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Can Someone Tell Me If This Is Really Bad?


lollipop23889

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lollipop23889 Newbie

I just got my blood test back. They tested me fro TRANSGLUTAMINASE AB (IGA). I'm assuming that AB stands for antibodies and that if they're present, then I might have Celiac.

It says the reference range is Low: <20 units, so again, I'm assuming your not supposed to have it, or at least not a lot of it.

My level was 12 times that, however... 239 units...

Is this really, really bad? or Normal? Does anyone know?


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Jestgar Rising Star

I think it means that you should stop eating gluten. Forever. Period.

Browse through the board to get a feel of how people deal with this, and start asking questions when you're ready.

mommida Enthusiast

If you are going for the gold standard diagnoses, DO NOT stop eating gluten until this is done. Call your doctor to see how you are going to proceed.

happygirl Collaborator

The tTG test is a standard blood screening tool for Celiac. With a very positive result, please schedule a follow up consult with your doctor, but do not go gluten free until all testing is completed.

rinne Apprentice

Hi. :)

What you do next depends on how you are feeling. The day I found out that gluten was causing me pain was the day I stopped eating it. The idea of continuing to damage myself in order that they have some supposed gold standard just didn't appeal to me.

Do the research, decide for yourself what works for you.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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