Please Help, I Cant Breathe And Im Terrified

[alephknot]

there could be many things contributing to my current health predicament... but any advice would be sooooo very much appreciated. if you dont want to read my spiel, you can skip to the bold lettering... but if you have five minutes and are feeling extra self-less, and or sympathetic... i promise, your response will not go unappreciated.

i ended up at the er a few nights ago, 3 am, been having breathing problems for a few days already, but it got progressively worse. i think i was glutened, but then again, i feel sick most of the time these days so it is hard to tell. i have severe bloating, constipation, chest pain, back pain, neck pain, and cant get a full breath (maybe one every 25-40 minutes) . the er doctors were the most insensitive, belittling people i have ever came in contact with. they did not listen to my complaints or fears, nor did they take into consideration all my other health problems... celiac, autoimmune thyroid, etc etc... i was there for 4 hours, talked to the doctor for 3 mins, he diagnosed me with bronchitus and asthma, gave me an inhaler which doesnt help at all (because i dont have asthma) and said he'd be back with antibiotics.. which never happened and also denied me of anything to reduce my extreme stomach discomfort. although i should be used to this "its all in your head" response, it is extremely triggering for me, on so many different levels and im not sure how to process it. to think that your "emergency" lifeline doesnt give a poop, and wont do poop for you... is terrifying to me.

so, here i am, i few days later, still not breathing well... completely consumed by it. the two most innate human functions, eating and breathing, are destroying me... im really scared, im 24 and i feel like im dying a good portion of the time, even though im eating all the right things, taking a bunch of supplements, seeing a naturopathic doctor... actually trying to take care of myself. when i first went gluten free, i felt amazing, reborn, for about two months.. than it all went to crap again. and i can handle most crap, but not being able to breathe, i can not handle that.... and i think that the breathing seems to correlate with my thyroid, and or being glutened... but i just dont know anymore, there seems to be so much damage to my body, that i dont know what is causing what.

if anyone knows some sort of medicine i can take to relieve bloating and gas... please, do tell.

and if anyone knows what this weird airbubble thing i feel just under my lung when i try to breathe, please do tell.

and if anyone knows something i could take to be able to breathe, please do tell.

and if anyone has any suggestions as to how to emotionally get through utter hopelessness, isolation and panic, please tell me...

i have some pretty serious issues with anxiety, depression, eating disorders and addiction... and feeling chronically ill, with little to no validation is starting to take a toll on me that im not sure i can deal with... so, really, any advice, could be potentially life saving for me...

thank you in advance to anyone who replies.

kelly

p.s. im sorry to sound so victimish, and i write to this forum because i know there are people here who have or are experiencing a lot worse things than me... and who are or have gotten through them. i am pretty new to this all, and i have found a huge source of comfort from reading what you all have been through, or are going through. thanks again.

[AliB]

Oh Kelly - I can feel your pain. Not knowing what is going on is just the worst thing - and very frightening. My symptoms have not been all the same as yours, but I can sympathise with your fear as I have been there too.

Can I ask a few questions?

How long have you been gluten-free?

What do you eat?

Have you experimented with eating different foods at different times, and do you get the problem all the time, or only after eating?

Are there times when you do get respite from the problems?

I see this so often. So many times people say that they felt wonderful when they first went gluten-free but it didn't last.

The gas and bloating is an indicator and is likely what is behind the problem. Mine, if I get any doesn't affect my lungs, it affects my heart and gives me palps and a feeling it's going to burst out of my chest, but I know it is my digestion that is the problem.

Anyway, if you can answer my questions that will help me get a better understanding of what is going on.

If you don't get an immediate answer it is because I am in the UK and it is gone 1am here and I should be asleep!

Ali.

[Di-gfree]

Hi Kelly, Are you on thyroid replacement? I'm on desiccated thyroid hormone for my Hashimoto's, and one of my hypo-symptoms is 'air hunger' - like I can't breathe very well, or get enough air. Do you think you're currently on the hypo side?

Just wanted to add on, that I've anxiety, panic, oh just lots of problems, too; and I recently found out my ACTH is very low, indicating that I am hypopituitary and have secondary adrenal insufficiency on top of everything. Have you had ACTH and AM Cortisol checked (at the same time)? Also, low ferritin/and B12 can cause air hunger, too, I believe.

Dianne