Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scd Support Group


Guest gfinnebraska

Recommended Posts

jenvan Collaborator

Let me know if this has already been done in this thread (I can't remember!)... But could each of you ladies jot down a quick menu of what you eat for a day--to get some ideas? Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 262
  • Created
  • Last Reply
Connielynn38 Newbie

Hi, I would like to join this thread. I have the book and have been trying to follow the SCD diet off and on a little while. I have to go back to my doctor to see if I have celiac disease. I had bloodwork. But I don't care what the bloodwork says when I go back, I can't eat grain products and stuff like that. I kind of quit eating them a while before the blood test. I did not think my doctor would test me. Well she changed her mind. I tried to eat all I could before being tested, got really sick. I still think where I was not eating it, it might of messed up my test results? So I am not sure if they will be positive.

I get the most awful problems when I eat rice. I literally have to run to the bathroom!!!!! And even potatoes give me problems now. So this has kind of convinced me to try it. Also dairy has bothered me for years, so I have not eaten it!!!!

I have made the yogurt a couple times with a heating pad, wow, it takes a long time!!!!! Got those instructions off the site. Does any one else make it this way? My 17 year old daughter got worried about me leaving a heating pad on 24 hours!!!! Esp. while we were sleeping.

The yogurt makers are pretty expensive. But if I am sure I can tolerate the yogurt, I will have to eat more to be sure, I would like to buy one. I am still having stomach problems. I have not tried the SCD diet 100%, I need to!!!! I am 39 and my weight keeps going down and I keep getting weaker from these stomach problems. I weigh about 118 now. I have FMS and some other things as well.

I have had to get some tests, bloodwork, xrays, etc.. lately. Still under doctors care(specialists, etc...), sigh. I get some of my test results tomorrow. Some next week. I get a DXA sp? scan in Dec. Doctor thinks I have malasorption sp? I have to start on some vitamins, etc.. I don't do well on vitamins, etc.... tried so many.

But I can tell when I eat certain things I do get sicker with stomach problems. So I think I have to heal my stomach for anything to get better. I posted a couple times a while back in the other threads, everyone was so nice.

I have not been able to post a little while. Had some surgery. I am hoping things get better.

Sorry this is so long. I would love to be able to eat and not worry what I was eating was not going to make me sick!!!! I do have to avoid MSG due to it causing migraines too. Gosh it is hard some days. I am dealing with other sick family members too, different issues.

Thanks!!!!!!

Smunkeemom Enthusiast

It looks like I am really late coming on to this thred, I joined the yahoo group for the SCD but it wasn't helpful at all.

My husband is going on the SCD for his crohn's disease, and we thought it would be easier to switch the whole family (since half of us are gluten-free anyway) can someone email me some recipes. I am terrified that I won't be able to find anything to cook for us to eat.

smunkeemom@yahoo.com

Misa Rookie

Hi Smunkeemom

This link should keep you all busy in the kitchen ;) .........

Open Original Shared Link

Misa :D

Misa Rookie

Hi Connielynn38

Having problems with what one would assume is innocent rice, is what led me to try the SCD. I knew something was wrong when I couldn't even have plain rice without feeling bloated and gassy! Now I can eat potatoes and rice about twice a week with no problems whatsoever :D The rest of the time I stick to SCD guidlines (don't wanto push my good luck). Hope you manage to try the diet 100% out and hopefully you too can later enjoy these foods again....

Hi Jen

Yep, the same question was posted by LisaR on page 12 with answers on page 12 and 13 ;)

Misa :D

shimma Apprentice

A new (and unpleasant) development!

Lately in the evenings I've been having excruciating pain right before having to go the bathroom. I'm talking about side-ripping, unbearable scream-out-loud pain. It's weird because my BMs are pretty normal and formed. I don't know what's wrong - if this keeps up, should I go see my GI? Does anyone else have this symptom?

Thanks....

Smunkeemom Enthusiast
Hi Smunkeemom

This link should keep you all busy in the kitchen  ;) .........

