Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Work For Vitamin/mineral Deficiencies


Roda

Recommended Posts

Roda Rising Star

I was wondering if it would still be beneficial to have blood work run to check for vitamin/mineral deficiencies? I have had chronic low ferritin levels for about 1 1/2 years (has never been above 6) that lead me to get tested for celiac. I had a positive IgA tTg in Sept. 08 with a positive biopsy in Oct. 08. I went gluten free Oct. 30th. I never had any other blood work for vitamin/mineral before going gluten free. I thought my endocrinologist ran some in Dec. 08 but all she checked was vit. b12 and it was in normal range. Should I still get others checked and if so what ones? I do bruise easily and was wondering if that could be related to something. I am also curious about what I should do for the low ferritin. The only meds/supplements I take is levothyroxine, cytomel, and probiotics. I did note something interesting on my chemistry profile though. My calcium has gone back up into the normal range. Before it was always low. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Sure, why not? What were your B12 levels?

I ask because mine were at 228 and my doctor told me they were fine, she even prescribed medication that would have stopped all absorption of the B12. :o She is not my doctor anymore.

I was not fine, I was critically low in B12 but the test in front of her said that normal was anything above 178, NOT normal should be around 500.

Welcome. :)

rubyred Apprentice

I think it would be beneficial to get full bloodwork done. Just to check your levels, even if you are already gluten free. It's also good to get a baseline count, so then you can compare future bloodwork to your baseline to see if you are where you need to be (in regards to the diet).

Rinne - are the blood tests for B12 standardized? I got bloodwork done, which included B12 and my level was 582, but the range says 200-900. So, this should be well within normal rates, right? I got this done about 5 months into being gluten free.

rinne Apprentice

Hi, the range on the tests up here (Canada) said something like between 180 and 880 so very close to your figures, I think 582 sounds great!

Roda Rising Star

vit b12 was 315 ref range 180-914. I see the gi doctor the end of this month. After my diagnosis over the phone all I was told by him was to see him after 3 months on the gluten free diet. Now I am wondering if I should have had more things done before. Heck, I figured out it was celiac I shouldn't have to think of everything! Anybody have a bone mineral density test done? Should I have one? Is there any link with very low total cholesterol and triglicerides? I had those checked appx 4 years ago and had a doctor tell me she never seen a patient with as low triglicerides as mine before. I don't have the exact results but I am going to get them next week out of my medical record.

Mother of Jibril Enthusiast

The low cholesterol and triglycerides were probably from malabsorption of fats. I bet your numbers are climbing back to an appropriate level now. Interesting and easy to check. A lot of people (even doctors) are so worried about high cholesterol that they forget it's dangerous to have really low HDL cholesterol! It's recommended to have a level of 50 or higher.

I'm wrestling with the same question (about checking vitamins and minerals) especially since I couldn't get an official diagnosis. I think the big question is... how are you feeling? You could have some deficiencies that don't resolve on a gluten-free diet (like B-12 if you've developed pernicious anemia), but the rest should be returning to normal levels. If you're worried about certain symptoms you could always google the different vitamins and minerals and see what symptoms are expected when you have a deficiency.

Jestgar Rising Star
A lot of people (even doctors) are so worried about high cholesterol that they forget it's dangerous to have really low HDL cholesterol! It's recommended to have a level of 50 or higher.

I actually tried to look this up one time and couldn't find any reference for HDL being too low, when in conjunction with overall low total cholesterol. Do you have a reference for this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Hmmm... good question.

The American Heart Association and Mayo Clinic both mention low HDL as a risk factor for heart disease and stroke.

Open Original Shared Link

Open Original Shared Link

But... this seems to be based on HDL as a protective factor against high triglycerides and LDL. Looking at the issue of cholesterol from a different perspective, here's a recent abstract from the NIH database about low HDL and memory loss.

Open Original Shared Link

Jestgar Rising Star

Open Original Shared Link

Interesting article. Curiously, their memory did not improve, even if the HDL went up, but their memory DID improve when the triglycerides went down (Table 4) and those with high total cholesterol had a better memory than those with low.

