Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is With People?


Lexi

Recommended Posts

Lexi Enthusiast

So, I just have to vent for a minute. I went to my in laws for Easter, and there were a lot of my husband's family members there. They all know that I have Celiac Disease (and other food allergies). I usually bring some of my own food to make it easier on everyone. I always bring my own dessert because I KNOW it is safe. Anyway, as soon as I get it out of my bag, everyone starts gathering around me to see what I am eating, and they have to ask 20 questions about it. Also, I feel like everyone is watching me to see what I am going to put on my plate. If I don't take something, they always say "oh, that should be ok for you to eat" because everyone thinks if it doesn't specifically say wheat, then it is ok. It's really getting old!!!!! I'm so tired of explaining it, so I usually just don't say anything - but it's hard to hold my tongue at times. I saw a cute t-shirt online, and I sware I am going to wear it to the next family gathering. It says "Kiss My Gluten Free Ass" - funny!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

they're probably trying to not leave you out, and your food might look really good! :)

reminds me of this weekend - I made breakfast (eight strawberries and two bananas, chopped up, a handful of chopped pecans, handful of chopped walnuts, and a bit of shredded coconut. all topped with hemp milk. quite tasty. my husband - in a friendly tease, not mean spirited at all, called it "freaky hippie granola". :D)

samcarter Contributor

I know what you mean. We were supposed to go to my inlaws' this weekend, for Easter dinner. DH had already told them that we were bringing the ham, because he knows that gluten can hide in seasonings, and I know what to look for.

So my MIL calls me back when DH is at work and says "I was hoping to talk you out of bringing the ham." I told her, very sweetly, that i wouldn't DREAM of asking her to spend extra time in the grocery store reading labels and worrying about whether the company used gluten in the glaze, and that it would make me feel ever so much better about imposing on her with our company if we brought the ham. :D

She also always asks, about a billion times, "You're bringing your own bread, right?" I haven't bothered with gluten free bread in a while. The only good tasting ones are the ones I bake, but it takes for-freaking-ever. I'd rather just use gluten free crackers or tortilla chips honestly. Which I do, which irks her, for some reason, because while everyone else is eating a sandwich for lunch I'm eating tuna salad with tortilla chips. Whatever.

I think she thinks it's like a wheat allergy--my SIL has that--where they just avoid wheat, not barley or other things. Oy.

bigbird16 Apprentice

I like to think it's jealousy, because dang my gluten-free food looks and tastes good! :D

Love the shirt!

SGWhiskers Collaborator

Around my family, the meal inspection and food questions are out of curiosity and conversation. They are curious about what I can and can't eat just like I ask a friend about their new "Raw" diet, or vegetarian dish. (Not that ours is the same thing). It is just different from what I'm used to and I'm curious and fishing for ideas. It is like asking a single friend about her weekend out. Just trying to imagine spicing up my world.

Of course I also get the occassional "I don't know how you do it," but that seems more of a way to end the food conversation than a dig.

Wenmin Enthusiast

I have the same issues, but at work! We get a 20 minute lunch period and I always tend to pack leftovers from the night before in microwavable containers. My colleagues tend to eat those pre-prepared boxed lunches (Healthy Choice, Lean Cuisine, etc). I never ate those when I wasn't eating gluten free. YUK!

Everyday one colleague in particular oogles over my lunch, saying I want what she's having. She even told me she jokingly told her husband that if she wins the lottery, she wants to hire me to cook full time for her family.......Just what I would want to do. I love to cook when I have time....

Consider yourself lucky to have something they all are drooling over!!!

Love the shirt idea.

Lexi Enthusiast

I could definitely relate to what you were all saying. I don't know why it bothers me so much. I do know that people are curious about the foods I eat. But when I do bring a gluten free dessert to a get together, very few people eat it, and there are always jokes made about it (that's just the way my family is). They would much rather have the gluten filled cake or pie. Ever since the Celiac Disease Diagnosis, I tend to get a lot of anxiety at all social functions. To tell you the truth, I would rather just avoid them. However, I have a lot of family members that live near me, and I have to do it for my 3 kids. I think I would be such a loner if I didn't have children.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mysecretcurse Contributor

That is very strange indeed. I don't know, this doesn't really happen to me. Usually my family makes food I can eat and they understand my disease, because I spent plenty of time educating them lol. ;) Also, I want that shirt! Where did you see it?

julirama723 Contributor

My co-workers always stare and some always have to ask me "what are you eating today?" which for some reason, annoys the hell out of me, I think because it's a stupid question. If I'm sitting there eating a grilled chicken breast and green beans, isn't it *obvious* what I'm eating? It has nothing to do with being gluten-free. :)

