Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daughter Freshman In College


wildwood

Recommended Posts

wildwood Apprentice

My daughter was told she likely has celiac disease. She found out in mid August two weeks before she went away to college. It has been difficult for her to say the least. Food services has been helpful to her, but she is finding out the hard way where gluten hides. For instance, they started offering gluten free pasta last week. She was thrilled and ordered a serving of the pasta with marinara sauce assuming the sauce would be safe. Well she felt horrible all the next day. She went to food services and checked with the manager. As it turns out the marinara has gluten in it as well as all the other sauces offered! She said now she eats it with just butter or oil on it. She went from being thrilled that her dorm was right next to the dining hall to feeling bad because now it is a constant reminder of all she cannot eat. She is keeping her chin up, but I know it gets her down.

I am going to visit her in a couple of weeks. I was thinking I would bring her some gluten-free pasta sauces. She said she is pretty sure they would heat them up for her in the dining hall. Can anyone recommend any? Does anyone have any unique ideas of what I can include in a care package that might help her with this transition and brighten up her day?

We are so new to this. It is overwhelming!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Ragu - If wheat or gluten are in the ingredients, they will list them. They do not hide ingredients.

Care Package: Thai Kitchen has some easy to prepare meals. Does she have access to a microwave?

Open Original Shared Link

Lara bars

Trail mix (make sure gluten free)

Pamela's cookies

I dont eat any processed food myself, but these come to mind.

wildwood Apprentice
Ragu - If wheat or gluten are in the ingredients, they will list them. They do not hide ingredients.

Care Package: Thai Kitchen has some easy to prepare meals. Does she have access to a microwave?

Open Original Shared Link

Lara bars

Trail mix (make sure gluten free)

Pamela's cookies

I dont eat any processed food myself, but these come to mind.

Thanks, those are good ideas. She does have a microwave. We do not eat much processed food here at home, but unfortunately her options are very limited at school. Next year, I will try and make sure she get one of the dorm suites that has a small kitchen or something off campus so she can prepare her own food.

Darn210 Enthusiast
Thanks, those are good ideas. She does have a microwave. We do not eat much processed food here at home, but unfortunately her options are very limited at school. Next year, I will try and make sure she get one of the dorm suites that has a small kitchen or something off campus so she can prepare her own food.

Is it possible to see if she can transfer into or get on a waiting list for one of the dorm suites for this year . . . there always seems to be a student fall out rate in the beginning. I think it would be much easier if she could be in control of her own food. Celiac disease is covered by the ADA. If she has an official diagnosis, I believe they are required to accomodate her . . . that may get you to the top of the list for a suite. I don't know the ins and outs, maybe somebody else can say what she is legally entitled to.

Classico red sauces are OK, too.

purple Community Regular

Bertoli alfredo sauce and Prego Traditional style spaghetti sauce...careful of sauces with meat.

My dd was a freshman last year and we went thru this in Feb.

Chocolate

Refried beans and gluten-free tortilla chips

items and a dish to make layered mexican dip, veggies to go on it

Thai microwaved noodles

Popcorn

celery, apples, carrot six, other fruits and veggies

peanut butter, jelly

yogurt

nuts and seeds

homemade cookies

soft kleenex-lotion kind- very comforting during a crying spell or cold

fruit cups

gluten-free rice cakes (some people have trouble with Quaker)

gluten-free toiletries-lotion, shampoo, etc.

snacks to take to dorm/room parties and movie night

When I learned how to cook gluten-free I made entrees almost every day and put them in baggies and a plastic container and labeled them(still do). Then took my dd some when ever I could to put in her fridge and a couple for her freezer. It took a couple of days to thaw the fridge ones out so she could eat for a week.

Find out where the gluten-free restaurants are for her and list whats safe on the menu.

A gluten-free cake for her birthday to share with her new dormies.

Holidays are coming so I am looking for gluten-free recipes like the "old" favorites to make...dd first holidays gluten-free this year.

wildwood Apprentice
Bertoli alfredo sauce and Prego Traditional style spaghetti sauce...careful of sauces with meat.

My dd was a freshman last year and we went thru this in Feb.

