Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Raw Honey


julirama723

Recommended Posts

julirama723 Contributor

I apologize if this question has been asked before.

Normally, I would assume that raw honey is gluten-free and safe to eat. BUT, what if the beehives are kept in an area that grows wheat and/or is surrounded by wheat fields? Is there a chance that gluten would be in the raw honey, or is that me being a worrywart?

The reason I ask is because I ate some raw honey in my pumpkin puree last night, and I had stomach issues all night and currently am experiencing all the warm, fuzzy feelings of a good glutening.

It could very well be something else causing this, but I'd like to know if this raw honey is OK to eat in my situation--we have a HUGE tub of it and I would hate to waste it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



julirama723 Contributor

Anyone? Anyone? Bueller? ;)

GlutenFreeAl Contributor

I don't want to discount anything necessarily, however I would think that the honey would be fine. Regular ol' honey could potentially come from a hive located close to a wheat field as well, and heating or processing it wouldn't do anything to destroy the gluten. So if raw honey is a potential source of CC, so would regular honey. And peanut butter when the peanuts come from a field next to a wheat field. And jam made from berries grown next to a wheat field. And sugarcane grown next to wheat. Etc.

If you really thought about all the potential sources for food to be grown next to a wheat field, you literally wouldn't eat anything you didn't grow yourself. And even then, you'd have to worry about birds and bees transplanting wheat to your garden...

Sorry to sound negative, but you have to draw the line somewhere, you know? Hope you're feeling better!

julirama723 Contributor

Thanks for your response, Al. I don't know if this is possible but I've really begun to wonder since discovering my problem with gluten. I guess a sub-question of this topic would be: Can living in a wheat-concentrated area provoke symptoms or make symptoms worse?

I live in an area of Montana nicknamed the Golden Triangle, because such a huge amount of wheat is grown here, the largest in the state. (It's about 150 miles of solid wheat from each apex.) I honestly don't remember having any of these GI issues until after I moved here (I had other things but no GI distress.) It could be coincidence, but I sat down one day and figured out a timeline of when my symptoms got worse, and each time they coincided with harvest.

So it's not just "a" wheat field, it's hundreds of miles of them packed solidly. This is the windiest place I've ever been, dust is constantly everywhere. :(

Does anyone else have experience with this or a similar situation?

ang1e0251 Contributor

Wow, that's a real puzzle! I don't know the answer but I was always taught that you should eat honey from local bees because they are using the pollen from local sources. The local pollen should help counteract your allergies. No scientific evidence just annecdotal.

Any beekeepers out there?

julirama723 Contributor

Ang--that's actually why we started using the local raw honey in the first place, to help with my fiance's allergies. It seems to be really helping him! He used to get wiped out when allergy season hit, now he just gets a bit of sniffling and sneezing. As for helping me, I'm not so sure! :)

Gentleheart Enthusiast

We have kept bees before. Since acres and acres of wheat would SURELY provide a huge amount of perpetual wheat dust in the air, logic would tell me that this wheat dust would surely deposit itself on the hives and particularly in the sticky honey-laden beeswax trays. When we extracted our honey, we just manually strained off the worst of the debris and bottled it raw. Some beekeepers strain it further and heat it, but neither of those would eliminate wheat dust either. It's a good question that many of us might want to ponder. Maybe we need to buy honey that is exclusively produced from bees in areas that don't grow grains in particular. I'm sure corn or soy or other major allergen grains could be an issue here as well for the same reasons. Now one more thing to figure out! :rolleyes:

And I hate to say it, but I would also think it would be a problem for a gluten intolerant person to live in a wheat producing environment at all. That's when things can get difficult. How far do you go to avoid gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



julirama723 Contributor

Gentle--that's an excellent point. We had considered staying here another few years (because it's financially lucrative to do so) but now with the advent of all these health issues, we'll probably move as soon as we can. The area we're planning on moving is NOT agricultural by any means, so I think things might improve.

It could be just a coincidence that all of this started after we moved here, but I'm not so sure...

  • 1 month later...
julirama723 Contributor

Just an update, and something to ponder.

I keep thinking about this subject, if living where I live is making me sick. Sometimes I think it's hooey, sometimes I think it's the key.

My wedding was last weekend, in the southern CA desert. Prior to leaving, I had some tummy troubles and was very nervous about being in a car for so long. We left on Tuesday, and luckily, the issues stopped on Wednesday.