I'd be interested to see the ratios of HDL to triglycerides to see if that made a difference. They also didn't relate HDL to total. Maybe someone else will do a more complete study.

neesee Apprentice
vit b12 was 315 ref range 180-914. I see the gi doctor the end of this month. After my diagnosis over the phone all I was told by him was to see him after 3 months on the gluten free diet. Now I am wondering if I should have had more things done before. Heck, I figured out it was celiac I shouldn't have to think of everything! Anybody have a bone mineral density test done? Should I have one? Is there any link with very low total cholesterol and triglicerides? I had those checked appx 4 years ago and had a doctor tell me she never seen a patient with as low triglicerides as mine before. I don't have the exact results but I am going to get them next week out of my medical record.

My cholesterol has always been pretty low due to the celiac. At it's lowest, it was 96 total. Several years later into the diet, my triglycerides tested at 28. Twenty-one years later my cholesterol stays at around 150. I don't know the hdl,ldl or triglycerides anymore. My newer drs choose not the share that with me. Makes me kinda mad. I like to know what's going on with me. :angry:

Roda Rising Star

I did a google search for abnormally low triglyceride levels and not a lot comes up. I did find a mention at this site

Open Original Shared Link

Interesting was the last paragraph. For some reason I think mine was in that range. Hind sight is 20/20. Any suggestions to raise ferritin levels. I'm not anemic.

rinne Apprentice
vit b12 was 315 ref range 180-914. ....

I read this as a very low score, it seems your doctor was doing as mine was and assuming that the "normal" range is healthy. Do you have any dizziness, or the feeling of walking drunk, or strange tingling?

Roda Rising Star
I read this as a very low score, it seems your doctor was doing as mine was and assuming that the "normal" range is healthy. Do you have any dizziness, or the feeling of walking drunk, or strange tingling?

I have been having (what I percieve) an issue with my blood pressure. It tends to be on the lower normal spectrum now. It was always aroung 112-118/75-80 so as normal as one can get. Now it depends what I am doing but it has gone as low as 96/58 before. It usually does this right after getting up from to fast from bed or resting. I have to be careful because it drops and I get light headed, dizzy and feel like I could fall down. The only tingling I get is in my arms that radiates to my last two fingers. I believe I have a rotator cuff problem since it usually happens when I raise my arms up. I took lopressor a for 4 mo starting in Feb. 2006 for tachycardia. Unfortunatly it had an effect on my bp and really made it drop. I don't know if that has affected it now or not. I wonder if lower blood pressure and celiac have any relation? Just curious.

Jestgar Rising Star
Interesting was the last paragraph. For some reason I think mine was in that range. Hind sight is 20/20. Any suggestions to raise ferritin levels. I'm not anemic.

Ferritin levels take a long time to change. If you eat meat, they'll go up over time. You might want to consider taking iron for a few months as well.

rinne Apprentice
.....I wonder if lower blood pressure and celiac have any relation? Just curious.

I don't know but my blood pressure was always normal until I got sick, it dropped then and I haven't had it checked recently. <_<

Mother of Jibril Enthusiast
I wonder if lower blood pressure and celiac have any relation? Just curious.

I don't know about celiac... but there's definitely a connection to thyroid disorders. My blood pressure has been as low as 70/40. I've also experienced dizziness when changing positions. My ten-month-old son is still breastfeeding at night and I keep his crib right next to my bed... even then, I worry about dropping him because I'm so dizzy <_<

Jestgar Rising Star
I don't know about celiac... but there's definitely a connection to thyroid disorders. My blood pressure has been as low as 70/40.

Is this with hypo- or hyper-?

Mother of Jibril Enthusiast

HypOthyroidism is associated with low blood pressure and a slow heartrate. A high level of thyroid hormones (hypERthyroidism) can lead to palpitations and an accellerated heartrate.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,360
    • Most Online (within 30 mins)
      7,748

    Known1
    Newest Member
    Known1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago.  As a 51 year old male, I now take a couple of different gluten free vitamins.  I have not noticed any reaction to either of these items.  Both were purchased from Amazon. 1.  Nature Made Multivitamin For Him with No Iron 2.  Gade Nutrition Organic Quercetin with Bromelain Vitamin C and Zinc Between those two, I am ingesting 2000 IU of vitamin D per day. Best of luck, Known1
    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.