Chocolate

Refried beans and gluten-free tortilla chips

items and a dish to make layered mexican dip, veggies to go on it

Thai microwaved noodles

Popcorn

celery, apples, carrot six, other fruits and veggies

peanut butter, jelly

yogurt

nuts and seeds

homemade cookies

soft kleenex-lotion kind- very comforting during a crying spell or cold

fruit cups

gluten-free rice cakes (some people have trouble with Quaker)

gluten-free toiletries-lotion, shampoo, etc.

snacks to take to dorm/room parties and movie night

When I learned how to cook gluten-free I made entrees almost every day and put them in baggies and a plastic container and labeled them(still do). Then took my dd some when ever I could to put in her fridge and a couple for her freezer. It took a couple of days to thaw the fridge ones out so she could eat for a week.

Find out where the gluten-free restaurants are for her and list whats safe on the menu.

A gluten-free cake for her birthday to share with her new dormies.

Holidays are coming so I am looking for gluten-free recipes like the "old" favorites to make...dd first holidays gluten-free this year.

Those are all good ideas. What are some of the meals that you make that freeze well? She has a very small freezer, but I figure I can bring her a least a few meals to keep in there. Thanks for suggestions.

wildwood Apprentice
Bertoli alfredo sauce and Prego Traditional style spaghetti sauce...careful of sauces with meat.

My dd was a freshman last year and we went thru this in Feb.

Chocolate

Refried beans and gluten-free tortilla chips

items and a dish to make layered mexican dip, veggies to go on it

Thai microwaved noodles

Popcorn

celery, apples, carrot six, other fruits and veggies

peanut butter, jelly

yogurt

nuts and seeds

homemade cookies

soft kleenex-lotion kind- very comforting during a crying spell or cold

fruit cups

gluten-free rice cakes (some people have trouble with Quaker)

gluten-free toiletries-lotion, shampoo, etc.

snacks to take to dorm/room parties and movie night

When I learned how to cook gluten-free I made entrees almost every day and put them in baggies and a plastic container and labeled them(still do). Then took my dd some when ever I could to put in her fridge and a couple for her freezer. It took a couple of days to thaw the fridge ones out so she could eat for a week.

Find out where the gluten-free restaurants are for her and list whats safe on the menu.

A gluten-free cake for her birthday to share with her new dormies.

Holidays are coming so I am looking for gluten-free recipes like the "old" favorites to make...dd first holidays gluten-free this year.

Those are all good ideas. What are some of the meals that you make that freeze well? She has a very small freezer, but I figure I can bring her a least a few meals to keep in there. Thanks for suggestions.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wildwood Apprentice
Is it possible to see if she can transfer into or get on a waiting list for one of the dorm suites for this year . . . there always seems to be a student fall out rate in the beginning. I think it would be much easier if she could be in control of her own food. Celiac disease is covered by the ADA. If she has an official diagnosis, I believe they are required to accomodate her . . . that may get you to the top of the list for a suite. I don't know the ins and outs, maybe somebody else can say what she is legally entitled to.

Classico red sauces are OK, too.

I will discuss this with her when I see her in a couple of weeks. If she wants to proceed, we can go to housing services while I am there and see what we need to do. Thank you very much for the good advice.

purple Community Regular
Those are all good ideas. What are some of the meals that you make that freeze well? She has a very small freezer, but I figure I can bring her a least a few meals to keep in there. Thanks for suggestions.

Spaghetti with veggies mixed in

Lasagna with veggies mixed in

Chili

Rice dishes with different sauces or veggies

Mini potpies with assorted fillings-made in a jumbo muffin pan

Taco meat for chips or hard shells (beef or chicken)

Taquito or Fajita meat for chips or hard corn shells

Beanie wienies

Pizza slices

BBQ chicken meat for chips

Soups like minestrone made with rice instead of pasta

Enchiladas

Beans, corn and rice casserole to just eat or make nachos with

Treats made and frozen ahead of time- don't need to be kept in the fridge when she gets them

Fresh breakfast burritos or frozen "breakfast" in a pot pie

DD didn't like the chicken alfredo with rice noodles frozen-she said they were soggy

I made a mexicali cornbread casserole-soggy too

I drop it in sandwich baggies, then I put 2 entrees into a flat square container then labeled with the item and date. I put mini muffins or cookies in all the little spaces so she gets a surprise sometimes and it fills up the space too. Just wrap them individually in plastic wrap. I could send her about 5 containers at a time, 2 for the freezer and 3 for the fridge. She didn't eat in the lunch room much...all gluten but fruit which was usually offered in the morning.

kbtoyssni Contributor

Chili always freezes well.