Since it was my wedding, I allowed myself a bit of freedom with some gluten-free foods I don't usually eat, like a gluten-free brownie at the reception, gluten-free granny smith cider from Trader Joe's, Spanish rice, fresh fruit salad. I had no GI distress whatsoever. I also lost about 5 pounds. In fact, I felt better than I've felt in years. I loved being in the sunshine and warm weather, and the sky was so clear and beautiful.

We returned home, back to MT Tuesday night. On Thursday, my GI troubles started again and I've had "issues" each day. Yes, I didn't want to leave, but I was NOT expecting to have painful diarrhea after returning.

I just can't figure this out. Is it something in the region where I live? Is it a particular food I eat when I'm at home and nowhere else? Is it something in my house, like a mold problem? Is it something at work, something I'm breathing through the heating/cooling system?

I feel like I'm hearing hoofbeats and thinking of zebras, but is it really possible for all of these little things over the past 3 years to be merely unrelated coincidences? Does anyone have any thoughts on this, or any similar experiences? I'm sick of this.

Salax Contributor

Interesting dilemma. There are people that are so sensitive to gluten that breathing it in causes issues. I here it

Lisa Mentor

Here's my unexpert thoughts...

Since people react to the "protein" found in wheat, barley, malt and rye. I would think that it should not be a problem to be associated with wheat dust. Perhaps during harvest time when the wheat hulls are disturbed, and if it were to "float" into the honey, it might be an issue. People with a wheat allergy, I would see a concern.

There are a lot of if's (to my humble opinion) and this would be interesting to research.

julirama723 Contributor

Thank you for your replies!

Salax--I've never thought myself to be overly sensitive to gluten in particular (but I am sensitive to a lot of foods in general) so I don't know if it's that I'm breathing something or what. As for liking where I live, it's OK. I like certain things about it and dislike certain things about it. I actually like living here better now (that we've sort of become "established" and have good friends) than when we first moved here, yet I'm so much more sensitive and sick more often than when we started living here. It's a mystery!

Momma Goose--that's the thing I don't know about - what exactly is floating around and when. They harvest 2-3x per year here, depending on the wheat crop. It's also INCREDIBLY windy, and our houses are constantly collecting dust from neighboring fields. It's like a Steinbeck novel. I did have a reaction to wheat during allergy testing, but not large enough to be considered an allergy. (I think I registered as a "3" for wheat when it needed to be a "4" for an allergy.) I'm not sure how much stock I put into allergy testing anyway, I've heard and read that it's highly unreliable.

One thing that I've been pondering is if I'm getting sick because my home is not 100% gluten-free. My husband eats sandwiches for lunch, but prepares them in one area of the kitchen that I do not use. He also drinks beer, but that is easy to "contain" as far as gluten in concerned. Occasionally we will have burgers for dinner, and again these are prepared in the "gluten" area of the kitchen. I did realize that when we were gone (this past week anyway) there was virtually NO gluten in the house we rented. (Only one meal had gluten [hamburger buns] and it was eaten outside. There were no breads, cookies, cakes, etc. in the house that contained gluten. Everything else we served was gluten-free, and the wedding reception was gluten-free as well.

Perhaps it's a cross-contamination issue in my own home? Do many of you live in non-gluten-free households?

chasbari Apprentice
Thank you for your replies!

Salax--I've never thought myself to be overly sensitive to gluten in particular (but I am sensitive to a lot of foods in general) so I don't know if it's that I'm breathing something or what. As for liking where I live, it's OK. I like certain things about it and dislike certain things about it. I actually like living here better now (that we've sort of become "established" and have good friends) than when we first moved here, yet I'm so much more sensitive and sick more often than when we started living here. It's a mystery!

Momma Goose--that's the thing I don't know about - what exactly is floating around and when. They harvest 2-3x per year here, depending on the wheat crop. It's also INCREDIBLY windy, and our houses are constantly collecting dust from neighboring fields. It's like a Steinbeck novel. I did have a reaction to wheat during allergy testing, but not large enough to be considered an allergy. (I think I registered as a "3" for wheat when it needed to be a "4" for an allergy.) I'm not sure how much stock I put into allergy testing anyway, I've heard and read that it's highly unreliable.

