!

Chrissyb Enthusiast

Yes there are days I feel like that and today was one of them. I deal with other illnesses also so today I had to get a 4 hour iv infusion for one and the nurse had a hard time finding the vain and since I have to do it again tomorrow she just let the cath in and it is in the top of my hand not a fun place. And to think I get to do this every month oh well such is life and it could be worse. I have many many blessing and I remember to thank God for them each day.

sickchick Community Regular

Oh roxie, I wish I could give you a big hug :D

OWWW Chrissy that sounds very painful... :huh:

hang in there everybody.

we are ALL blessings! xxx :)

I was just incredibly exhausted today and felt like if I laid down to sleep I'd sleep for a year at least ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munkee41182 Explorer

I'm not too frazzled....I just had to tell the seamstress not to take in the top yet because of my belly. She actually offered to have me come back tomorrow (Saturday) for the fitting, which she usually doesn't do because she works out of her house. So I took her up on the offer and have been eating very plain rice, chicken and plain veggies just to get the belly down (which it has).

Besides, I got everything done about 10 months ago because I know how I am (I'm very uptight) and didn't want to be too frazzled around this time. Just waiting for stupid RSVP's so I can do the place cards and need to find wrapping paper to wrap the bridal party's gifts in. The hardest part now, trying to not get contaminated from now until October 26th (when we come back from our honeymoon). That's what I'm most freeked out about! One week in Antigua...I hold my fiance to throw me on the beach and make sure that I'm stocked with Lara bars and fresh fruit and hopefully I'll come home not ill!

And I agree, we're all blessings. Shay, your picture should be of a cat, you have so many lives!!!!

sickchick Community Regular

Good for you Sweetie! I hope your wedding is truly blissful:):):)

roxie Contributor

Collette,

You sound so free spirited and Happy/Positive!!! I envy you!!! Roxie

sickchick Community Regular

wow! that is incredibly sweet, roxie

and another hug for you :)

purple Community Regular
Honestly, I feel every day is a blessing even if I am sick. I almost died at birth, drowned but was revived at 9, almost died at 13 with a ruptured appendix and survived a horrible car accident. Clearly I have a purpose here. :) I hate being sick. But at my lowest and sickest point I asked God to help me be able to mother my daughter (she is now 12) and I feel that getting that privilege is worth staying positive. I dont want to miss a year of teaching her and watching her grow. I also wouldnt want to miss a year of snuggling with my husband every night and playing with my doggies everyday.

AMEN!

purple Community Regular

I live in a town, so small there are only 5 or 6 stop signs and no stop lites. I shop in the big city 1 hour away. I am not a celiac. When I go to town I think of all you people that are gluten-free. I am mostly gluten-free. I drive past all the fast food places (none in our town) and other restaurants, thinking about how hard it is for you guys. I shop quickly down some of the store aisles b/c there is nothing there "we" can buy. I am thankful for all I have learned on here from you great teachers! My dd is gluten-free and the other dd (19/17)is trying to be and dairy/egg free. Celiacs are very strong even when the body is weak. If you asked a gluten eating person to just give it up...they couldn't, most anyway. I am so proud of everyone here!

My heart is heavy for all the children. They go through so much. Babies thru college kids. So hard. And moms.

I went shopping last night and chose to eat a banana and some chips instead of fast food. I realize how hard it is except I don't know your physical pain. Not only physical but emotional. The list goes on. Friends, family, relatives, co-workers, waiters, etc., don't get it b/c they don't walk in your shoes.

We are blessed b/c we are eating healthier. Gluten eaters don't know what all their food is doing to their bodies.

Just peek into other peoples carts. Picture the products as boxes and bags of chemicals with the green Mr. Yuck sticker on them. Poison. Toxic. Early death. Time bomb waiting to explode. We are blessed.

Think of starving kids that may only get a bowl of rice for the day. We are blessed. Think of concentration camp prisoners that only got bread and watery parsnip soup. Sickly bodies and in prison, losing all they had and knew. We are blessed.

I and my family are eating more healthy. We are blessed.

I have prayed for many of you. You are blessed.

I want to quote a bible verse.

Revelation 21:4

And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain; for the former things are passed away.

My prayer is that all of you will be included in this group called: "their"

My God's peace with you all. I love you guys!!! :)

Chrissyb Enthusiast

Wow thank you purple, you brought tears to my eyes, I love that verse. I truly am blessed and I consider it a blessing to find out that I have celiac disease and I am no longer poisioning my body. Sometimes I miss certian foods but it passes and I am learning how to cook things that are better tasting. (still looking for fluffy yummy pancakes :lol: ).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.