This PB cookie recipe travels well and doesn't go stale - they'll last for a several weeks.

PB cookies

1 c. Peanut Butter

1 egg

1 c. sugar ( I substitute 1/4 c. sugar and 3/4 c. splenda since my husband is diabetic and it works great)

1t vanilla

mix, roll into balls and press out on cookie sheet. Bake 10-12 mins at 375. I make 4 batches at once and am set for about 10 days. They're delicious and EASY and portable.

wildwood Apprentice

Thank you for the good suggestions.

mandasmom Rookie

One of my daughters favorites is one of those indivdual packages of microwavable brown rice (minute rice or trader joe) covered with a can of sheltons chili--nutricious, easy and calorie reasonable

Peanut butter is a college staple--works great on rice cakes

lots of fruit and nuts

indidual packages of salad dressing, soy sauce and crakers (glutino makes these packages) will help her easily take along what she needs to join her new friends for meals.

I think a much more indepth meeting with the college dining facility is in order--most acadmeic institutions have an ADA officer---that person should accompany her to that meeting and be sure she gets all of the accomdations neccessary! We tried really hard to keep our daughter int he dorm--meal time is a h uge social thing for college freshman and she will likley feel another sense of loss if she has to give that up too!!

Good luck to her and kudos to you for allowing her to spread her wings and find her way!!

wildwood Apprentice
One of my daughters favorites is one of those indivdual packages of microwavable brown rice (minute rice or trader joe) covered with a can of sheltons chili--nutricious, easy and calorie reasonable

Peanut butter is a college staple--works great on rice cakes

lots of fruit and nuts

indidual packages of salad dressing, soy sauce and crakers (glutino makes these packages) will help her easily take along what she needs to join her new friends for meals.

I think a much more indepth meeting with the college dining facility is in order--most acadmeic institutions have an ADA officer---that person should accompany her to that meeting and be sure she gets all of the accomdations neccessary! We tried really hard to keep our daughter int he dorm--meal time is a h uge social thing for college freshman and she will likley feel another sense of loss if she has to give that up too!!

Good luck to her and kudos to you for allowing her to spread her wings and find her way!!

Thanks for your reply. These are good ideas. She just called me to say she ate some soup and was so sick this afternoon her professor excused her from class. I told her you idea for the individual packets of soy sauce and she liked that idea very much. I will look into some gluten-free canned soups for her also. I feel she is starting to get discouraged. I am glad I am going to see her next weekend. I have been gathering alot of ideas for her and I can try and reinforce to her where gluten may be hiding. I know she will find her way, but I am hoping she does not let it get her down. I try to keep things as upbeat as possible and to let her know she will get the hang of it. She will just be learning alot along the way. I will also be discussing with her your suggestion of a meeting with the dining facility. I really don't think she would be happy leaving the dorm because that is where all the freshman reside. If I were able to get her into a suite she would be with upper classman. She may be okay with that idea. It is another option I will offer her although I suspect for now she will want to stay put because she has made some nice friends where she is. Thanks again for your suggestions :)

JNBunnie1 Community Regular
Thanks for your reply. These are good ideas. She just called me to say she ate some soup and was so sick this afternoon her professor excused her from class. I told her you idea for the individual packets of soy sauce and she liked that idea very much. I will look into some gluten-free canned soups for her also. I feel she is starting to get discouraged. I am glad I am going to see her next weekend. I have been gathering alot of ideas for her and I can try and reinforce to her where gluten may be hiding. I know she will find her way, but I am hoping she does not let it get her down. I try to keep things as upbeat as possible and to let her know she will get the hang of it. She will just be learning alot along the way. I will also be discussing with her your suggestion of a meeting with the dining facility. I really don't think she would be happy leaving the dorm because that is where all the freshman reside. If I were able to get her into a suite she would be with upper classman. She may be okay with that idea. It is another option I will offer her although I suspect for now she will want to stay put because she has made some nice friends where she is. Thanks again for your suggestions :)

I would add only that maybe you could get her a hot plate so she can boil eggs. If you put a splash of vinegar in with your eggs with the boiling water it makes them easier to peel too.

wildwood Apprentice
I would add only that maybe you could get her a hot plate so she can boil eggs. If you put a splash of vinegar in with your eggs with the boiling water it makes them easier to peel too.

