Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

May Is Celiac Awareness Month

Lisa

By Lisa
in Introduce Yourself / Share Stuff

Recommended Posts

Lisa Mentor
Lisa
Posted

Take a minute and let Congress know you would like their attention:

Open Original Shared Link[capwiz:queue_id]

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MaryJones2 Enthusiast
MaryJones2
Posted

Thanks Lisa!

brendygirl Community Regular
brendygirl
Posted

Thanks so much for posting! I sent the link to my whole email contact list. :)

Lisa16 Collaborator
Lisa16
Posted

Thanks Lisa!

I editeed the text and attempted to send he form. Sadly my representative does not accept emails.

Sigh.

But this is a fabulous idea.

Lisa

jerseyangel Proficient
jerseyangel
Posted

Done. Thanks Lisa :)

MaryJones2 Enthusiast
MaryJones2
Posted

Here's the text of the proposed resolution: Open Original Shared Link

Lisa Mentor
Lisa
Posted
  • Author

Please take a minute to fill this out and send it to your Representative. Thanks to those who have.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
Lov2BeMe Rookie
Lov2BeMe
Posted

This is great i sent this out to everyone I know!~

Spread the word.. knowlege is contagious!

LadyBugLuv Rookie
LadyBugLuv
Posted
Take a minute and let Congress know you would like their attention:

Open Original Shared Link[capwiz:queue_id]

thanks! sent mine in :)

wonder-woman143 Newbie
wonder-woman143
Posted

That was so easy! Thanks Lisa!

wonder-woman143 Newbie
wonder-woman143
Posted

I just recieved this email from my Congressman:

[Thank you for writing in support of the goals of National Celiac Awareness Month. This is an important issue, and I appreciate your input.

Indeed, celiac disease is significantly under diagnosed in this country, though officially nearly 1% of the population suffers from this disease. As noted in your email, the disease is caused by a reaction to gluten proteins that are often found in wheat products. The only effective treatment for celiac disease is a diet completely free of gluten and other gluten products. I agree with you that the public should be educated as to the causes and effects of this disease. I look forward to discussing this resolution with my colleagues, and will keep your thoughts in mind when it comes to a vote.

Please feel free to contact me in the future with your thoughts. It is always good to hear from you.]

Does anyone have a good response to this letter that I could send as a reply, now that I have my congressman's attention? I'm new to this since my husband and 3 (out of 4) children have just been diagnosed this month. Thank you for your help.

WW

digmom1014 Enthusiast
digmom1014
Posted

Done! Thanks Lisa!

mushroom Proficient
mushroom
Posted

I just received a reply from my congressman too. He included the information that "While celiac disease is the most common genetic disorder in the world, more research is needed to fully understand and properly treat celiac disease."

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,068
    • Most Online (within 30 mins)
      7,748
    Nature Gal
    Newest Member
    Nature Gal
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.