Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eas Myoplex Beware


Jeremiah

Recommended Posts

Jeremiah Apprentice

I don't want anyone else to get burnt by EAS. For years now they have claimed their product is gluten-free, even though it is not, it contains oats. Is there any way to stop a company like this from making false claims?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

What makes oats not gluten-free is cross-contamination. So, technically they are not using gluten ingredients but unless manufactured in a dedicated facility, the oats do have gluten on them. It is a fine line and they should defiantly not say they are gluten-free if they have cross-contaminated oats.

tarnalberry Community Regular

actually, it's not even quite true to say that it's only cross contamination that makes oats gluten free. oats are a more complicated question than just that.

gluten - *technically* - is the protein in a grain. period. celiacs have somewhat usurped the world to refer to only specific glutens, rather than all of them, but technically speaking, all grains have gluten - which is why you can see "corn gluten" on a package, and you don't have to worry that you're going to get sick, as a celiac, from it.

gliadin (the wheat gluten), horedin (the barley gluten), and secalin (the rye gluten) (and I may have switched the barley and rye gluten), are all known to cause the autoimmune response in celiacs. they all have the same 33-mer, the same section of 33 amino acids lines up and folded the same way that our body sees as badness.

avenin (the oat gluten), has a very similar segment of amino acids in it. approximately 10% of celiacs have an immune system that says "eh, close enough" and *also* has the exact same autoimmune response to oats. it's *not* cross contamination that they are reacting to, it's the protein itself. (there are a number of articles on pubmed from research on this where the researchers used oats grown in their own labs under very controlled conditions.)

imho, oats should be included in labeling considerations since *some* celiacs do react to them. but selling oats that are marketed as free of cross contamination is a good thing as well, for the majority of celiacs who do not.

either way, this issue - oats - is one reason why it is, also imho, VITAL to NEVER trust "gluten free" labels, and always read the ingredient list.

Jeremiah Apprentice
What makes oats not gluten-free is cross-contamination. So, technically they are not using gluten ingredients but unless manufactured in a dedicated facility, the oats do have gluten on them. It is a fine line and they should defiantly not say they are gluten-free if they have cross-contaminated oats.

6 years ago when I played basketball in college EAS claimed their Myoplex was gluten free, yet I would get cramped up and my brain felt like cabbage and I couldn't explain why. After several months, I quit taking their shakes and both symptoms went away. I would warn all celiacs beware, their products are NOT gluten-free. There is little more frustrating than believing you are eating gluten free and still feeling terrible. If this is happening to you, I'd suggest an elimination diet, I've found out too many times you can not trust the company's statements. Since they're not getting sick and their selling product they really don't care. (or at least it feels that way sometimes)

brigala Explorer

Many of us do not react to oats. I appreciate it when products containing oats are marked "gluten free" if they're either dedicated or tested for the presence of gluten.

We always have to read the label. I have to check all gluten-free foods for the presence of dates and certain tree nuts. Some people have to check it for oats, or MSG, or corn -- all ingredients that many Celiacs seem to have difficulty with. It doesn't mean it shouldn't be labeled gluten-free.

-Elizabeth

Jeremiah Apprentice
Many of us do not react to oats. I appreciate it when products containing oats are marked "gluten free" if they're either dedicated or tested for the presence of gluten.

We always have to read the label. I have to check all gluten-free foods for the presence of dates and certain tree nuts. Some people have to check it for oats, or MSG, or corn -- all ingredients that many Celiacs seem to have difficulty with. It doesn't mean it shouldn't be labeled gluten-free.

-Elizabeth

A great many celiacs, are not aware of all the possible pit-falls out there. (Especially new ones) They hear gluten-free and the instant assumption it is safe. (They don't have time to troll the boards looking for the absolute definition of gluten-free, which includes oats in most definitions) So they go on believing they are eating gluten-free, but don't understand why they are having problems. This post is for those people. I respect your opinion and you can say we respectfully agree to disagree.

tarnalberry Community Regular
Many of us do not react to oats. I appreciate it when products containing oats are marked "gluten free" if they're either dedicated or tested for the presence of gluten.

We always have to read the label. I have to check all gluten-free foods for the presence of dates and certain tree nuts. Some people have to check it for oats, or MSG, or corn -- all ingredients that many Celiacs seem to have difficulty with. It doesn't mean it shouldn't be labeled gluten-free.

-Elizabeth

The reason I disagree with this - specifically putting oats in a product labeled gluten free - is because it is GLUTEN (of the variety that celiacs react to) that is potentially a problem in the food item. MSG, corn, and other intolerances are all different issues - issues that may be related, but are not THE SAME IMMUNE RESPONSE, on a chemical level.

I'm looking for a label that means "celiac safe" not "90% celiac safe". :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jeremiah Apprentice
The reason I disagree with this - specifically putting oats in a product labeled gluten free - is because it is GLUTEN (of the variety that celiacs react to) that is potentially a problem in the food item. MSG, corn, and other intolerances are all different issues - issues that may be related, but are not THE SAME IMMUNE RESPONSE, on a chemical level.

I'm looking for a label that means "celiac safe" not "90% celiac safe". :)

I agree, most people with celiac disease, read gluten free and trust that it is. Unaware about the potential for oats to be harmful to them, in so called "gluten-free" declared foods.

bakingbarb Enthusiast
I agree, most people with celiac disease, read gluten free and trust that it is. Unaware about the potential for oats to be harmful to them, in so called "gluten-free" declared foods.

I am totally confused by you all...are you saying a product that says gluten free but contains oats isn't gluten free?

brigala Explorer
I am totally confused by you all...are you saying a product that says gluten free but contains oats isn't gluten free?

It sort of depends on how you look at it.

The gluten in oats is not the same as the gluten in rye, barley, and wheat. It's not unusual for a Celiac to react to oat gluten as if it were wheat gluten.

Rice, corn, and all other grains also contain gluten, but it is very different from wheat gluten. It is much more rare for Celiacs to have problem with rice gluten or corn gluten, so these aren't really considered "gluten" in the sense that relates to Celiacs.

For someone who has trouble with the gluten in oats, which is a substantial minority of Celiacs, anything with oats should not be considered gluten-free even if it says gluten-free on the package.

But, for those of us who have no problem with oats, there are many products out there that contain oats which come from dedicated sources (eliminating the possibility of contamination with wheat, rye, or barley gluten, which is the main problem with oats for most Celiacs).

Obviously from this thread, my opinion on this differs from that of some of the other people here. I eat oats and products containing oats if they are certified gluten-free; but I avoid oats that are not certified gluten-free because of the high degree of cross-contamination in oats. If there weren't oat-containing foods labeled gluten-free, I'd have to avoid all oats and oat-containing foods... and frankly that would be the pits. Some of my favorite gluten-free foods contain oats.

-Elizabeth

Open Original Shared Link

Open Original Shared Link

tarnalberry Community Regular
I am totally confused by you all...are you saying a product that says gluten free but contains oats isn't gluten free?

Oat gluten - avenin - is similar enough to wheat, rye, and barley gluten that 90% of celiacs do not react to it. 10% of celiacs do react to it, however. So, it's not exactly a black or white answer that can be had.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.