She is not allowed to have a hot plate in the freshman dorms, but I will remember this for next year. Thanks

WW340 Rookie

I use the Classico sauces. I use the same sauce for pizzas also. It is easy to make your own pizza with sauce, meat and cheese.

I also suggest you check into food tek gluten free products. These are microwave items that cook in just a minute or two and you only have to add water.

I love the chocolate cake. I use the pizza crust for hot dogs and pizza. I use the bread all the time. The items do not come out pretty, but they fill the gap for me. The hamburger buns are good, too. As with most gluten free breads, it is better toasted, but quite palitable without toasting. I think it is better than any of the store bought gluten free breads.

The first package comes with measuring cup and forms. You then just order the refills which are less expensive. There are multiple servings in each package.

You can order direct or from Amazon.

Open Original Shared Link

At least with these I can make a quick sandwich, hot dog, or hamburger. Like a lot of gluten free things, the longer you have been without, the better they taste.

yeasty Newbie

Although this is a UK article, there are some excellent ideas in how to live safely gluten free in a shared dorm at university:

Open Original Shared Link

celiac mom Newbie

My son is also a freshman in college, but has been diagnosed with celiac for 4 years. He loves the tacquitos by Delimex- chicken- they are gluten free. We bought him a refrigerator with a bigger freezer knowing that he would need meals in case the dining hall was a bust. He also eats alot of nachos with corn tortilla chips and cheese. Amy's makes a very good rice pasta mac and cheese and also rice crust pizza, but she will need a bigger freezer for that. Good luck- it is tough in the beginning but does get easier.

wildwood Apprentice

Thanks for all of your suggestions and resource recommendations. My daughter tried Amy's gluten-free mac & cheese this weekend and did enjoy it. I made some chili and cornbread for her freezer. She actually liked the gluten-free cornbread better than the way I used to make it. My mother purchased her a microwave popcorn popper and she is absolutely thrilled! She is doing much better with her new diet. I am proud of her. I will be experimenting with some of the other suggestions some of you have given and next time I go to to see her, I will stock her freezer (her very small freezer :)) with some more homecooked food. There is a Wegman's in the city where she goes to school so I advised her to go there when she has room in her freezer again because they have a small, but decent selection of gluten-free frozen entrees as well as some other gluten-free products. I am also sending her packages of different products to try so we can figure out which ones she likes and what works the best for her. This forum has been an invaluable source of information and advice. Thanks to all of you for your help.

CeliacMom2008 Enthusiast

I'm sending you and your daughter hugs. My son is 9 and I've already worried enough about college for a lifetime! My hubby reminds me that by the time our son is in college there will have been a great deal of changes (hopefully improvements) and my worrying is very premature. I'm still in the hovering stage where I think my mother and I are the only ones capable of feeding him! ;) I have visions of me making trips to college with food and gluten-free beer! I can hear it now "Who's gonna make the next beer run?' "Oh Mom's got this one!" :lol:

Good luck to you and your daughter! Freshman year is challenging enough without having to worry about what your next meal might be. More hugs...

Erin Elaine Newbie

I don't know if anyone mentioned this, but Amy's pasta sauces are (I think) all gluten free. Check the label though. Did you buy her the Gluten Free shopping guide? Open Original Shared Link. That's how I learned what to eat when I got diagnosed.

I can only imagine how bad the cross contamination might be in a dorm kitchen. For example, are they cooking the gluten free pasta in the same water as the regular pasta? My suggestion is to set up a meeting with the university and the chef at her dorm kitchen to talk about cross contamination.

I really feel for her. I didn't know I had celiac when I was in college and I'm sure that must be hard. But the alternative is that she found out now. I have major bone loss due to malabsorbtion and I'm only 28 so hopefully she can avoid those problems.

