Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Once A Celiac...?


notsurewhat2think

Recommended Posts

notsurewhat2think Newbie

When I was a baby (50 years ago) my mother was told I was a celiac. She put me on a fairly strict diet for a short time until a friend of her introduced me to cake. Since that day I was "healed." I have eaten everything I've wanted all my life, have gained weight and am extremely healthy. Without going through extensive testing is there any way I can find out if I am a celiac? Also, I added flax seed to my diet over a year ago. Does this affect celiacs negatively?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Celiac will NEVER go away. If you had it as a baby--you still have it now and will always have it. Did your mother suspect you were celiac or actually know? If you haven't been on a gluten-free diet, you can easily test for celiac with blood tests. Another option is Open Original Shared Link. Even if you feel healthy, though, your intestines are still being destroyed, though...and a majority of celiacs are asymptomatic. Celiac symptoms can come and go, but it's not worth straying from the diet if you have it: unless wheat-filled food is more important than prevention of long-term symptoms, which include, but are by no means limited to malnutrition, cancer, osteoporosis, and type 1 diabetes. If you don't think you have celiac and have been on a normal, gluten-filled diet, make sure: have your doctor run blood tests to make sure.

notsurewhat2think Newbie

Thanks for the info. I'll get it checked out. How 'bout flax seed? Good or bad for a celiac?

lovegrov Collaborator

Flax seed is fine.

richard

Carriefaith Enthusiast

Yeah definately get tested for celiac and if you can... try and get your diagnosis records from when you were a baby.

I actually have a friend who was "diagnosed" with celiac disease as a baby and he went through about 60% of his life on a strict gluten-free diet. Just recently, he found out that he was never offically tested as a baby (no blood test or biopsy) the doctors just diagnosed him based on his diet responses to formulas. Anyway, his new GI doc decided to offically test him (since he had been eating gluten) and the GI doc found that he didn't have celiac disease at all! :blink:

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,220
    • Most Online (within 30 mins)
      7,748

    kimchi1
    Newest Member
    kimchi1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.