Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having Sores That Show Up

Lauriann

By Lauriann
in Related Issues & Disorders

Recommended Posts

Lauriann Rookie
Lauriann
Posted

Hi..

First I want to apologize if my last topic insulted anyone, that was not my intention at all. Was diagnosed with Celiac and I feel that doctors leave you to figure it out all on your own. I was diagnosed and then told I didnt have and told I did have it. Then that was it, no explanation of symptoms or what to expect.

My concern is, I have been getting sores in my ears...I would say my skin has become very sensitve I think to shampoos and my conditioners..they scab up and take a long time to heal. Also, I know that getting canker sores in ones mouth is one of the symptoms... but I get ... I would call them cold sores of the nose. I get these once a month...they look awful I spoke to my doctor about it..he wrote it down and said nothing in response to this...

Does anyone else have any of these things going on..or something close to it and maybe some advise.

thanks...Lauri :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1grnthmb Newbie
1grnthmb
Posted

I have similar problems with shampoos. I have to check to make sure they are free of gluten contain products. Oats are very common in shampoos and conditioners and wheat is also often used. I get a burning itch and sores and scabs that burn even more when I wash my hair. I seem to get it to clear up but after a while it comes back. I have found that it is best (for me) to alternate shampoos. Using a medicated shampoo for dandruff and then a daily clearifyer. I also have found that I am allergic to other items in shampoos. Nettle is one that I have to avoid is it is very common also. Currently I am rotating Equate Cooling Dandruff Shampoo and Conditioner and Suave Daily Clarifying Shampoo. That seems to be working right now.

I really think I have the Dermatitis condition that goes along with gluten. But the doctors just call it eczema. You would think they would put it together. Especially since it does break out with contact to gluten. The worst areas I get it right now is the back of my years. Even with the shampoos I am using I still have to apply cortisone to that area frequently to sooth the burning. It is not so bad now as it was before I found these two shampoos that seem to work together.

I am curious. Do you have a real bad itch inside your ears also? It is driving me nuts and thedoctors can not find anything wrong there.

Mark

April in KC Apprentice
April in KC
Posted

lauri, wish i knew the answers...i get what seems to be eczema or dandruff in my ear folds...it's very scaly and drives me crazy. it seems to come and go.

I also get a dreaded nasal sore that shows up periodically. I've had it maybe three times all year. A little ointment helps it go away faster.

I don't know if it's Celiac related or perhaps some other autoimmune thing. I know nasal sores can go with Lupus, but I don't believe I have that.

Mouth sores are part of my typical symptoms of being glutened...I grew up with them and still get them mildly when I get glutened. The fact that I can get the ear eczema and nasal sores in the absence of other glutening symptoms makes me think they're not the result of being glutened.

Do check your diet and shampoos carefully, though.

I do well with a strong dandruff shampoo...I try to get a bit in my ears and then rinse it. I do use regular shampoo sometimes, but I have to use dandruff shampoo a few times a week for control.

frec Contributor
frec
Posted

I don't have those symptoms, but I have had acne for 40 years and I get big chin ulcers and have scarring. I also break out when exposed to the sun. I've noticed that my skin has improved over the six years since I was diagnosed, and especially since I finally tracked down my other food intolerance problems. Your liver processes toxins, and if you are celiac you get hit with toxins every time you get glutened. Your liver can get stressed. Your skin is also an organ that deals with toxins and it gets stressed as well. Perhaps you have other allergies? Or perhaps you were recently diagnosed and are still healing?

1grnthmb Newbie
1grnthmb
Posted

April,

Your symptoms sound just like mine. The mouth sores and nasal sores went away after I went gluten free and other then one time in the last fifteen years I have been free of them. As far as the eczema behind the ears I have never been able to get rid of it completely. I have had allergy tests and I am allergic to so much it makes it hard to find products that do not bother me. I have also found out that fabric softeners are really bad. My daughter also has reactions to it. Her doctor said that he sees about three cases a week that are rashes caused by fabric softeners. The only one that I have been able to use and not get a rash is manufactured by Lame Advertisement.

Mark

ang1e0251 Contributor
ang1e0251
Posted

I have been getting sores on my scalp for years. I assumed I was sensitive to shampoos , I guess I was, & I would switch around to different brands every bottle. The symptoms always came back. Finally I stopped using shampoo completely. I had fewer outbreaks but really had success when I went gluten-free a year ago. This week I had a new breakout. Surprise! Gluten reaction!

My routine is this, first I "wash" my hair with a light weight gluten-free conditioner, then rinse. I sprinkle my scalp with apple cider vinegar and let that soak while I perform other necesities, then rinse. Then I finsh with a heavier gluten-free conditioner ( I have very thick hair that will be a bird's nest w/out help!) and rinse after massaging apple cider vinegar on my skin, makes it soft.