One thing that I've been pondering is if I'm getting sick because my home is not 100% gluten-free. My husband eats sandwiches for lunch, but prepares them in one area of the kitchen that I do not use. He also drinks beer, but that is easy to "contain" as far as gluten in concerned. Occasionally we will have burgers for dinner, and again these are prepared in the "gluten" area of the kitchen. I did realize that when we were gone (this past week anyway) there was virtually NO gluten in the house we rented. (Only one meal had gluten [hamburger buns] and it was eaten outside. There were no breads, cookies, cakes, etc. in the house that contained gluten. Everything else we served was gluten-free, and the wedding reception was gluten-free as well.

Perhaps it's a cross-contamination issue in my own home? Do many of you live in non-gluten-free households?

I live in a non gluten free home with five gluten eaters and myself. My wife bakes and cooks all the time. We have a small kitchen and are careful about shared spaces. I just had my first issue with glutening since going gluten-free in November of 2008 yesterday and it came from my carelessly forgetting about what I had read on a label some months ago. There are crumbs sometimes, the smell of chocolate chip cookies or pepperoni rolls or some other baked good wafting through the house too many times for me..it's downright torture sometimes mentally but I have never had a problem with reacting or CC until I directly ingested a known (but stupidly forgotten) source of gluten. Then again, everyone is different.

RiceGuy Collaborator

My thought on the honey is that I wouldn't eat it. Honey is basically from pollen, and pollen does travel through the air. In fact, I've read that farmers have tremendous difficulty keeping their fields producing the specific varieties of grains they grow, because of pollen drifting in from other fields in the area. This seems especially true for non-GMO crops. Does anyone recall the law suit where the farmer had GMO corn growing in his fields, which he did NOT plant? The company holding the patent on the GMO corn filed suit against him, for growing "their" crop without having paid for the seed. It was determined that pollen drifted in from another field.

Some studies on Celiac Disease, involving the original non-hybrid wheat varieties, have failed because the fields get contaminated with the man-made strains. Last I read, of the more than 20,000 varieties of wheat currently in commercial production, ALL are modern hybrids.

Anyway, I do think it is possible for someone to be reacting to wheat pollen or dust from the fields. What I think I might do, is take a new, clean air filter for an air cleaner, swish it in a pan of water, then test the water with one of those home gluten test kits. Then use the filter in the air cleaner device until you can visually see particulate collected on it. Then run the water test again. If you run the air cleaner outside, it should avoid being contaminated by the inside air. So if the filter then tests positive, it seems to me this proves that the gluten came from outside.

julirama723 Contributor

Chasbari--you are brave! I got rid of all flours when I went gluten-free. The only thing my husband has is bread/buns, and beer. He even eats gluten-free pasta now! When I returned home, it was like I had been glutened, and I'm not sure what from, since I hadn't eaten anything out of the ordinary when I got back. I'm basically grasping at straws here. If it's a CC issue that's causing it, my husband already said he'd go gluten-free. I'd prefer not to do that if I don't have to, as it would be MUCH more expensive. He's also a ridiculously picky eater and can't/won't eat half the stuff I will.

RiceGuy--I am so glad that you believe this could be a real possibility! I feel like I'm going crazy some days, but my symptoms and problems HAVE to be related somehow to where I live. I wasn't even aware of harvest schedules before. I only figured out the link when making a timeline for my doctor, a timeline of symptoms and incidences of being ill. During each harvest, my symptoms would worsen and I would be VERY sick.

I'm definitely staying away from the honey, I guess DH will have to eat it.

The nearest large city in the area is the ACTUAL windiest city in N. America. This whole area is constantly dusty and windy. It's impossible to escape. We also live in an older building and the windows do not seal properly, so we always have dust/dirt from the outside getting in that way. I think we will definitely be moving much sooner than we anticipated.

  • 1 year later...
Syrinx413 Newbie

Chasbari--you are brave! I got rid of all flours when I went gluten-free. The only thing my husband has is bread/buns, and beer. He even eats gluten-free pasta now! When I returned home, it was like I had been glutened, and I'm not sure what from, since I hadn't eaten anything out of the ordinary when I got back. I'm basically grasping at straws here. If it's a CC issue that's causing it, my husband already said he'd go gluten-free. I'd prefer not to do that if I don't have to, as it would be MUCH more expensive. He's also a ridiculously picky eater and can't/won't eat half the stuff I will.

