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Lexi

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Lexi Enthusiast

So, I just have to vent for a minute. I went to my in laws for Easter, and there were a lot of my husband's family members there. They all know that I have Celiac Disease (and other food allergies). I usually bring some of my own food to make it easier on everyone. I always bring my own dessert because I KNOW it is safe. Anyway, as soon as I get it out of my bag, everyone starts gathering around me to see what I am eating, and they have to ask 20 questions about it. Also, I feel like everyone is watching me to see what I am going to put on my plate. If I don't take something, they always say "oh, that should be ok for you to eat" because everyone thinks if it doesn't specifically say wheat, then it is ok. It's really getting old!!!!! I'm so tired of explaining it, so I usually just don't say anything - but it's hard to hold my tongue at times. I saw a cute t-shirt online, and I sware I am going to wear it to the next family gathering. It says "Kiss My Gluten Free Ass" - funny!


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tarnalberry Community Regular

they're probably trying to not leave you out, and your food might look really good! :)

reminds me of this weekend - I made breakfast (eight strawberries and two bananas, chopped up, a handful of chopped pecans, handful of chopped walnuts, and a bit of shredded coconut. all topped with hemp milk. quite tasty. my husband - in a friendly tease, not mean spirited at all, called it "freaky hippie granola". :D)

samcarter Contributor

I know what you mean. We were supposed to go to my inlaws' this weekend, for Easter dinner. DH had already told them that we were bringing the ham, because he knows that gluten can hide in seasonings, and I know what to look for.

So my MIL calls me back when DH is at work and says "I was hoping to talk you out of bringing the ham." I told her, very sweetly, that i wouldn't DREAM of asking her to spend extra time in the grocery store reading labels and worrying about whether the company used gluten in the glaze, and that it would make me feel ever so much better about imposing on her with our company if we brought the ham. :D

She also always asks, about a billion times, "You're bringing your own bread, right?" I haven't bothered with gluten free bread in a while. The only good tasting ones are the ones I bake, but it takes for-freaking-ever. I'd rather just use gluten free crackers or tortilla chips honestly. Which I do, which irks her, for some reason, because while everyone else is eating a sandwich for lunch I'm eating tuna salad with tortilla chips. Whatever.

I think she thinks it's like a wheat allergy--my SIL has that--where they just avoid wheat, not barley or other things. Oy.

bigbird16 Apprentice

I like to think it's jealousy, because dang my gluten-free food looks and tastes good! :D

Love the shirt!

SGWhiskers Collaborator

Around my family, the meal inspection and food questions are out of curiosity and conversation. They are curious about what I can and can't eat just like I ask a friend about their new "Raw" diet, or vegetarian dish. (Not that ours is the same thing). It is just different from what I'm used to and I'm curious and fishing for ideas. It is like asking a single friend about her weekend out. Just trying to imagine spicing up my world.

Of course I also get the occassional "I don't know how you do it," but that seems more of a way to end the food conversation than a dig.

Wenmin Enthusiast

I have the same issues, but at work! We get a 20 minute lunch period and I always tend to pack leftovers from the night before in microwavable containers. My colleagues tend to eat those pre-prepared boxed lunches (Healthy Choice, Lean Cuisine, etc). I never ate those when I wasn't eating gluten free. YUK!

Everyday one colleague in particular oogles over my lunch, saying I want what she's having. She even told me she jokingly told her husband that if she wins the lottery, she wants to hire me to cook full time for her family.......Just what I would want to do. I love to cook when I have time....

Consider yourself lucky to have something they all are drooling over!!!

Love the shirt idea.

Lexi Enthusiast

I could definitely relate to what you were all saying. I don't know why it bothers me so much. I do know that people are curious about the foods I eat. But when I do bring a gluten free dessert to a get together, very few people eat it, and there are always jokes made about it (that's just the way my family is). They would much rather have the gluten filled cake or pie. Ever since the Celiac Disease Diagnosis, I tend to get a lot of anxiety at all social functions. To tell you the truth, I would rather just avoid them. However, I have a lot of family members that live near me, and I have to do it for my 3 kids. I think I would be such a loner if I didn't have children.