Now I have had the itchy internal ear problem. After I dry my ear with a swab, I take another swab & put a bit of castor oil on it and swab again. No more bug in my ear sensation! My GH is prone to ear aches & infections when he referrees outdoors but since he started using oil in his ears, no more.

I hope something here is helpful to you. I don't have your exact problems but who knows?

Mtndog Collaborator
Mtndog
Posted

The only place I have had sores was the ear- they were maddening- itchy painful and horrid. They usually precipitated an ear infection. After going gluten-free three years ago, they went away completely over time.

I had a flare about two weeks ago (and it was after I had gotten glutened).

Hope you find some answers and relief!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Josh Parker Newbie
Josh Parker
Posted

I have those symptoms too. I am also allergic to MSG and dairy products. Avoid caramel colorings unless you know that they are made in the US. Pepsi products are gluten free according to a newsletter. Other cokes and deserts may contain wheat in their caramel coloring if the caramel coloring is made outside of the US. Caramel coloring is made from carbohydrates. Some companies make caramel coloring from beets. Do some research of the specific product before you consume.

Soy sauce contains wheat. Alcoholic beverages use yeast in the fermentation process. I don't go near them personally. Yeast comes from wheat and it is used to break down sugars during fermentation. Check to see if you are also allergic to milk or MSG. Many celiac patients are also allergic to those things and don't even know it. There are lactase pills over the counter which may help break down the lactose if you consume small amounts of dairy. I do and I am safe. A small Frosty here and there with a lactase pill is fine. A large Frosty three days a week would be a living hell. Normal stomachs produce lactase which aid in the breakdown of lactose, but my stomach does not produce the enzyme. The enzyme pills are only $10 for 30 days worth. You only need to take them if you consume dairy. Take them at the same time you consume the dairy product. You don't have to take them on a daily basis.

Josh Parker Newbie
Josh Parker
Posted
lauri, wish i knew the answers...i get what seems to be eczema or dandruff in my ear folds...it's very scaly and drives me crazy. it seems to come and go.

I also get a dreaded nasal sore that shows up periodically. I've had it maybe three times all year. A little ointment helps it go away faster.

I don't know if it's Celiac related or perhaps some other autoimmune thing. I know nasal sores can go with Lupus, but I don't believe I have that.

Mouth sores are part of my typical symptoms of being glutened...I grew up with them and still get them mildly when I get glutened. The fact that I can get the ear eczema and nasal sores in the absence of other glutening symptoms makes me think they're not the result of being glutened.

Do check your diet and shampoos carefully, though.

I do well with a strong dandruff shampoo...I try to get a bit in my ears and then rinse it. I do use regular shampoo sometimes, but I have to use dandruff shampoo a few times a week for control.

Check to see if the shampoos or soaps have wheat germ oil. That will cause skin problems for celiac folks like us.

  • 4 years later...
celiac-father Newbie
celiac-father
Posted

Sores or skin problems in the ears for individuals with Celiac Disease. I have Dermatitis Herpetiformis, I am Celiac and so are my two sons and my siblings. My elbows are scarred from years of being undiagnosed and although they get smooth and look close to normal everything is set back after accidently consuming gluten. Now for the interesting part, my ears and scalp are affected same as my elbows. You can't see the scalp issue under the hair but it is maddening. I too used dandruff shampoos to no avail, nothing worked until I was diagnosed about 5 years ago. However, like I said if I accidently consume gluten it is no holds barred itching and pain. If you continue to have issues with your ears or scalp it is a good bet that you are consuming gluten from something that you consider safe.

kareng Grand Master
kareng
Posted

Sores or skin problems in the ears for individuals with Celiac Disease. I have Dermatitis Herpetiformis, I am Celiac and so are my two sons and my siblings. My elbows are scarred from years of being undiagnosed and although they get smooth and look close to normal everything is set back after accidently consuming gluten. Now for the interesting part, my ears and scalp are affected same as my elbows. You can't see the scalp issue under the hair but it is maddening. I too used dandruff shampoos to no avail, nothing worked until I was diagnosed about 5 years ago. However, like I said if I accidently consume gluten it is no holds barred itching and pain. If you continue to have issues with your ears or scalp it is a good bet that you are consuming gluten from something that you consider safe.

Just an FYI - This thread is 4 years old. I don't thing any of those posters have been active on the board in several years.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,861
    • Most Online (within 30 mins)
      7,748
    Priscilla Buxton
    Newest Member
    Priscilla Buxton
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.