I've never had complaints about my gluten-free foods brought to share with others. In fact, they always receive rave reviews! Of course, I don't eat "imposter" food (like gluten-free bread or crackers) but will make gluten-free desserts that everybody absolutely LOVES! My food is also dairy-free, but everybody loves the fact that I use coconut oil or ghee, because it tastes so darn good! My husband and I even have friends who love coming over for dinner because of our "gourmet cooking!"

samcarter Contributor

I've thought about this a bit more, and I'm convinced people are so darn curious about what we're eating because gluten is so prominent in the average Western diet. Bread, pasta, cookies, cake....most people can't even contemplate eating a gluten free diet, so they wonder what's left. That's what my elderly neighbor said, when I told her I had celiac.

"What's LEFT for you to eat?" she wailed on my behalf.

Her husband said, "Dang, she can eat meat, fruits, vegetables, I guess whatever ain't baked in an oven!" I had to laugh.

Sweetfudge Community Regular
I've thought about this a bit more, and I'm convinced people are so darn curious about what we're eating because gluten is so prominent in the average Western diet.

I think this is probably close to the truth. I get annoyed by my inlaws and family gatherings, but I've learned not to let it bother me (as much...). They all know I'm only going to eat what I feel safe eating, and I'll provide myself with enough to eat.

My dad was teasing me last time I was in town. I had made some cookies to put out on the coffee table, and after my family devoured them, my dad said "You know, I used to feel sorry for you having to be on this diet. But it just forced you to become an amazing cook! I don't feel that sorry for you anymore."

I think if you could find a recipe to master, something that tasted as good as "the real thing" that might be an option, if you WANT to bring something to share w/ the fam. I usually will ask whoever is hosting what desserts they already have planned, so I make something that's not already there.

Hang in there :)

sneezydiva Apprentice

I think a huge part of it is curiousity, especially if you've been gluten-free for awhile, and your health has obviously improved. It makes other people ask themselves if they could do what you're doing, and whether it would make them feel better. And pointing out other foods you can eat, it's more of a question for themselves, "Is that allowed?" I'm starting to see this with my inlaws, who have always been very supportive because my MIL has migraines triggered by certain foods. I think my MIL is on the cusp of trying to go gluten-free for herself, which IMHO, she should. I believe she does have gluten issues and possible celiac.

heathen Apprentice

Instead of seeing it as a swarming, you could see it as an opportunity to educate more people about what Celiac REALLY is. The same thing happens to me constantly--and letting my colleagues know that I'm ok with their asking questions has paid off. Another women in my class has been recently diagnosed, and she knew that she could ask me for help. We spent an afternoon after class at the local health food store going over what foods were good, etc.

yes, it's annoying to be the "freak show" at family events, but it's human nature to be curious about things that are different.

thleensd Enthusiast

Yeah, as much as I like to be the center of attention :D I'm getting really tired of saying the word "gluten"...So while I contemplate my endless patience in educating the world about gluten and cross contamination and reaffirm the importance of talking to the world about what I CAN eat, I'll vent, too.

I went to a memorial service yesterday, and all that my friends wanted to talk about was gluten. Seriously! Um.... gals.... um.... yeah, see the flowers and the pictures up there? Are we really going to have this conversation for an hour right now?

So, I just have to vent for a minute. I went to my in laws for Easter, and there were a lot of my husband's family members there. They all know that I have Celiac Disease (and other food allergies). I usually bring some of my own food to make it easier on everyone. I always bring my own dessert because I KNOW it is safe. Anyway, as soon as I get it out of my bag, everyone starts gathering around me to see what I am eating, and they have to ask 20 questions about it. Also, I feel like everyone is watching me to see what I am going to put on my plate. If I don't take something, they always say "oh, that should be ok for you to eat" because everyone thinks if it doesn't specifically say wheat, then it is ok. It's really getting old!!!!! I'm so tired of explaining it, so I usually just don't say anything - but it's hard to hold my tongue at times. I saw a cute t-shirt online, and I sware I am going to wear it to the next family gathering. It says "Kiss My Gluten Free Ass" - funny!
mysecretcurse Contributor
I went to a memorial service yesterday, and all that my friends wanted to talk about was gluten. Seriously! Um.... gals.... um.... yeah, see the flowers and the pictures up there? Are we really going to have this conversation for an hour right now?

I could definitely see how that could get annoying, but it's also sorta cool that people are wanting to know about it! No one asks me about it. <_<

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.