Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Life Long Possible Symptoms Of Celiac


jamield23

Recommended Posts

jamield23 Newbie

Yesterday, my mom was diagnosed with celiac disease, so today I went to go get tested. I have had several symptoms throughout my life that correlate with celiac disease, and I would like to get feedback. Doctors have never told me why I have these problem.

-Severe joint pain during childhood in hips and neck. This especially occurred before I would get sick. I would start limping due to pain in hip even before sickness occurred (whether it was a cold, strep, etc.) Then, other time I wouldn't be able to lift my head due to bad neck pains.

-Onset of migraines at an early age. Persisted for about 4 years.

-Gallbladder removal at age 15 due to low functioning (20%).

- Nontype acute hepatisis during teen years twice. No explanation. Would subside a month or two later.

- Onset of partial seizures in occipital lobe one year ago (age 21)

- Restless leg syndrome

- Just don't feel like myself since seizures began

- I have always had IBS since I can remember.

Has anyone else had problems like this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Yesterday, my mom was diagnosed with celiac disease, so today I went to go get tested. I have had several symptoms throughout my life that correlate with celiac disease, and I would like to get feedback. Doctors have never told me why I have these problem.

-Severe joint pain during childhood in hips and neck. This especially occurred before I would get sick. I would start limping due to pain in hip even before sickness occurred (whether it was a cold, strep, etc.) Then, other time I wouldn't be able to lift my head due to bad neck pains.

-Onset of migraines at an early age. Persisted for about 4 years.

-Gallbladder removal at age 15 due to low functioning (20%).

- Nontype acute hepatisis during teen years twice. No explanation. Would subside a month or two later.

- Onset of partial seizures in occipital lobe one year ago (age 21)

- Restless leg syndrome

- Just don't feel like myself since seizures began

- I have always had IBS since I can remember.

Has anyone else had problems like this?

Yes. With the exception of the gall bladder removal your childhood sounds much like mine. The pain in my legs was so bad it made my Mother cry and me scream. I used to have nightmares that someone was cutting my legs off. I only had Hep once but my twin's liver was destroyed by age 15. I also had seizures and brain fog so bad I went from a straight A student to C'sand D's over the course of a summer.

After you get done with all the testing you choose to do you should give the diet a good strict try no matter what the results. With your Mom being recently diagnosed you should be able to be a good support system for each other. Ask any questions here you need to.

nasalady Contributor
Yesterday, my mom was diagnosed with celiac disease, so today I went to go get tested. I have had several symptoms throughout my life that correlate with celiac disease, and I would like to get feedback. Doctors have never told me why I have these problem.

-Severe joint pain during childhood in hips and neck. This especially occurred before I would get sick. I would start limping due to pain in hip even before sickness occurred (whether it was a cold, strep, etc.) Then, other time I wouldn't be able to lift my head due to bad neck pains.

-Onset of migraines at an early age. Persisted for about 4 years.

-Gallbladder removal at age 15 due to low functioning (20%).

- Nontype acute hepatisis during teen years twice. No explanation. Would subside a month or two later.

- Onset of partial seizures in occipital lobe one year ago (age 21)

- Restless leg syndrome

- Just don't feel like myself since seizures began

- I have always had IBS since I can remember.

Has anyone else had problems like this?

I had severe migraines starting in my teens, my gallbladder was removed when I was 35, "cryptogenic" hepatitis 5 years ago (which means they don't know the cause, but now I have autoimmune hepatitis which means my immune system is trying to destroy my liver), and "IBS" since childhood.

I didn't have the joint pain or seizures or restless leg syndrome...but remember, everyone's different! Celiac disease can manifest itself in many different ways.

Good luck!

JoAnn

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,013
    • Most Online (within 30 mins)
      7,748

    Triana
    Newest Member
    Triana
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kimmy88
    • Janet McAlpin
      Will do! Here are some other test results from the last few days using the Elisa Technologies tests. All of these products tested Gluten Free, ( or more accurately, under 10ppm)  - Teddies crunchy Peanut Butter  - Philosopher Foods Sprouted Almond Butter - Jacobsen Salt Co Black Garlic Ginger Salt        
    • Wheatwacked
      Yes, it is important to get 25OHD blood and PTH tested and monitored.  My doctor tests me 4 times a year along with homocysteine and the other blood panels.  Massive vitamin D doses under a doctors care can raise vitamin D level quickly, but those doses wear off in about three months, so either sun or supplementation needs to be instituted in order to not lose the gain.  There have been numerous clinical trials on kidney transplant patients with doses as high a 1.5million IU with no ill effects.  But those are a one time bolus under the care of doctors.  One conumdrus of these really high  dose supplements is a higher incidence of falls.  The answer is that the patient feels so good, they are more active than usual before regaining strength and balance.    
    • trents
      Yes, 50k IU daily would be an a short term front end loading dose for those having critically low levels but you wouldn't want to take it for an extended period. 
    • trents
      That's 20ppm, not 20,000 ppm. https://www.fda.gov/food/nutrition-education-resources-materials/gluten-and-food-labeling "The rule specifies, among other criteria, that any foods that carry the label “gluten-free,” “no gluten,” “free of gluten,” or “without gluten” must contain less than 20 parts per million (ppm) of gluten."
×
×
  • Create New...