Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Information To Read......

Gemini

By Gemini
in Publications & Publicity

Recommended Posts

Gemini Experienced
Gemini
Posted

I was looking through the gluten free drug list over Christmas as I was in need of some medication for a cold and noticed that Synthroid had a notation after it saying that all strengths of the drug could no longer be guaranteed as being gluten-free. Not sure why but thought it important to point out to all those taking it. I use Levoxyl myself, which is the generic from of Synthroid, and that is still listed as gluten-free.

Personally, I refused Synthroid in the beginning because it is still overpriced and expensive. I have zero problems with Levoxyl and it works beautifully for me.

The second important note I would like to make is if you can get your hands on a copy of the magazine "Gluten Free Living" this month (it is not a monthly mag), there are 2 excellent articles in it that all Celiacs, especially newbies, should read. One is all about Rx meds and their ingredients and the title is Puzzled by Prescriptions? Why your drugs are probably gluten-free It lists the common inert ingredients used and what to look for as far as what may contain gluten......very helpful article.

The second article is titled May Contain Labels Muddled and Misunderstood You guessed it....all about labeling practices and what the manufacturers mean when they list the "may contain" statement.

Thee is also a story on an Outback Restaurant in Roswell, Georgia that is going way beyond the limit with their gluten-free menu. They have the Bloomin' Onion thing on their gluten-free menu! The assistant manager of the place was talking to a customer there who had requested the gluten-free menu

and the manager ended up in tears because, when the customer described symptoms of celiac disease, the manager realized they fit the symptoms of some health issues she was having. Turns out, she had celiac disease also. Now she is cooking up more and more menu items that celiacs can eat!

They hope to make some available throughout the Outback chain!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

Gemini, thanks for the info. I love this magazine, but do not have this month's.

Which gluten free drug list do you use? Is it on the internet or was it something you bought?

Gemini Experienced
Gemini
Posted
  • Author
Gemini, thanks for the info. I love this magazine, but do not have this month's.

Which gluten free drug list do you use? Is it on the internet or was it something you bought?

Hi Jenny!

The gluten-free drug list is available at: www.glutenfreedrugs.com It's a very comprehensive listing and has saved my butt on a number of occasions when I could not get in touch with a manufacturer. I was surprised that Synthroid cannot guarantee gluten-free status because of the number of people with thyroid disease that was caused by undiagnosed celiac disease......very weird. However, going through the listing you will see how many meds are gluten-free and they are commonly used products also. The one other word of warning are to those with Sjogren's Syndrome, like myself. The vast majority of these I cannot use because pharmaceuticals are notorious for drying out mucous membranes. I have a horrible time with that. I have found that using herbal remedies work just as well without the side effect of making my already dry mouth 100 times worse. I just thought that for those who can tolerate OTC meds, this listing will be of great help. Sorry about not linking directly to the website.....I seem to be having difficulty with that today.

I also like this magazine.....it's better than Livng Without because it deals only with gluten free. They have good recipes and their articles seem to be spot on with correct information that newbies really need to read. It's essential that people learn the correct information about celiac disease, cross contamination and the use of topical products as it relates to the disease. It just makes living this lifestyle so much easier. It's a quarterly magazine and I like that......don't want magazines piling up every month!

  • 2 weeks later...
minton Contributor
minton
Posted

OUTBACK in Roswell is my new favorite restaraunt!!!! I live near there!!!! Thank goodness!

wowzer Community Regular
wowzer
Posted
I was looking through the gluten free drug list over Christmas as I was in need of some medication for a cold and noticed that Synthroid had a notation after it saying that all strengths of the drug could no longer be guaranteed as being gluten-free. Not sure why but thought it important to point out to all those taking it. I use Levoxyl myself, which is the generic from of Synthroid, and that is still listed as gluten-free.

Personally, I refused Synthroid in the beginning because it is still overpriced and expensive. I have zero problems with Levoxyl and it works beautifully for me.

The second important note I would like to make is if you can get your hands on a copy of the magazine "Gluten Free Living" this month (it is not a monthly mag), there are 2 excellent articles in it that all Celiacs, especially newbies, should read. One is all about Rx meds and their ingredients and the title is Puzzled by Prescriptions? Why your drugs are probably gluten-free It lists the common inert ingredients used and what to look for as far as what may contain gluten......very helpful article.

The second article is titled May Contain Labels Muddled and Misunderstood You guessed it....all about labeling practices and what the manufacturers mean when they list the "may contain" statement.

Thee is also a story on an Outback Restaurant in Roswell, Georgia that is going way beyond the limit with their gluten-free menu. They have the Bloomin' Onion thing on their gluten-free menu! The assistant manager of the place was talking to a customer there who had requested the gluten-free menu

and the manager ended up in tears because, when the customer described symptoms of celiac disease, the manager realized they fit the symptoms of some health issues she was having. Turns out, she had celiac disease also. Now she is cooking up more and more menu items that celiacs can eat!

They hope to make some available throughout the Outback chain!

wowzer Community Regular
wowzer
Posted

Thanks for bringing up the information on the Synthroid. I am trying to figure out where I am getting gluten and wondering if the Synthroid it the problem. I did try to e-mail Abbott, but they said they could share my information with the world, etc. so didn't send the e-mail. I will have my pharmacist check tomorrow. Does anybody know what strengths contain gluten or if any are safe?

fig girl Rookie
fig girl
Posted

I was looking through the gluten free drug list over Christmas as I was in need of some medication for a cold and noticed that Synthroid had a notation after it saying that all strengths of the drug could no longer be guaranteed as being gluten-free. Not sure why but thought it important to point out to all those taking it. I use Levoxyl myself, which is the generic from of Synthroid, and that is still listed as gluten-free.

Personally, I refused Synthroid in the beginning because it is still overpriced and expensive. I have zero problems with Levoxyl and it works beautifully for me.

The second important note I would like to make is if you can get your hands on a copy of the magazine "Gluten Free Living" this month (it is not a monthly mag), there are 2 excellent articles in it that all Celiacs, especially newbies, should read. One is all about Rx meds and their ingredients and the title is Puzzled by Prescriptions? Why your drugs are probably gluten-free It lists the common inert ingredients used and what to look for as far as what may contain gluten......very helpful article.

The second article is titled May Contain Labels Muddled and Misunderstood You guessed it....all about labeling practices and what the manufacturers mean when they list the "may contain" statement.

Thee is also a story on an Outback Restaurant in Roswell, Georgia that is going way beyond the limit with their gluten-free menu. They have the Bloomin' Onion thing on their gluten-free menu! The assistant manager of the place was talking to a customer there who had requested the gluten-free menu

and the manager ended up in tears because, when the customer described symptoms of celiac disease, the manager realized they fit the symptoms of some health issues she was having. Turns out, she had celiac disease also. Now she is cooking up more and more menu items that celiacs can eat!

They hope to make some available throughout the Outback chain!

Great info! Thanks for mentioning the Outback in Roswell, GA too. I just asked my husband which Outback we had eaten at not too long ago when we were in Atlanta and it was the one in Roswell. We were in the area shopping at Trader Joe's and saw the Outback and i knew they had a gluten-free menu so we stopped in for dinner. I was very, very impressed and was so surprised to see all of the items on their menu that was gluten free! My sister lives near there and we will definitely go back! I felt so comfortable eating there. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748
    Jeanette K.
    Newest Member
    Jeanette K.
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.