Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fatigue & Exhaustion


genuis boy

Recommended Posts

genuis boy Newbie

I struggle with fatigue and exhaustion a lot. Does anyone have any suggestions or recommendations? I really don't sleep well either.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Have you had your Thyroid tested? Iron and Ferritin? B12?

Are you Celiac or Gluten Intolerant? If so are you 100% gluten free?

Please tell us more about yourself so we can help you.

ravenwoodglass Mentor

A lot of us have had to struggle with this. How long have you been gluten-free? Are you still consuming dairy? What have you already tried to help with this issue?

For some a sublingual B12 can be very helpful for energy. Try to eat as cleanly and as much naturally gluten free food as you can. Try to keep to a routine for sleeping, go to bed and get up at the same time every day. A warm bath or shower with a lavender scented soap can help as can a eye pillow filled with lavender. Try not to have anything with a lot of sugar of caffine after 12pm noon and try to get some excercise on a regular basis. Before bed try to get a routine down so your body and mind knows it is time to sleep. Do something quiet and relaxing whether it is reading a book or listening to some soft music or watching a nonstimulating TV program.

Welcome to the board and I hope you get some relief soon.

genuis boy Newbie

I am celiac for 7 yrs. I probably am casein intolerant rather than lactose, that has gone on for 30 yrs. Yes I do cheat and consume some diary, mostly yogurt and mozzarella cheese. I was thinking of doing the CBC blood test, so I guess I will try to do thyroid and b12 later depending on cost. I am currently on an antidepressant. I am also a full time student so my hours tend to vary. I will try the lavender before bed as I have gotten interested in aromatherapy. I only have begone to consume a bottle of tea at about 1030 in the morning or at noon with lunch. Before that I never consumed caffeine after becoming celiac. I just tried some b-12 before I went to bed last night and I felt like I actually got some sleep when I got up. I have done b12 in the morning along with zinc and calcium 3 times a day. Thanks very much for your help and support.

aikiducky Apprentice

If you suspect you're casein intolerant, you should try cutting out all dairy products for a while. I know it's a pain, but that might well be keeping you feeling tired, I know if I would have dairy even just now and then I wouldn't be getting out of bed. It can also make you slightly depressed.

Pauliina

happygirl Collaborator

Discuss with your doctor

Open Original Shared Link

Dig Liver Dis. 2007 Oct;39(10):922-8. Epub 2007 Aug 10. Links

L-Carnitine in the treatment of fatigue in adult celiac disease patients: a pilot study.Ciacci C, Peluso G, Iannoni E, Siniscalchi M, Iovino P, Rispo A, Tortora R, Bucci C, Zingone F, Margarucci S, Calvani M.

Gastrointestinal Unit, Department of Clinical and Experimental Medicine, University Federico II, Naples, Italy. ciacci@unina.it

BACKGROUND: Fatigue is common in celiac disease. L-Carnitine blood levels are low in untreated celiac disease. L-Carnitine therapy was shown to improve muscular fatigue in several diseases. AIM: To evaluate the effect of L-carnitine treatment in fatigue in adult celiac patients. METHODS: Randomised double-blind versus placebo parallel study. Thirty celiac disease patients received 2 g daily, 180 days (L-carnitine group) and 30 were assigned to the placebo group (P group). The patients underwent clinical investigation and questionnaires (Scott-Huskisson Visual Analogue Scale for Asthenia, Verbal Scale for Asthenia, Zung Depression Scale, SF-36 Health Status Survey, EuroQoL). OCTN2 levels, the specific carnitine transporter, were detected in intestinal tissue. RESULTS: Fatigue measured by Scott-Huskisson Visual Analogue Scale for Asthenia was significantly reduced in the L-carnitine group compared with the placebo group (p=0.0021). OCTN2 was decreased in celiac patients when compared to normal subjects (-134.67% in jejunum), and increased after diet in both celiac disease treatments. The other scales used did not show any significant difference between the two celiac disease treatment groups. CONCLUSION: L-Carnitine therapy is safe and effective in ameliorating fatigue in celiac disease. Since L-carnitine is involved in muscle energy production its decreased absorption due to OCTN2 reduction might explain muscular symptoms in celiac disease patients. The diet-induced OCTN2 increase, improving carnitine absorption, might explain the L-carnitine treatment efficacy.

ShayFL Enthusiast

Just get your thyroid checked before trying L-Carnitine. It can worsen a hypothyroid condition. Google it. Learn before you try.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



genuis boy Newbie

Sorry I haven't got back to anyone, I have been studying for 5 tests this week. I was taking b12 3 times a day and that seemed to wind me up, so I am doing two a day now. That does seem to help. I did try L-Carnitine a couple of months ago, but that didn't seem to do anything. I think that the best place to start is with some blood work. They place by me has a fatigue panel, but I think I will try a CBC first. I'll hav eto get brave and eliminate dairy for a while and see what happens. :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.