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I Feel Sick. It's Been 7 Days.

mr. moore

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mr. moore Explorer
mr. moore
Posted

i feel so damn crummy right now. 7 days since i've had my favorite comfort food. My bones hurt and i feel like i have a cold. worst is i told a friend that i went three days without gluten, had a cracker and that my stomach hurt and i fell asleep. he was like "well dude thats what happens when you don't have any food in that group for days". i hope this all isn't in my head! i, thinking of quitting. but im gonna see a GI doctor. you woulnd't believe the BS, i have to just TALK to him the first time, so he knows my symptoms, even though all i want is the straight up lab work. im paying the guy to tell him what i already know and i don't like that seeing as how i owe so many doctors money in the first place. should i go and still do it? even though my family probably thinks its all a waste.

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ShayFL Enthusiast
ShayFL
Posted

Going gluten-free "before" labs can get you a false negative. If you want proper Celiac testing you MUST eat gluten beforehand for a good few months to hope for more accurate testing.

It is VERY COMMON to feel like crap for a few weeks while you are "detoxing" from gluten. Yes, it is a toxin. And it is addictive as well. It fits nicely into our opiate receptor sites in our brains. That is why it is "comfort" food. It is a drug.

So ride it out, the yucky feelings will pass. It took me a good 6 weeks before I actually started feeling BETTER than I had in MANY years. Some feel better sooner. Hold on!!

OR eat gluten for awhile and get tested.

mr. moore Explorer
mr. moore
Posted
  • Author
Going gluten-free "before" labs can get you a false negative. If you want proper Celiac testing you MUST eat gluten beforehand for a good few months to hope for more accurate testing.

It is VERY COMMON to feel like crap for a few weeks while you are "detoxing" from gluten. Yes, it is a toxin. And it is addictive as well. It fits nicely into our opiate receptor sites in our brains. That is why it is "comfort" food. It is a drug.

So ride it out, the yucky feelings will pass. It took me a good 6 weeks before I actually started feeling BETTER than I had in MANY years. Some feel better sooner. Hold on!!

OR eat gluten for awhile and get tested.

holy cow that was fast! haha. i don't know if there's any way you can get me on that stuff after i accidently ingested some, but i will prolly slip up come xmas, though i'll try my aunts are cooking and they're just pro, so ill tell them about my special needs. hopefully they'll understand. im gonna keep going gluten free, because im sure my intestines or villi or whatever are still messed up. im sure of that.

mr. moore Explorer
mr. moore
Posted
  • Author

ok i feel like i have the flu and have no energy. is this a good sign?

Anna and Marie Newbie
Anna and Marie
Posted
ok i feel like i have the flu and have no energy. is this a good sign?

It is when your detoxing, I've been like this for six months but it'll get better. I had to stop running for awhile because I was so drained. it hurt to walk up three steps, let alone run a couple miles. I'd advise you to keep going or you'll just have to go through it all again. That would be incredibly painful :D

~Anna

ang1e0251 Contributor
ang1e0251
Posted

This is what you feel like when you get glutened. If you eat more gluten at Christmas, you'll start the detox all over again. Write down what you're eating and how you feel when you eat it as well as later symptoms, then show it to your gastro when you go. It could help him to see the cause and effect of what you're trying to explain to him.

mr. moore Explorer
mr. moore
Posted
  • Author
This is what you feel like when you get glutened. If you eat more gluten at Christmas, you'll start the detox all over again. Write down what you're eating and how you feel when you eat it as well as later symptoms, then show it to your gastro when you go. It could help him to see the cause and effect of what you're trying to explain to him.

well ive been a good week in it. so if i screw up once it's like im screwed?

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DingoGirl Enthusiast
DingoGirl
Posted

You know, you actually might have the flu or some sickness.... 'tis the season... :)

CeliacAlli Apprentice
CeliacAlli
Posted
You know, you actually might have the flu or some sickness.... 'tis the season... :)

Uh..yeah. It may not be the detoxing at all =(.

It is normal to feel that way though........

mr. moore Explorer
mr. moore
Posted
  • Author
You know, you actually might have the flu or some sickness.... 'tis the season... :)

yeah i guess. this is also the season where i've gone full blown hypochondriac! im not even gonna mention the things i thought i had before i got to this website! im gonna try not having anything with aspartame, the stuff in sugar free stuff, and see ho it goes. because from what i've observed on this site, people with bad probles usually are addicted to what's ailing them. and i get cravings for certain chewing gums, in fact i've always chewed sugar free since i got my fillings (6 in all, gotta catch em all!) but i guess nothing is safe! especially after reading the wikipedia on it.

ang1e0251 Contributor
ang1e0251
Posted

All those sugar subs make me sick and give me tremors.

MNBeth Explorer
MNBeth
Posted
well ive been a good week in it. so if i screw up once it's like im screwed?

Hate to say it, but, yeah, pretty much. You really need to do this all the way and very carefully to get an accurate read on whether it makes a difference.

princessnoel Newbie
princessnoel
Posted
i feel so damn crummy right now. 7 days since i've had my favorite comfort food. My bones hurt and i feel like i have a cold. worst is i told a friend that i went three days without gluten, had a cracker and that my stomach hurt and i fell asleep. he was like "well dude thats what happens when you don't have any food in that group for days". i hope this all isn't in my head! i, thinking of quitting. but im gonna see a GI doctor. you woulnd't believe the BS, i have to just TALK to him the first time, so he knows my symptoms, even though all i want is the straight up lab work. im paying the guy to tell him what i already know and i don't like that seeing as how i owe so many doctors money in the first place. should i go and still do it? even though my family probably thinks its all a waste.

My advice is to get this test done: Open Original Shared Link

order the Gluten-sensitivity test for $99. the test comes to you in the mail and you send it back in the mail. the results are emailed to you and you never have to leave your house. the best part is you DON'T have to be on a gluten diet to do it. I did it after 2 months of being off gluten and it came back 99 points positive. Then, after you get this test done (which is more accurate than blood test) you can still go to a GI if you want to. But I've had no need to. I just don't eat gluten and i'm fine. This way i know it's not just in my head.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

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      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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