Open Original Shared Link

Misa :D

<{POST_SNAPBACK}>

Thank God for you !!!!! :D you have officially removed stress from my life :D I can already feel my headache going away :D Thank you thank you thank you infinity :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Thanks Misa...I couldn't remember and knew it would be a while before I had time to look through the thread :)

Matilda Enthusiast

..

cornbread Explorer

Since I had to add casein to my 'can't eat' list 2 months ago, and discovered a nice new soy sensitivity last week :blink: I'm thinking I really don't want this to go any further... I can see that it'll be eggs next, then who knows... I won't have much left to eat. I also avoid corn and rice because they bloat me and just make me feel sluggish. Do you think the SCD would enable me to reintroduce these foods and stop the risk of reacting with any more foods?

I also read somewhere tonight that extra additional food sensitivities coming along one by one is a sign of a leaky gut. What's the SCD take on this theory?

Thanks! :)

Oh btw - there seems to be a lot of dairy on the SCD, and since I can't eat casein, what's the alternative on the SCD?

dperk Rookie

One by one, I developed food sensitivies, too. Gluten, casein, soy, rice, eggs, peanuts, etc. Even tomatoes and avacados. I looked at leaky gut and found some interesting things there. It seems likely that's what was happening. I started the SCD diet having lost a lot of weight. But it was the only diet that had foods I could eat still. It made sense. At first I couldn't eat any raw fruit at all. After about 3 months now, I'm able to add some foods back into my diet - like bananas and quinoa (yes, I know it's not on the legal SCD list, but I'm doing ok with it). I can't do the yogurt yet (tried that and was sick for days). I'm hoping that as time goes by I will be able to add some of the proteins back - if my body decides that they aren't something to attack. It's been very hard. I look at the people that just have to remove gluten from their diet - and I think their lucky - I just wish I could go there. The SCD diet just made sense for me - but it's not easy. I eat a lot of almonds - almond milk, soaked peeled almonds for snack, almond bread, etc. Thank god I can still eat them. I'm doing better, and have gained 5 pounds (finely). I eat all day long. Lots of salads, appleasauce, meat and veggies. Very simple foods. I'm just glad I found the SCD diet - I feel like I'm not alone - I have all of you. When I get really down about all of this, I look on this website - and I don't feel so all alone. Thanks, everyone.

julie5914 Contributor

A coupla questions - has anyone tried making the yogurt using the oven light method? They mean leave the oven temp off and just leave the light on with the yogurt in there for 24 hours right?

Second one - which wines are dry? Merlot is, right? Wine, cheese, fruit and nuts sounds like enough to sustain me everyday for a week :) Yum. I'm sure it will get old, but my goal is to add starches in one by one after a month or so to try and determine what's ok by my tummy.

Connielynn38 Newbie
A coupla questions - has anyone tried making the yogurt using the oven light method? They mean leave the oven temp off and just leave the light on with the yogurt in there for 24 hours right?

Second one - which wines are dry? Merlot is, right? Wine, cheese, fruit and nuts sounds like enough to sustain me everyday for a week :) Yum. I'm sure it will get old, but my goal is to add starches in one by one after a month or so to try and determine what's ok by my tummy.

<{POST_SNAPBACK}>

Hi, yes that is what I think they mean. You would still have to check the temperature and maybe crack open the oven door. I would try the oven method. But I have no oven light. I have a cheap stove. I am thinking of buying a yogurt maker they have listed on their site. I can see if I can find that link for you about that. I will go and look. I do have it somewhere.

I don't know much about the wines.

I have not been able to do the SCD diet 100%. I have found that the honey gives me terrible problems. But I am sure it will not do that to everyone.

Connielynn38 Newbie
Hi, yes that is what I think they mean. You would still have to check the temperature and maybe crack open the oven door. I would try the oven method. But I have no oven light. I have a cheap stove. I am thinking of buying a yogurt maker they have listed on their site. I can see if I can find that link for you about that. I will go and look. I do have it somewhere.

