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The Worst Canker Sore Outbreak Ever

bigapplekathleen

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ravenwoodglass Mentor
ravenwoodglass
Posted

"I use antibacterial hand wipes in the car but they are even gluten-free."

This was the only thing that struck me when I read your last post. The reason I have pulled it out is because of the alcohol that is in them. That would be considered to be a safe item and the company would state it is gluten-free even if they used a gluten derived alcohol. I worked for the schools for a while and these products were all over the classrooms. I definately had a problem with them so even though it is a long shot I thought I would mention it. Did you start using a new brand shortly before the outbreaks started?

I am really glad they are getting you into the celiac center, I hope they can figure this out for you and stop the process. You must be in so much pain and I hope it is over soon for you.

  • 7 months later...
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bigapplekathleen Contributor
bigapplekathleen
Posted
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I just wanted to let you all know that they have FINALLY figured it out. (I posted something on another message with complete explanation if you want to look it up.) My new gastro did biopsies 3 weeks ago that showed Lymphocitic Colitis, which certainly explains A LOT. I am better already on 18 days of 9mg/dayEntocort and 6 caplets a day of Pepto Bismol (plus still on 5 mg of prednisone).

Thanks for all of your support through this past year of horrible stuff !

K

ravenwoodglass Mentor
ravenwoodglass
Posted
I just wanted to let you all know that they have FINALLY figured it out. (I posted something on another message with complete explanation if you want to look it up.) My new gastro did biopsies 3 weeks ago that showed Lymphocitic Colitis, which certainly explains A LOT. I am better already on 18 days of 9mg/dayEntocort and 6 caplets a day of Pepto Bismol (plus still on 5 mg of prednisone).

Thanks for all of your support through this past year of horrible stuff !

K

I am so glad they got this figured out and that you are improving. Thanks for letting us know.

ang1e0251 Contributor
ang1e0251
Posted

THanks for letting us know. I have been thinking of you and wondering from time to time how you are. I'm so glad you have a diagnosis.

  • 8 years later...
samund01 Newbie
samund01
Posted

Hi! I'm wondering how you are now? I have similar symptoms and wondering what you found out? 

Posterboy Mentor
Posterboy
Posted
8 hours ago, samund01 said:

Hi! I'm wondering how you are now? I have similar symptoms and wondering what you found out? 

samundd01,

see this thread in spells out how I took Lysine to help my canker sores.

I hope this is helpful.

You might also have low stomach acid.  We get low in our amino acids when our stomach acid is not strong enough to digest proteins.

Open Original Shared Link

from the article

"Jonathan Wright, M.D., well-known and respected holistic physician, states that “Although research in this area is entirely inadequate, its been my clinical observation that calcium, magnesium, iron, zinc, copper, chromium, selenium, manganese, vanadium, molybdenum, cobalt, and many other micro-trace elements are not nearly as well-absorbed in those with poor stomach acid as they are in those whose acid levels are normal. When we test plasma amino acid levels for those with poor stomach function, we frequently find lower than usual levels of one or more of the eight essential amino acids: isoleucine, leucine, lysine, methionine, phenylalanine, threonine, tryptophan, and valine. Often there are functional insufficiencies of folic acid and/or vitamin B12.”

Again I hope this is  helpful but this not medical advice just things I have found that helped me.

And swilling salt water (be sure spit it out and don't swallow it) helps them go away quicker and taking Lysine can help keep them away after your current bout/round of mouth sores go away.

Once or twice a day of Lsyine will keep most ulcers at bay.  Remember it is an essential amino acid and we have to eat food with enough Lysine everyday or we get low in it since our body can't store most amino acids for more than 24 hours and why supplementing with Lysine helps.

Just trying to help those, God being my help, with the things that helped me with those still suffering.

Knowledge is power pass it one.

2 Corinthians 1: 3, 4

3 Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort;

4 Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.

posterboy,

samund01 Newbie
samund01
Posted

thank you posterboy:)

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      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By trents · Posted

      Welcome to the forum, @annamarie6655! Are the muscle spasms and joint aches a new pattern of reaction to gluten or have you experienced these in the past? Concerning DeGiorno's "gluten-free" pizza, we have had many reports from celiac.com members of gluten reactions from consuming this product. I believe it is one of those "gluten-free" products that is made from wheat (speaking of the crust component) that has been processed in such a way as to remove most of the gluten. The FDA regs allow food companies to use the claim "gluten-free" as long as the product contains no more than 20ppm of gluten. This works for most celiacs but not for those on the more sensitive end of the spectrum. There is another industry standard known as "Certified Gluten-Free" that is stricter, requiring no more than 10ppm of gluten. Certified Gluten-Free products use the "GFCO" logo. Concerning the salad dressing, could you list the ingredients in another post or link it? There are certain other ingredients besides gluten commonly used in gluten-free manufactured food items to give them acceptable textures that give a lot of celiacs problems. 
    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      Hello, so I was diagnosed with Celiacs about 8 months ago. After being diagnosed, I have been trying very hard to maintain a completely gluten-free (and celiac safe) diet.  Two of the main times I had a huge reaction, it was from: - gluten-free Digiorno Pizza w Pepperoni - Kraft Zesty Italian Dressing (this was in canada if that changes anything) Both are marked as gluten-free. Following eating these items, I had a severe bout of diarrhea, uncontrollable and heavy muscle spasms throughout my whole body, and aching throughout every joint.   If these are both gluten-free, why would I be reacting to them? Should I be worried about a separate allergy?  In regards to the muscle spasms, should I follow up with someone about that?
    • Suze046
      Alcohol

      By Suze046 · Posted

      Hey! I’m recently gluten free and yes I really struggle with alcohol now. I haven’t really drank in 2 months as it just made me feel awful the next day in terms of stomach ache mainly. I’ve had a couple of glasses of white wine here and there (mainly low sulphate) but every time it gives me a gut ache. I think it’s because but guy is so damaged from my journey to discovering my gluten intolerance and hopefully this will improve but honestly I’m just not bothered about having a drink now. I can’t even touch Prosecco or champagne I think the bubbles really upset me! 
    • Suze046
      Gluten-Free Newbie

      By Suze046 · Posted

      That is helpful thank you I hadn’t thought of that! 
    • Awol cast iron stomach
      Work friends & food

      By Awol cast iron stomach · Posted

      I just wanted to share my support for you. Rant away. We all know that, and have experiences like that at some point. I am sorry for that very unpleasant, and emotionally isolating reminder of your medical condition. Which always is exacerbated by the hunger. I will admit many of my family friends, and coworkers found it easier to exclude me than to accommodate me. I also have to be very strict with cross contamination so in hindsight they did me a favor.  The sting however can often still be unearthed when I read experiences like yours.  I am sorry you had that occur. I hope you, and the coworkers can find the easy more accommodating experiences again after this unfortunate incident. Best wishes. 
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