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Nutrifocus

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Nutrifocus Newbie

Hello!

I am a dietitian and am updating a book I wrote on gluten free diets. I would like to include tips from people who have celiac disease into the book so that those tips can help others with the same medical condition. These can be any type of tip that helps you get through your day easier as someone on a gluten free diet. It can be cooking, favorite food products, eating out, etc... Anything that makes your life easier that you would like to share with others so that they might make their life easier as well. I will add your name to your tip in the book!

THanks so much!

Kim Tessmer, RD LD


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purple Community Regular

Simple thing to do. Cook extra and freeze it in plastic bags then plastic containers. Label them with food item and the date. Take out of the freezer, cut the bag open and plop it into a glass dish to microwave. No mess and fast. Rephrase it however you need to.

mamaesq Rookie

I've only been gluten-free for 9 days, but I've noticed such an amazing difference in how I feel that whenever I want something like real pasta or a non gluten-free beer, or just one bite of the grilled cheese sandwich I made for my 2 year old, I just remind myself of how far I've come already and how big of a setback that one bite or sip would be. So far, that has kept me completely on track.

Not really a food related tip, per se, but a coping tip, I guess!

Stacy

mushroom Proficient

Likewise, not really a helpful tip, but I have convinced myself (and it actually is for me) that everything that contains gluten is a poison. My husband and I joke, look at that plate of cyanide or (arsenic). It has reached the point for me that I do not crave all the goodies I used to love, I find them revolting.

zero Newbie
Likewise, not really a helpful tip, but I have convinced myself (and it actually is for me) that everything that contains gluten is a poison. My husband and I joke, look at that plate of cyanide or (arsenic). It has reached the point for me that I do not crave all the goodies I used to love, I find them revolting.

I was in the check out of whole foods and the person behind me had a clear plastic bag of a dozen bagels. I was actually disgusted by the sight which amazed me as I loved bread before my diagnosis. I wonder how many gluten-free people have cravings now vs. those that are repulsed by the forbidden foods.

Treen Bean Apprentice

Even thought there are gluten free noodles, etc... readily available. There are naturally gluten free products that can easily be substituted. ie: Use a roll of prepared polenta in place of lasagna noodles. Simply cut it in 1/4 inch slices and layer like noodles.

Good gluten free brands include: Tinkyada Pasta Joy; Kinnikinnick; Pamela's baking mixes; Chebe bread mixes; Laura's Gluten Free Rolled Oats

Triumph Dining Cards are invaluable when it comes to eating out. These laminated cards clearly list foods containing gluten, questionable foods, and safe foods. Better yet, these cards are cuisine specific and multilingual. All cards are written in both English and the native language of the specific cuisine.

Restaurants with gluten free menus include: Outback Steakhouse, Maggiano's, PF Chang's; Carabba's; Legal Seafood... to name a few

Experimentation is the key to finding products that fit your specific needs and tastes. Trial and error and learning to laugh at your mistakes are essential.

zero Newbie

Forgot to add my tip that for a celiac who doesn't like to cook, having a rice cooker with a timer has been a life saver. I load it up in the morning and it is ready when I get home.


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RoseTapper Newbie

It used to be a problem when co-workers would invite me to lunch because they would invariably choose to go to a Japanese restaurant = bad news for a celiac when you're also allergic to seafood. I now keep wheat-free Tamari sauce in the fridge at work and bring it along to use on the salad and meats. The restaurants never protest. Likewise, when my family wants to eat Mexican food, I bring my own corn tortillas and gluten-free beer.

henny Explorer

I am finding that often my savior is fruit.

If I'm stuck on the road or end up in a cafe, I can usually score a banana or apple. It seems like every gas station, Starbucks, and convenience store in my area has a few pieces of fruit for sale. It's something that I know is safe to eat, and it's good for me too :)

frec Contributor

In restaurants I usually order some sort of meat without the sauce or pasta or whatever. Restaurants are noisy and waiters are often young and in a hurry. The best way to really make it clear to them is to ask for BARE NAKED chicken, or BARE NAKED pork. Usually they are embarrassed or they giggle but they do get the idea. Tell them to cook it in a separate pan and specify what oil they can use, if any. And give good tips, so they are nice to the next allergic/celiac person who comes in.

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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