Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Are We Getting Gluttoned From?

songstressc

Contamination from Bins   

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

songstressc Apprentice
songstressc
Posted

My husband and i went gluten free end of Nov 08 Dec 1 ish - Today we were back at the doc for our latest test results. Initially my gliadin (SIgA) count was 12 when diagnosed his was 15 BUT TODAY our counts were higher 23 and 27! Shouldn't it being going down down down! We are wondering what we could be eating? I am frustated don't know what we are missing? We try to eat organic as much as the wallet lets us and as healthy as possible. We shop for fresh fruit and veggees regularly, eat soy or coconut yogurt - Eat, beans, lentils, rice etc. more vegetarian vegan than not but we do eat eggs. I buy flours labelled gluten free. Wondering Feels like I start to feel so much better and then wham again!

Some items we are wondering if we are making a mistake eating::::::::::

I have bought Jolly time popcorn this does not say anything about gluten free it says contains egg, soy and milk ingredients NOT wheat so??

To Bin or Not to Bin - Heck I started a Poll for those who only want to give quick feedback. To Grind or Not to Grind?????

We have always bought from bins and even when we were first diagnosed and fatigue was improving for both of us ; spoke to Whole Foods where we shop for certain items and they have shared their process with regards to bins; THEY DO NOT change bins ingredients they move the whole bin if they need it somewhere else ; they do remove bins. They even mark on some bins may contain wheat or do for example the flours, oatmeal etc. They have scoops for particular bins attached Not many say may contain wheat that are not wheat based.

We buy fresh ground peanuts we grind at whole foods on our home baked bread It is accross from any other bins and all products on same side are sealed.

I have bought things from the bins now that I think of it but never from the 'may contain wheat' bins.

What about Jams that don't say gluten free like Trader Joe's or WF fruit preserves lower sugar with fruit pectin -does not say may contain wheat etc. -should be okay then I think????

Anyone buy their Manchego Cheese - It is the only cheese we buy as I have a problem with dairy The cheese is a sheep cheese from Spain and yummy this lactose girl can eat it!

I know blue cheese can have wheat so..

We also buy the Only Egg whiles from Trader Joe's

I am going to contact Whole Foods and ask them again to check on the bins that we have used and the peanuts we grind.

For those out there just joining - I am still new at this and even though I get tired of the immense work etc. I am glad to find out the cause of my childhood illnesses. I read a post and say hey that's me too! I l was always throwing up as a kid/ not growing/ getting sick colds, infections and dental cavaties but the biggest obvious change for me is my nails; they were growing amazingly strong and long; I had to cut them! Now they have been breaking growing; Seems like it takes so long to get over a glutinous experience!

THIS SITE IS AMAZING I really don't know how I'd cope so well without the support of the generous people willing to share a thought or two. Thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748
    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      I have a lot to learn!  Thank you
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.