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A Sibling With A Neg.

mmmSmores

By mmmSmores
in Coping with Celiac Disease

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mmmSmores Apprentice
mmmSmores
Posted

I was diagnosed in mid-october this year. My brother was just tested (blood test) and his results were negative. does anyone know if this is common? for one to have it and the other to not have it? Also, can anyone tell me, should I consider being re-tested?

I had a biopsy for something totally different, and they said the results indicated that I should be tested for Celiac disease. I had a blood test which came back positive.

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Lisa Mentor
Lisa
Posted
I was diagnosed in mid-october this year. My brother was just tested (blood test) and his results were negative. does anyone know if this is common? for one to have it and the other to not have it? Also, can anyone tell me, should I consider being re-tested?

I had a biopsy for something totally different, and they said the results indicated that I should be tested for Celiac disease. I had a blood test which came back positive.

The latest stats I have indicates 1 of 22 first-degree relative tested positive for Celiac Disease.

The Celiac gene may be inherited making you predisposed to the illness. Although, there is no guarantee that you will develop Celiac.

jerseyangel Proficient
jerseyangel
Posted

I have 2 sisters, one has not been tested and the other came up negative. Unfortunately, the one who won't be tested is the one I suspect might be affected.

If both your biopsy and blood test came up positive, I see no reason for you to doubt your diagnosis. :)

kbtoyssni Contributor
kbtoyssni
Posted

My brother tested negative. He either doesn't have celiac or he doesn't have it yet. I'm sure he will get tested again if he ever starts feeling sick in any way. It's something for him to be aware of for the future.

lmvrbaby Newbie
lmvrbaby
Posted

Hi, I just thought I'd share that I had a biopsy for something unrelated and was told I was positive for Celiac and was followed up with a blood test. I have four boys, three of which have been tested and only one has been confirmed Celiac and he is also a juvenile diabetic. My fourth son was having stomache issues and we went to have him tested with a blood test and somehow the hospital lab didn't do that test, said it was unnecessary, how can they say that when the doctor orders it. I spoke my mind to the doctor's office and they are willing to redo this test at no charge, but why should my son go through having blood taken when it was not his fault? I have been thinking about changing his doctor, he has had this one since birth and the doc knows him well. it probably was Not sure what to do now. His stomache issues only lasted a couple of days and was probably only a virus. Well, I guess I voiced myself. Sorry for going off track. So I believe it can be possible for only sibling to have Celiac and not another.

SGWhiskers Collaborator
SGWhiskers
Posted

I don't remember where I read the article. It was a link from someone's post here. It had a lot of genetic information. One of the recommendations was that family members who test negative, can have their genes tested. If they test positive for the celiac genes, then they should have their blood retested every 3-5 years in order to catch the disease early. I'm glad your brother was negative. Mine got his testing done last week. I hope it comes back negative. (Then again, if it is positive, there would be an explaination for his tummy troubles).

Hope the diet is going smoothly for you.

SG Whiskers

luvs2eat Collaborator
luvs2eat
Posted

I was the first to be diagnosed in my family (at age 48). I seriously recommended my sister (who has suffered her whole life w/ allergies and eczema and asthma) and brother to be tested... I really thought my sister would come up positive. Neither she nor my bro did.

One of my 3 daughter had symptoms, was tested, and is now gluten-free. The other 2 won't get tested cause they have no symptoms and don't want to give up wheat, etc.

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Lauren-SAME Newbie
Lauren-SAME
Posted
"I was diagnosed in mid-october this year. My brother was just tested (blood test) and his results were negative. does anyone know if this is common? for one to have it and the other to not have it? Also, can anyone tell me, should I consider being re-tested?

I had a biopsy for something totally different, and they said the results indicated that I should be tested for Celiac disease. I had a blood test which came back positive."

About 5 days ago, I had a blood test and it showed positive. The doctor said that nothing else would trigger the blood test unless it was Celiac. And yesterday, I was diagnosed with Celiac.

I think most likely, it's accurate, but if you're having doubts, then you should be retested.

I was doing research, because I'm knew to the whole Celiac thing, it's not healthy to switch from a non-gluten diet to a gluten diet, not to mention, one site said that you can gain weight easily. So if you're going to switch, just make sure you know your stuff.

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      how much gluten do I need to eat before blood tests?

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