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Doctors In Nashville Area


kkcarlton

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kkcarlton Newbie

Hi All,

I am new to this forum. In January I went to see a doctor for various problems. Among several tests he tested me for gluten intolerance and fat malabsorption with a stool test at Enterolab. Both came back ok which made me happy. At the same time he had ordered another stool and saliva test from Diagnos Techs and they also happened to check for gluten intolerance via saliva test. It came back incredibly high.

So I have several questions:

  1. How do I know which test is accurate?
  2. If I AM gluten intolerant, how do I know if I have celiac disease?
  3. If I am "just" gluten intolerant, can I have small amounts of gluten in spices if I take GlutenEase?
  4. And does anybody know any good doctors in the Nashville area that are familiar with gluten intolerance?

Any advice is greatly appreciated.

Thanks,

Kristina


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mamabear Explorer

Hi All,

I am new to this forum. In January I went to see a doctor for various problems. Among several tests he tested me for gluten intolerance and fat malabsorption with a stool test at Enterolab. Both came back ok which made me happy. At the same time he had ordered another stool and saliva test from Diagnos Techs and they also happened to check for gluten intolerance via saliva test. It came back incredibly high.

So I have several questions:

  1. How do I know which test is accurate?
  2. If I AM gluten intolerant, how do I know if I have celiac disease?
  3. If I am "just" gluten intolerant, can I have small amounts of gluten in spices if I take GlutenEase?
  4. And does anybody know any good doctors in the Nashville area that are familiar with gluten intolerance?

Any advice is greatly appreciated.

I do not know of a specific doctor's name, but a celiac patient was told by the Rochester Mayo Clinic to get more detailed followup at Vanderbilt University. You might call the main number for Vandy med school, and get the Department of Medicine>division of Gastroenterology>ask for a celiac specialist. Don't know if it will work, but it's thought.

  • 4 weeks later...
RollingAlong Explorer

Wallace McGrew, gastroenterologist

Frist Clinic

www.fristclinic.com

I don't think the enzymes work if you're having an autoimmune reaction to gluten.

they help your body digest it better, but your body still reacts to the

smaller digested bits, if that makes sense.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
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