RiceGuy--I am so glad that you believe this could be a real possibility! I feel like I'm going crazy some days, but my symptoms and problems HAVE to be related somehow to where I live. I wasn't even aware of harvest schedules before. I only figured out the link when making a timeline for my doctor, a timeline of symptoms and incidences of being ill. During each harvest, my symptoms would worsen and I would be VERY sick.

I'm definitely staying away from the honey, I guess DH will have to eat it.

The nearest large city in the area is the ACTUAL windiest city in N. America. This whole area is constantly dusty and windy. It's impossible to escape. We also live in an older building and the windows do not seal properly, so we always have dust/dirt from the outside getting in that way. I think we will definitely be moving much sooner than we anticipated.

I know I'm a year or so late here, but I'm wondering whether your symptoms subsided when you stopped eating the honey? I have all of the sudden had a return of symptoms, and I thinking it might some honey from the local farmer's market that I recently started eating a lot of. I'm going to stop and see what happens.

CeliacAndCfsCrusader Apprentice

Just my two cents:

I do think being in a heavily "infested" wheat harvest area may be an issue. I live in Denver and it's often windy here too, you can see the dirt and pollen being blown for miles. Remember, you have to INGEST the wheat to cause your Gastro symptoms, not simply "be around it". If it's that busy of an Agricultural area, this may be fairly easy to do.

I love the air cleaner filter idea, brilliant.

Here are some other thoughts.

I'm highly sensitive, but honey has never bothered me. I do buy local honey, but most of this isn't necessarily harvested near the major wheat producing areas in CO, maybe it's been luck so far.

Do you use separate toasters in your house? This is a must! Some go so far as having to use separate everything.

Does your hubby stick his knife in the butter, jam, peanut butter, mayo, etc etc when he uses it? Does it CC you?

Do you share a bread machine?

You should eliminate the possible CC in your household first, IMHO, before you panic. Have him go gluten-free for two weeks and see how you do!

Best of luck.

PS: You're not any more crazy than the rest of us trying to figure this all out!

minamoo Newbie

I apologize if this question has been asked before.

Normally, I would assume that raw honey is gluten-free and safe to eat. BUT, what if the beehives are kept in an area that grows wheat and/or is surrounded by wheat fields? Is there a chance that gluten would be in the raw honey, or is that me being a worrywart?

The reason I ask is because I ate some raw honey in my pumpkin puree last night, and I had stomach issues all night and currently am experiencing all the warm, fuzzy feelings of a good glutening.

It could very well be something else causing this, but I'd like to know if this raw honey is OK to eat in my situation--we have a HUGE tub of it and I would hate to waste it!

The bad news about honey is that manufacturers are cheating by adding Glucose syrup to the honey. I've been ill and couldn't understand why. After ruling out all possibilities I got to Honey. I confirmed the Gluten content by using a Gluten flow through test on expensive 100% pure Honey. I was shocked to discover the honey was full of Gluten! Now I steer clear of all Honey in the shops.

  • 2 weeks later...
rdh22-99 Newbie

Hello all! I am new to the forum and was excited to see this topic! For the past 2 weeks I have made gluten free pancakes on Sunday morning and have felt sick afterwards for the entire day. I used 100% pure maple syrup and the gluten free pancake mix. Well, the pancake mix calls for honey. I found it hard to believe that this would make me sick and I feared that maybe my gluten intolerance diagnosis was crap now. I researched online and found that honey can contain maltose. I was floored. I also found out that commercial honey is usually thinned and has syrup added to it. I bought a new pancake mix that does not require honey so I will let you know how it goes! ;)

psawyer Proficient

Maltose, despite the name, is not malt and is gluten-free. It is a form of sugar.

rdh22-99 Newbie

Maltose, despite the name, is not malt and is gluten-free. It is a form of sugar.

Well that's good to know thank goodness! Thank you for the info. I do know that the honey I used was commercial, but I guess I'll have to look for other ingredients that may be the culprit. Totally made me sick twice now. Hmmmmm.....going to have me thinking now.

  • 1 year later...
sensiblyparanoid Newbie

Hi, guys. Just wanted to mention that I recently read a beekeeper's post, & that I was totally CRUSHED , as I LOVE HONEY!! (Especially the Really Raw Honey)! He was sharing the fact that when pollen is scarce, bees are known to roll around in any kind of dust, such as open flour sacks, coal dust, etc... I'm quoting what he posted below:

"As a beekeeper, I would like to adress a topic I haven't seen much about. Bee Pollen. During the times when actual pollen is scarce, bees gather up any kind of dust, including grain dust...

