Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How I Know I Got Glutened...


mamaesq

Recommended Posts

mamaesq Rookie

My mom and I were diagnosed three weeks ago and have been gluten-free ever since. Tonight we went out to dinner. We talked to the chef who would be cooking our meal and she said that we should be ok with our meal (we got the same thing). She made sure to clean the grill before she cooked our meal. Well, a little while ago, I got major stomach cramps and ran to the bathroom and had diarrhea. On my way, I grabbed my cell phone, and when I got setted, I called my mom to warn her. Turns out, she was in the bathroom doing the exact same thing.

It was pretty funny, but we realized that even though we thought the meal was gluten-free (chicken over onions, peppers, and cheese), there must have been something in the seasoning that did us in. Now we know not to get that again!

How long does this last? This is the first time I have had anything with gluten since I went gluten-free. I feel pretty yucky, I am really cold and my stomach is in knots.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

Sorry to have to tell you this, but it lasts about a week and gets worse for the first few days. (At least with me.)

JNBunnie1 Community Regular
Sorry to have to tell you this, but it lasts about a week and gets worse for the first few days. (At least with me.)

It depends on the person. I'm sick for a month, some people for a day. You'll see hwat happens as things go on.

Jestgar Rising Star

I feel bad for a few hours

mysecretcurse Contributor

For me it lasts a month. But I get Dh, not D.

The initial stomach problems last 2-3 days. Then the DH continues to break out throughout the next month.

Sucks. It's why I basically live in constant fear. And I NEVER eat out. Not worth it. I can't even enjoy the meal because of the fear.

jsb727 Newbie

I have a hard time because I don't have any symptoms to alert me if I've eaten gluten. The only potential symptom I have is bone hypersensitivity, but it hasn't gotten better since starting the gluten-free diet. I sort of wish I had some immediate symptoms. :unsure:

JNBunnie1 Community Regular
I have a hard time because I don't have any symptoms to alert me if I've eaten gluten. The only potential symptom I have is bone hypersensitivity, but it hasn't gotten better since starting the gluten-free diet. I sort of wish I had some immediate symptoms. :unsure:

You haven't been gluten free that long. You may find that the longer you are gluten-free, the more you react on the occasion you do get glutened. It happens that way for a lot of people.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaesq Rookie

My digestive issues seem to have improved, fortunately, but oh, the headache I now have...

Restaurants make me nervous, although this has been a good thing for my bank account...I've saved a lot of lunch money so far this month! :lol:

luvthelake21 Rookie

To me just cleaning the grill wont work. We will have a cheif prepare our meal in a cleaned stainless still skillet. I just imagine them cooking buns or bread on a grill. During cookouts I will take alum. foil to put down on the grill to cook my meat on and make foil packs with veggies in them. I also can get resturants to grill my food on alum. foil. :)

mamaesq Rookie
To me just cleaning the grill wont work. We will have a cheif prepare our meal in a cleaned stainless still skillet. I just imagine them cooking buns or bread on a grill. During cookouts I will take alum. foil to put down on the grill to cook my meat on and make foil packs with veggies in them. I also can get resturants to grill my food on alum. foil. :)

With this particular restaurant I feel ok, my brother and sister both work there. That night my brother requested one specific cook make our dinners and then he went back and watched. After I got sick, I went online and looked at the allergy information and think that it was something in the mushroom and onion combo because the steak topper has wheat in it, and I'm wondering if they used the same stuff.

It's definitely a learning process...I'm feeling much better, the diarrhea is gone, my headache isn't as bad as it was, but I am developing two canker sores. :angry:

And I'm going out to dinner again tonight, this time with my in laws (who don't yet know about my celiac, aren't they in for a treat when we order...), and I really don't trust this place. I suspect I won't be eating much.

gadgetgirl Newbie
but I am developing two canker sores. :angry:

Canker sores are my latest sign that I've gotten glutened, too. I have a one on the roof of my mouth because I ate some Twizzlers licorice that the secretary had in her candy dish on Friday. :(

I also noticed a major change in my temperament that same evening. I flew into a rage over something that I shouldn't have. I used to have a really short-temper before I discovered I was gluten intolerant. I've been pleased that I'm so much more even-keeled since giving it up.

Other than the canker sore, I was pretty much back to normal in 24 hours. The canker sores always take 7 days to heal.

SunnyDyRain Enthusiast

Sometimes my symtoms range from canker sores to D to feeling like I have the flu. Depends on how bad i get it. Last night went to applebees and they sprinkled bread crumbs on my meal (WTF!) so all i could eat was the steak, i didn't see any crumbs on it, but alas today I have a canker sore.

One Time I ordered a dip with veggies that was usally served in bread bowl, and i guess they put flour or something itte dip it'sself... I was sick for 4 days.

wilem008 Contributor

My symptoms generally last a few days. Initially I will have a few hours of stomach aches/cramps followed by two-three days of headaches, irritability and depression. I'll also have constipation for a week.

Does anyone else find this? My biggest symptom (aside from stomach aches and constipation) is depression.

I know if ive been glutened becuase the next day I feel totally down and sad...for no explainable reason!

Its awful. I do my best to stick to my diet. Luckily there are quite a few resturants and cafes in my town that cater for a gluten-free diet. Im a big fan of Thai and Indian restaurants! :-)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.