Good luck!

wildwood Apprentice
I don't know if anyone mentioned this, but Amy's pasta sauces are (I think) all gluten free. Check the label though. Did you buy her the Gluten Free shopping guide? <a href="Open Original Shared Link Advertisement/Gluten-Free-Grocery-Shopping-Guide-2008-2009/dp/0979409411" target="external ugc nofollow">Open Original Shared Link Advertisement/Gluten-Free-Grocery-...9/dp/0979409411</a>. That's how I learned what to eat when I got diagnosed.

I can only imagine how bad the cross contamination might be in a dorm kitchen. For example, are they cooking the gluten free pasta in the same water as the regular pasta? My suggestion is to set up a meeting with the university and the chef at her dorm kitchen to talk about cross contamination.

I really feel for her. I didn't know I had celiac when I was in college and I'm sure that must be hard. But the alternative is that she found out now. I have major bone loss due to malabsorbtion and I'm only 28 so hopefully she can avoid those problems.

Good luck!

Thanks Erin Elaine (my daughter's middle name is Elaine also :) ) I have not purchased a gluten free shopping guide for her yet. She is not in a position to shop too much. I will keep that in mind when she does start to do her own shopping. She has been very good about asking how her food is prepared so I think she has the cross contamination issue down to a minimum although I don't think in a cafeteria setting it will ever be 100% safe.

I do feel grateful that she found out she has celiac disease early on and she is determined to be and remain gluten free. She has not had any bone loss that I know of. I had her vitamin and mineral levels checked and she seems to be okay in all areas. She does have DH and has experienced neuropathy. Both are subsiding now that she has eliminated gluten from her diet. From what I understand it will probably take a very long time for the DH to resolve.

Thanks for your response and I wish you the best.......

wildwood Apprentice
I'm sending you and your daughter hugs. My son is 9 and I've already worried enough about college for a lifetime! My hubby reminds me that by the time our son is in college there will have been a great deal of changes (hopefully improvements) and my worrying is very premature. I'm still in the hovering stage where I think my mother and I are the only ones capable of feeding him! ;) I have visions of me making trips to college with food and gluten-free beer! I can hear it now "Who's gonna make the next beer run?' "Oh Mom's got this one!" :lol:

Good luck to you and your daughter! Freshman year is challenging enough without having to worry about what your next meal might be. More hugs...

Thank you for your kindness. I wish you and your family the best also. As a mom, I don't think you ever outgrow the hovering stage :lol:

She is doing very well and seems to have things as under control as she can. She has taken this all in stride and seems to be doing very well. She amazes me every day!!!

Erin Elaine Newbie

I never developed DH. I did have some neuopathy in my fingers, but it went away. I would still think about getting a bone density test for your daughter. My vitamin levels and all other tests are normal and I only found out about the bone loss by accident. The annoying thing was, after I was diagnosed I saw my childhood doctor for the first time in years and he pulled out an X ray from when I got into a car accident at 19. He said: you know, this shows your bones were underdeveloped even back then. I thought, wow that would have been great to know 8 years ago!

Your daughter is lucky to have a mom to help her. Those of us who find out when we are older end up on our own!

Best wishes to you both.

  • 1 month later...
photobabe42 Newbie

I used to boil eggs in a hot pot and those were allowed. The school where I went had an office of Institutional Equity. They helped me get a PRIMO single room close to the bathroom when I was diagnosed with Crohn's Disease. I had a friend who was Celiac and he got a key to the kitchen in our dorm and we cooked all the time. We also had some pre-med friends who loved to ask us questions. Really, all our friends were very supportive. You can send her care packages also from the Gluten Free Mall here (ok shameless plug...). I also had some one-on-one meetings with one of the food service directors, in exchange for drumming up support for dining hall focus groups :) My school had plenty of vegetarians and vegans and the food service is a lot better than it used to be as far as offerings for folks with allergies or certain dietary needs. Best of luck to your daughter. Being sick in college is no fun, I hope she can surround herself with intelligent and open-minded people!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,548
    • Most Online (within 30 mins)
      7,748

    Lunaluv
    Newest Member
    Lunaluv
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.