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I Had My Endoscopy Yesterday

cat3883

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cat3883 Explorer
cat3883
Posted

I started eating gluten free yesterday. Thank God for that. About 6 weeks ago my blood work showed positive for Celiac. My GP sent me to a GI and he did the genetic testing which showed I had both genes for Celiac. Finally I had my endo and colonoscopy yesterday. My GI said he sent biopsies off but he could tell just by looking that my Villi were flat. I am so thankful I have finally been diagnosed and can now feel better. I know this new journey will be difficult at times but at least I know I can feel good in the future.

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ShayFL Enthusiast
ShayFL
Posted

WE are here whenever you need us. I am glad you have an answer now.

happygirl Collaborator
happygirl
Posted

Cat, let us know what you need help with as you transition to eating gluten free. Happy you have found your answer.

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome. Feel free to ask any questions you need to. You have found a great place for info and support. The first few weeks may have some ups and downs but you should be feeling better soon. There is a lot to change at first, not just food so read as much as you can here.

lizard00 Enthusiast
lizard00
Posted

Welcome :)

I'm very glad you were able to get a diagnosis and can now begin to get better. The first few months were the hardest for me. I remember crying over pizza... :angry:

But, I cannot even tell you how much better I feel now than I did one year ago. Just stick to basic foods for a while, and feel free to ask any questions. We don't grossed out easily, don't worry. :lol:

LIS-Guy Rookie
LIS-Guy
Posted

Congratulations, cat!

It sounds so odd... congratulating someone for having Celiac... but I think everyone knows what I mean. It must be a HUGE relief to finally have an answer to what's been ailing you. I hope that your road to recovery is swift and that you find ever-improving health with your new diet.

LIS

Mom2Twins Rookie
Mom2Twins
Posted

Hi.. I just had a question because I had a similar endoscopy experience. I still haven't heard the results from the lab analysis yet (see my GP next week for that)... but the GI said he could tell that my villi were flat as well just by looking, and that my stomach was inflamed, and to start gluten free right away.

My question is - does anyone know how they can tell that just by looking? I thought the villi were microscopic. I had no sedation for the procedure, so the doctor talked to me immediately afterwards, but I will kind of in a state of shock from the involuntary vomiting I had just gone through! :blink:

Thanks!

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ang1e0251 Contributor
ang1e0251
Posted

I am so glad you had very clear cut test results. Many people have wishy washy results which leaves them doubting their dx or lack thereof. You'll feel better and better as time goes on. Ask any and all questions here as we have been through it or know someone who has. We will listen and be as helpfull as possible.

Welcome to the gluten free life!

mslee Apprentice
mslee
Posted
I started eating gluten free yesterday. Thank God for that. About 6 weeks ago my blood work showed positive for Celiac. My GP sent me to a GI and he did the genetic testing which showed I had both genes for Celiac. Finally I had my endo and colonoscopy yesterday. My GI said he sent biopsies off but he could tell just by looking that my Villi were flat. I am so thankful I have finally been diagnosed and can now feel better. I know this new journey will be difficult at times but at least I know I can feel good in the future.

Welcome! Believe me this is good news and you will feel better!

Hi.. I just had a question because I had a similar endoscopy experience. I still haven't heard the results from the lab analysis yet (see my GP next week for that)... but the GI said he could tell that my villi were flat as well just by looking, and that my stomach was inflamed, and to start gluten free right away.

My question is - does anyone know how they can tell that just by looking? I thought the villi were microscopic. I had no sedation for the procedure, so the doctor talked to me immediately afterwards, but I will kind of in a state of shock from the involuntary vomiting I had just gone through! :blink:

Thanks!

I saw pics of mine, looked very slick, smooth and shiny no little waves or fingers. From what I have seen by google searching "cross section of intestine" you can see what looks like fingers or a fuzzy wavy layer

MollyBeth Contributor
MollyBeth
Posted

Hey Cat!

I'm new to all this myself and I can tell you that joining this site has been one of the best hings I've done to help cope with the new lifestyle! Everyone here is more than happy to answer any question...No matter how gross or encourage you along the way as you start your new diet!

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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