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May Is Celiac Awareness Month

Lisa

By Lisa
in Introduce Yourself / Share Stuff

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Lisa Mentor
Lisa
Posted

Take a minute and let Congress know you would like their attention:

Open Original Shared Link[capwiz:queue_id]

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MaryJones2 Enthusiast
MaryJones2
Posted

Thanks Lisa!

brendygirl Community Regular
brendygirl
Posted

Thanks so much for posting! I sent the link to my whole email contact list. :)

Lisa16 Collaborator
Lisa16
Posted

Thanks Lisa!

I editeed the text and attempted to send he form. Sadly my representative does not accept emails.

Sigh.

But this is a fabulous idea.

Lisa

jerseyangel Proficient
jerseyangel
Posted

Done. Thanks Lisa :)

MaryJones2 Enthusiast
MaryJones2
Posted

Here's the text of the proposed resolution: Open Original Shared Link

Lisa Mentor
Lisa
Posted
  • Author

Please take a minute to fill this out and send it to your Representative. Thanks to those who have.

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  • 3 weeks later...
Lov2BeMe Rookie
Lov2BeMe
Posted

This is great i sent this out to everyone I know!~

Spread the word.. knowlege is contagious!

LadyBugLuv Rookie
LadyBugLuv
Posted
Take a minute and let Congress know you would like their attention:

Open Original Shared Link[capwiz:queue_id]

thanks! sent mine in :)

wonder-woman143 Newbie
wonder-woman143
Posted

That was so easy! Thanks Lisa!

wonder-woman143 Newbie
wonder-woman143
Posted

I just recieved this email from my Congressman:

[Thank you for writing in support of the goals of National Celiac Awareness Month. This is an important issue, and I appreciate your input.

Indeed, celiac disease is significantly under diagnosed in this country, though officially nearly 1% of the population suffers from this disease. As noted in your email, the disease is caused by a reaction to gluten proteins that are often found in wheat products. The only effective treatment for celiac disease is a diet completely free of gluten and other gluten products. I agree with you that the public should be educated as to the causes and effects of this disease. I look forward to discussing this resolution with my colleagues, and will keep your thoughts in mind when it comes to a vote.

Please feel free to contact me in the future with your thoughts. It is always good to hear from you.]

Does anyone have a good response to this letter that I could send as a reply, now that I have my congressman's attention? I'm new to this since my husband and 3 (out of 4) children have just been diagnosed this month. Thank you for your help.

WW

digmom1014 Enthusiast
digmom1014
Posted

Done! Thanks Lisa!

mushroom Proficient
mushroom
Posted

I just received a reply from my congressman too. He included the information that "While celiac disease is the most common genetic disorder in the world, more research is needed to fully understand and properly treat celiac disease."

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
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      Question

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

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    • trents
      IBS-D vs Celiac

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