Open Original Shared Link

Chip Taylor, the University of Kansas entomologist best known for his project on Monarch Watch butterfly tagging, tells us dust collecting by Honeybees is actually quite common in spring. If pollen is unavailable, Honeybees collect all sorts of dust that contains carbon--even coal dust. Dr. Taylor reports that in open markets in Central and South America it's not uncommon to see bees collecting flour from open sacks or spillage--a behavior also well-known in Africa--and that beekeepers sometimes put out "pollen substitutes" such as high-protein soy flour in spring and fall."

(NOTE: The above post was quoted from "acjeff" at another celiac forum/blog).

I have no idea if there really is such a thing as "gluten-free" honey- trust me, I've been looking! Now I know WHY I used to be bent over in PAIN after eating some pure raw bee pollen! God Bless & be well.

T.H. Community Regular

Wow - I'd never heard of the dust collecting. That...might explain a few things with honey. Interesting.

Re: the original question on wheat fields (I know it's old, but we're all interested again, yeah?). I do know that some of the protein used in the making of honey remains in the honey afterward. The protein is not completely destroyed when the bees make the honey.

This is a problem for the corn allergic, because some beekeepers are feeding bees corn syrup, and the corn still remains in the honey afterward in high enough amounts to cause an allergic reaction.

I'd never heard of any farmers using wheat based syrups, but this got me curious, and now...now I know better. Syrups based on wheat aren't used, but wheat can be used as part of a supplemental feeding of bees during the winter time.

"None of the protein supplemental foods fed to honey bees is a complete replacement for natural pollen; however, several brewer’s yeast products, Wheat, and soybean flour, fed singly or in combination, can be used to improve the nutrition of colonies when natural pollen is scarce. Cane or beet sugar and isomerized corn sirup can be used to supplement the bees’ diet of nectar or honey." Open Original Shared Link

This is older information (although put out by the USDA), and so I don't know how common the practice is for most beekeepers. Probably worth checking out, if you think you've reacted to honey, yeah?

Another issue that might make one ill (although may not be gluten related) is all the medication they add to the beehives now. Mite infestations are so ubiquitous that almost all hives have to be medicated. One way of doing this is to put in strips with the medication, for the bees to walk over and spread around. It's preferred that this is done when the honey isn't being made, but it's not required.

I haven't been able to get a lot of information on what's in the medication, unfortunately, so I have no idea if it's gluten free or not.

psawyer Proficient

From Gluten-Free Diet A Comprehensive Resource Guide, by Open Original Shared Link, 2008 edition, page 33:

Foods allowed: Honey

The same information appears in the 2006 edition, also on page 33.

Shelley Case is a recognized expert on celiac disease and the gluten-free diet. I don't really know about the beekeeper.

T.H. Community Regular

...Foods allowed: Honey

...Shelley Case is a recognized expert on celiac disease and the gluten-free diet. I don't really know about the beekeeper.

I wouldn't deny that there are experts on the disease, and the diet, but honestly? We're nowhere near a full understanding of this disease or the foods involved, so their expertise only stretches so far. Even the experts are still learning and refining what is 'true' about our disease, as new information comes to light. Honey is probably fine for most celiacs; I honestly don't know. But based on what people have said here, some people are having issues with it.

We wouldn't be human if we didn't question why, or search for answers. I don't think anyone here was trying to imply that we should all run away screaming from honey if we're a celiac. I think it's more that we're trying to search for why some of us seem to have trouble with it. We know that people like Shelley Case think it's fine for us; that's why we ate it in the first place.

Unfortunately, Shelley doesn't have the answer for why we got sick, which is why we're talking here, yes?

Relying solely on the experts, for a lot of us, is agreeing to lie down and get sicker. Because if they're right, then all our issues and problems are just in our heads. All the foods that make us react, consistently, couldn't possibly be a problem.

Well, for years, celiacs' neurological issues were 'all in their head' or solely due to malnutrition, too. Now the experts have had to eat their words as they find evidence to the contrary. The allowed/not allowed list of foods has changed over the years, as well. Researchers still haven't even done studies on some of the grains that are listed as safe for Celiacs to eat. Until recently, they'd only done studies on oats, rice and corn to see if they were safe.

We're nowhere near the end of research on this disease OR the foods that we can have. If we were, I figure probably a lot more of us would be doing better than we are.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.