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mysecretcurse Contributor

That is very strange indeed. I don't know, this doesn't really happen to me. Usually my family makes food I can eat and they understand my disease, because I spent plenty of time educating them lol. ;) Also, I want that shirt! Where did you see it?

julirama723 Contributor

My co-workers always stare and some always have to ask me "what are you eating today?" which for some reason, annoys the hell out of me, I think because it's a stupid question. If I'm sitting there eating a grilled chicken breast and green beans, isn't it *obvious* what I'm eating? It has nothing to do with being gluten-free. :)

I've never had complaints about my gluten-free foods brought to share with others. In fact, they always receive rave reviews! Of course, I don't eat "imposter" food (like gluten-free bread or crackers) but will make gluten-free desserts that everybody absolutely LOVES! My food is also dairy-free, but everybody loves the fact that I use coconut oil or ghee, because it tastes so darn good! My husband and I even have friends who love coming over for dinner because of our "gourmet cooking!"

samcarter Contributor

I've thought about this a bit more, and I'm convinced people are so darn curious about what we're eating because gluten is so prominent in the average Western diet. Bread, pasta, cookies, cake....most people can't even contemplate eating a gluten free diet, so they wonder what's left. That's what my elderly neighbor said, when I told her I had celiac.

"What's LEFT for you to eat?" she wailed on my behalf.

Her husband said, "Dang, she can eat meat, fruits, vegetables, I guess whatever ain't baked in an oven!" I had to laugh.

Sweetfudge Community Regular
I've thought about this a bit more, and I'm convinced people are so darn curious about what we're eating because gluten is so prominent in the average Western diet.

I think this is probably close to the truth. I get annoyed by my inlaws and family gatherings, but I've learned not to let it bother me (as much...). They all know I'm only going to eat what I feel safe eating, and I'll provide myself with enough to eat.

My dad was teasing me last time I was in town. I had made some cookies to put out on the coffee table, and after my family devoured them, my dad said "You know, I used to feel sorry for you having to be on this diet. But it just forced you to become an amazing cook! I don't feel that sorry for you anymore."

I think if you could find a recipe to master, something that tasted as good as "the real thing" that might be an option, if you WANT to bring something to share w/ the fam. I usually will ask whoever is hosting what desserts they already have planned, so I make something that's not already there.

Hang in there :)

sneezydiva Apprentice

I think a huge part of it is curiousity, especially if you've been gluten-free for awhile, and your health has obviously improved. It makes other people ask themselves if they could do what you're doing, and whether it would make them feel better. And pointing out other foods you can eat, it's more of a question for themselves, "Is that allowed?" I'm starting to see this with my inlaws, who have always been very supportive because my MIL has migraines triggered by certain foods. I think my MIL is on the cusp of trying to go gluten-free for herself, which IMHO, she should. I believe she does have gluten issues and possible celiac.

heathen Apprentice

Instead of seeing it as a swarming, you could see it as an opportunity to educate more people about what Celiac REALLY is. The same thing happens to me constantly--and letting my colleagues know that I'm ok with their asking questions has paid off. Another women in my class has been recently diagnosed, and she knew that she could ask me for help. We spent an afternoon after class at the local health food store going over what foods were good, etc.

yes, it's annoying to be the "freak show" at family events, but it's human nature to be curious about things that are different.

thleensd Enthusiast

Yeah, as much as I like to be the center of attention :D I'm getting really tired of saying the word "gluten"...So while I contemplate my endless patience in educating the world about gluten and cross contamination and reaffirm the importance of talking to the world about what I CAN eat, I'll vent, too.

I went to a memorial service yesterday, and all that my friends wanted to talk about was gluten. Seriously! Um.... gals.... um.... yeah, see the flowers and the pictures up there? Are we really going to have this conversation for an hour right now?

So, I just have to vent for a minute. I went to my in laws for Easter, and there were a lot of my husband's family members there. They all know that I have Celiac Disease (and other food allergies). I usually bring some of my own food to make it easier on everyone. I always bring my own dessert because I KNOW it is safe. Anyway, as soon as I get it out of my bag, everyone starts gathering around me to see what I am eating, and they have to ask 20 questions about it. Also, I feel like everyone is watching me to see what I am going to put on my plate. If I don't take something, they always say "oh, that should be ok for you to eat" because everyone thinks if it doesn't specifically say wheat, then it is ok. It's really getting old!!!!! I'm so tired of explaining it, so I usually just don't say anything - but it's hard to hold my tongue at times. I saw a cute t-shirt online, and I sware I am going to wear it to the next family gathering. It says "Kiss My Gluten Free Ass" - funny!
mysecretcurse Contributor
I went to a memorial service yesterday, and all that my friends wanted to talk about was gluten. Seriously! Um.... gals.... um.... yeah, see the flowers and the pictures up there? Are we really going to have this conversation for an hour right now?

I could definitely see how that could get annoying, but it's also sorta cool that people are wanting to know about it! No one asks me about it. <_<

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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