Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There A Light At The End Of The Tunnel In Regards To Sports?


loxleynew

Recommended Posts

loxleynew Apprentice

So I'm pretty depressed and have been for the ~ 3 years ive had this go undiagnosed. I recently found out I was gluten intolerant and have only been on the diet for a week. I think what i'm going through is just healing crisis because it seems to be worse.

Anyways, before this 3 years and during the first 2 years of "hell" I played sports such as ultimate frisbee, tennis and my main passion was weight lifting. I even got my degree in kinesiology wanting to go into fitness. Boy did that change. I dropped maybe 20 lbs and was forced to stop lifting and playing sports. Whenever I lift for more than 5 minutes I get massive bloating and indigestion and fatigue. Sports similar story. Has anyone been there? Especially in regards to lifting weights? I feel as though my life of weight lifting and playing tennis is over. Pleassssee let there be light at the end of this tunnel.

As I stand now I am underweight because playing sports and lifting seemingly was the way I could maintain a healthy weight.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

Yes! I don't have time for a proper reply but here is the nutshell.

I did a lot of sports, avid runner, strength training.

Got very sick, lost 60+ lbs, near death.

Slowly, surely, go better.

Now low-end, but normal weight, more muscles than before, soon to start rebuilding cardiovascular endurance (still holding off until I put on a little more body fat). Now going to be personal trainer and fitness instructor as opposed to pursuing a career in what I have my masters in.

Feel free to PM me if you want, I just don't have time right now for a proper reply.

lonewolf Collaborator

I don't have much time either, but I can briefly share my experience. I played multiple sports in HS, played basketball in college and became a PE teacher and HS basketball coach, while still playing in basketball and volleyball leagues, doing "fun runs" and playing tennis and working out (mild weight lifting).

Then I had kids and got really sick - my weight ballooned up and then I got way down underweight while I was getting it all figured out. I had arthritis that messed me up too. There were 3-4 years where I couldn't really do a lot in terms of teaching, sports or working out.

But to make a long story short, I now am fanatically gluten-free (12 years wheat free and almost 5 years gluten-free) and very healthy. I started running triathlons 9 years ago, I teach PE full-time and I coach HS basketball again. At 45 I can keep up with my players at practice pretty well and I often scrimmage with them. I play in a women's basketball league (I'm the oldest on my team by 11 years) and work out/lift weights a few times a week. I rarely have time for tennis, but I can play again. I honestly thought I'd never be able to do more than a simple triathlon, but I have gotten back into really good shape - better than any of my other friends who haven't had the challenges that I've had.

You might have to give it some time, but there is light at the end of the tunnel!

loxleynew Apprentice

Thanks for the replies! I guess I just needed confirmation. Everyday that goes by and every week that I lose another lb and see myself more like a skeleton than a former active person makes me want to give up. I know I won't but it just gets harder everyday to continue.

What makes it worse is since starting on this diet a week and half ago I feel even worse. I seem to be able to eat even less and it just gets me even more depressed. I'm hoping this is just my body "clearing itself out" before it gets better.

I have always dreamed of doing a triathlon but just as me and a friend were going to start preparing for one I got sick.

Felidae Enthusiast

Like the others said, it will come with time. It is a slow process and I think your body has to adjust to the "poison" removal and to absorbing foods properly as it should be. I was very sick for a long time and had difficulty with fitness. After being gluten-free, my fitness improved greatly. I have way more endurance than before. I also lift weights and it feels great. I am very skinny and have not been able to put on much weight. But, exercise does help me maintain what little weight I have.

Be patient and even if you can only go for walks, they will help with your mental health too. I was getting quite down and I found walking outside helped keep me more positive. At least it was something. You will get there in time.

NorthernElf Enthusiast

I've been dealing with celiacs for about 5 years. It does get better and being "fanatical" (as someone said!) about avoiding gluten is a must ! I also *mostly* avoid dairy as it seems to bother me.

FWIW, I'm a fitness instructor and big time fitness fan, runner, etc. Currently I'm teaching 2-4 classes a day during the week so I'm not doing too much on my own. I love the endorphin rush and I find keeping active helps my digestion, rather than hinders it. Could it be you are still somewhat in the healing phase ? Or could it be you are still getting some gluten somewhere ? I know for awhile I thought I was gluten-free and was still feeling ill & then I went and got my own baking pans, strainer, etc. and made most of my kitchen gluten-free (my family has one small corner for their bread and doesn't put any gluten on my side!). I even have a small 'gluten free zone' sign so they remember. Also, as to the dairy thing, if my stomach is at all in a bad way, I am very dairy sensitive.

I lost 5 pounds when I went gluten-free and it has stayed off. I'm active enough that I don't worry about weight anymore but I do eat healthy & often. I have found that larger meals bloat me up as well, I do much better on smaller, more frequent "meals".

  • 2 weeks later...
munchkinette Collaborator

It probably took me about a year on the diet to really work out hard like I did in college. (Running more than 5 miles at a time, several times a week.) Even in the past two years I've had some other issues, like finding that I needed to avoid other foods, and being set back a few weeks after a glutening. You will get better on the diet eventually, provided you don't uncover other big things. It's a process, but keep a journal. You should notice after a month, six months, one year, etc. that you see improvement.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.