Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

S.I.B.O. Small Intestinal Bacterial Overgrowth


TimothyRyan

Recommended Posts

TimothyRyan Rookie

Just diagnosed with this small intestinal bacterial overgrowth, going on antibiotics. was wondering if any other celiacs have this condition as well? and any helpful info to take in addition to my doctors opinion...

TIM


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jtangema Apprentice

Hi,

I would very highly recommend taking a good probiotic. It will help the good bacteria in your gut grow. I take Florajen 3- it is supposed to be on of the good ones.

Jennifer

  • 1 month later...
kpm2319 Rookie
Just diagnosed with this small intestinal bacterial overgrowth, going on antibiotics. was wondering if any other celiacs have this condition as well? and any helpful info to take in addition to my doctors opinion...

TIM

Hey Tim, I was just diagnosed last month and my doctor prescribed xifaxan but it did not help. Then he prescribed a tetracycline antibiotic which has not helped either. Did the antibiotics work for you?

Kevin

  • 4 weeks later...
JodiC Apprentice

Try apple cider vinegar (with mother)up to 2 tbls a day with water and Shaklee's optiflora.

  • 1 year later...
TimothyRyan Rookie

Well, One year and 3 months later after my Xifaxan antibiotic treatment did work and get rid of the SIBO. It seems my exact symptoms have returned. I started another cycle of Xifaxan, which by the way, is the most outrageously priced medicine in the world. ( i no longer have insurance.) Anyway, they wanted me to do a 1200mg a day cycle, but since i can not afford it, I am doing a 600mg a day cycle. which is what i think worked last time.

Also, this time, i shall take all your advice, and try to regularly take probiotics after i finish this cycle of antibiotics. Anyone have any other advice?

-Tim

sfsassy Rookie

There is a good forum out there for SIBO on the Yahoo boards. You may want to explore there as well as here for more advice on what people are doing.(sibonation ) I had SIBO before I was diagnosed with Celiac. I went on 2 rounds of antibiotics to treat it as well as a probiotic. The results were not very positive, but I did get better in time. I think my diet helped. Low carb/Sugar.

ravenwoodglass Mentor

Well, One year and 3 months later after my Xifaxan antibiotic treatment did work and get rid of the SIBO. It seems my exact symptoms have returned. I started another cycle of Xifaxan, which by the way, is the most outrageously priced medicine in the world. ( i no longer have insurance.) Anyway, they wanted me to do a 1200mg a day cycle, but since i can not afford it, I am doing a 600mg a day cycle. which is what i think worked last time.

Also, this time, i shall take all your advice, and try to regularly take probiotics after i finish this cycle of antibiotics. Anyone have any other advice?

-Tim

When I have to take antibiotics I start upping the probiotic intake the day I start the antibiotic. It seems to keep the nasty effects of the antibiotic from ever starting. You may want to ask your doctor is that is okay for you do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sfsassy Rookie

I just thought of something that I heard from my dietician but never tried it. She was saying that before you start a round of antibiotics for SIBO you should prep your body as if you were doing a colonoscopy. Meaning, fast the day before and take a laxative to clear out your gut. (I would totally ask your Dr about that before you tried it. )

She also mentioned taking the probiotic after the antibiotics were finished.

TimothyRyan Rookie

I just thought of something that I heard from my dietician but never tried it. She was saying that before you start a round of antibiotics for SIBO you should prep your body as if you were doing a colonoscopy. Meaning, fast the day before and take a laxative to clear out your gut. (I would totally ask your Dr about that before you tried it. )

She also mentioned taking the probiotic after the antibiotics were finished.

Well, i already started the cycle yesterday. And I've had to goto the bathroom with D like 4 times today. So it's clearing something out. haha.

But yeah, i think I'm gonna go on some probiotics when this cycle is done. Xifaxan is way too expensive to let this come back with out looking out for it this time.

Hope it all works. Thanks for the advice.

burdee Enthusiast

How were you diagnosed with 'SIBO'? That term is like 'IBS', because many different kinds of critters can cause intestinal dysbiosis (imbalance of intestinal microflora) or SIBO. I've had 5 different bacterial infections, 2 parasites and candida, all diagnosed by stool tests. So I wondered whether your doc used a stool test to diagnosed your SIBO. If so, exactly which bacteria, parasite or candida was causing the 'overgrowth'? Did your test results include a sensitivity test, which indicates which drugs or botanical supplements can kill the 'bad bugs' in your gut? Not all bugs are sensitive to (can be killed by) the same drug or botanical supplement. Many labs will 'culture out' bacteria and yeasts to determine which treatments are most effective, by sensitivity tests. Parasites usually can't be cultured. So docs will use whatever treatments (usually drugs) have been proven most effective in erradicating a particular parasite.

SUE

  • 8 years later...
Nancy547 Newbie

I have just been recently diagnosed with SIBO/Celiac & have researched the approved diets but find conflicting advice surrounding butter, and like TIM, I cannot afford Xifaxan on my health insurance, but have found through my research that antibiotics such as "Cipro, Flagyl, Sulfa, Ceplex" to name a few are just as efficient and a lot less expensive. I welcome any advice on diets from those that have dealt with this a lot longer.

cyclinglady Grand Master
2 hours ago, Nancy547 said:

I have just been recently diagnosed with SIBO/Celiac & have researched the approved diets but find conflicting advice surrounding butter, and like TIM, I cannot afford Xifaxan on my health insurance, but have found through my research that antibiotics such as "Cipro, Flagyl, Sulfa, Ceplex" to name a few are just as efficient and a lot less expensive. I welcome any advice on diets from those that have dealt with this a lot longer.

Cipro, a fluoroquinolone, has a black box warning from the FDA.  Make sure you weigh all the risks and benefits of this particular antibiotic.  

I hope you feel better soon!  

ravenwoodglass Mentor
6 hours ago, cyclinglady said:

Cipro, a fluoroquinolone, has a black box warning from the FDA.  Make sure you weigh all the risks and benefits of this particular antibiotic.  

I hope you feel better soon!  

I agree with C-lady about Cipro. I had a severe reaction to it. I only took one dose but it made me hallucinate and any food I ate for two weeks came back undigested.  Cipro is a powerful antibiotic that targets specific bacteria. Before anyone takes it the doctor should culture to make sure that the bacteria it is effective against is present. It is not a full spectrum antibiotic.

IMHO you should get on the diet strictly and try adding fermented foods to your diet like yogurt, saurkraut, etc. That will allow the good bacteria you need to florish. Antibiotics will kill off both good and bad bacteria and may slow your healing.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,922
    • Most Online (within 30 mins)
      7,748

    gizmoziz
    Newest Member
    gizmoziz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.