I don't know much about the wines.

I have not been able to do the SCD diet 100%. I have found that the honey gives me terrible problems. But I am sure it will not do that to everyone.

<{POST_SNAPBACK}>

Can't find a link on this. Do you have the book? In the book, it says to replace your oven light with a 60 watt bulb. Always check the temperature with a thermometer first. You may have to prop the oven door open with a little stick. Caution upon completion:replace with regular oven bulb.

Of course those with a gas stove can depend usually on the pilot to usually keep the oven within the correct range.

Hope this helps.

PreOptMegs Explorer

If you can afford it, I would say it is so much easier to use a yogurt maker. I think mine was 50 dollars shipped and I use it all of the time, so it is definately worth the money.

shimma Apprentice

How's everyone doing? This thread has been pretty quiet the last few weeks. Any updates on how you're doing on the diet?

Here's my update. I've been feeling really good the last few weeks. My only problem was with some chili I made a couple days ago - for some reason it was passing straight through me. I think it's because of the tomatoes though - I've long suspected that I don't tolerate them well. Same with oranges - too acidic I think. Luckily with this diet it's easier to identify problem foods.

But I've been able to eat almond butter which I couldn't before. I made a yummy pizza crust out of almond butter and eggs - super easy and just two ingredients - the best meal I've had in a long time! I'm happy too that it's getting colder because it's great soup weather. Ditto on the winter squashes - such a great side dish to supplement the meat and veggies. I think I could live off of butternut squash soup.

PreOptMegs Explorer

I haven't ordered any bulk almond flour. Is that what you used or did you buy smaller bags and crush them yourself. I haven't had pizza since being diagnosed (7 months) and I am dying for it!!!!!!!!!!!!!

Guest gfinnebraska

I am doing okay ~ I went off the SCD for a couple of weeks... and now need to get back on and be good!! :) I don't like how I feel when I add carbs to my diet from bread, etc. I feel much better sticking to the SCD. *sigh*

So, that is why I haven't written any "updates" ~ I've been naughty!!! I will let you know how I am doing once I clean out again. Started on Monday... feel better already! :) I guess, in reality, my body just does not like carbs from bread/pasta/muffins/crackers/cookies/donuts/etc. I could go on and on! I need to stick to meat, fruit, veggies and almond flour items.

shimma Apprentice

Preoptmegs - For the pizza - I used almond butter instead of flour. I get it from Trader Joes. It's pretty pricey, but it works well. I haven't really tried almond flour for baking yet. I haven't had a lot of time to do cooking and baking lately - maybe in another week after my big exam. There are so many things I want to try when I have the time again!

Kimberly - I've been cheating a little too - a small amount of dark chocolate sometimes at night. It doesn't seem to bother me too much. I'm wondering if this diet is working because of cutting out the starches - but maybe sugar is ok for me? I think in another few weeks I'll try reintroducing more sugar and see how it goes.

christa Contributor

I think it'a GREAT IDEA I just cheched out the website and I want to try it.

PreOptMegs Explorer

Good!

Misa Rookie

Hi all!

I'm doing really well. I still follow the main SCD outlines, but have the occasional starches such as rice and gluten-free bread. What really allows me to eat starches without problems is the amount. Previously I'd eat large portions of anything really, including starches. Now I've reduced every meal and have 4 small ones instead of 3 large ones. This seems to make my digestive system very calm and content :D

Hope you guys are well too.....

Misa

PreOptMegs Explorer

Have a happy turkey day everyone and good luck sticking to SCD!

Guest gfinnebraska

You too!! :D

cornbread Explorer

Hi all,

I just bought and read Breaking The Viscious Cycle. The book strikes a presumption that one has chronic diarrhea! :blink: I (thankfully) do not. I bought the book because I suspect a leaky gut and thought the diet would help, but now I think it might be overkill for my situation. Has anyone undertaken the SCD without diarrhea? In fact, to be honest, my problems are at the other end of the spectrum - would the SCD help with that?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

    2. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    3. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.