Feeling Leftout

[IxMissxMysticxPizza]

It really gets me down when I watch my friends eat their cheesey pizza at the mall or at lunch, I feel like I'm watching through a glass window or a bubble, I can't reach them. I can't eat the normal food like them. Or when I go to a party and people are devouring a delicious looking cake. Being different is hard, espically when your a teen so I started this topic so other teens can talk about it.

[Aroostook]

I felt that way too at first! Then I just started ordering around my Celiacs! Hamburger, no bun please! Then I pull a bun from my purse or hoodie pouch! Tater skins and cheese with bacon! At first the family was embarassed but I didn't care! I have to live too, and now they all laugh and support me! I have a great family who are supporting me! When I want pizza I make my own massive topping pizza at home and freeze what is left for another day! I have cookies, cake, donuts, and have adapted most of my recipes to my flour. Granted I am "old" (55) but I am just now starting to live. I have been sick for over 35 years and no one knew what was wrong. Now we do and I have time to make up for!! Drag your cookies along in your purse. Like I said, Pack a homemade hamburg bun in your purse too! Then you can enjoy too! Where there is a will there is a way! And you don't have to go without! If you can't find a good pizza recipe contact me and I'll share mine with you! Have a super day!

Starting my life over at 55! NIN's (for those who don't know that's Nine Inch Nails!) for ever! Living without pain for the first time in over 35 years! Aroostook, the CompUMom

[IxMissxMysticxPizza]

I felt that way too at first! Then I just started ordering around my Celiacs! Hamburger, no bun please! Then I pull a bun from my purse or hoodie pouch! Tater skins and cheese with bacon! At first the family was embarassed but I didn't care! I have to live too, and now they all laugh and support me! I have a great family who are supporting me! When I want pizza I make my own massive topping pizza at home and freeze what is left for another day! I have cookies, cake, donuts, and have adapted most of my recipes to my flour. Granted I am "old" (55) but I am just now starting to live. I have been sick for over 35 years and no one knew what was wrong. Now we do and I have time to make up for!! Drag your cookies along in your purse. Like I said, Pack a homemade hamburg bun in your purse too! Then you can enjoy too! Where there is a will there is a way! And you don't have to go without! If you can't find a good pizza recipe contact me and I'll share mine with you! Have a super day!

Starting my life over at 55! NIN's (for those who don't know that's Nine Inch Nails!) for ever! Living without pain for the first time in over 35 years! Aroostook, the CompUMom

thanks for the advice! i guess i could always bring alternatives to parties and stuff. like if im going to a place that has cake, i'll bring a gluten free candy bar or if im at quizno's or something i'll buy some chips. i do that sometimes and i feel less left out. but i haven't had pizza in years. i just cant seem to find a good gluten free pizza so if its not too much trouble, could ya send me ur recipe???? i miss that cheesy goodness very much! thanks again! p.s. nine inch nails rock.

[IxMissxMysticxPizza]

I felt that way too at first! Then I just started ordering around my Celiacs! Hamburger, no bun please! Then I pull a bun from my purse or hoodie pouch! Tater skins and cheese with bacon! At first the family was embarassed but I didn't care! I have to live too, and now they all laugh and support me! I have a great family who are supporting me! When I want pizza I make my own massive topping pizza at home and freeze what is left for another day! I have cookies, cake, donuts, and have adapted most of my recipes to my flour. Granted I am "old" (55) but I am just now starting to live. I have been sick for over 35 years and no one knew what was wrong. Now we do and I have time to make up for!! Drag your cookies along in your purse. Like I said, Pack a homemade hamburg bun in your purse too! Then you can enjoy too! Where there is a will there is a way! And you don't have to go without! If you can't find a good pizza recipe contact me and I'll share mine with you! Have a super day!

Starting my life over at 55! NIN's (for those who don't know that's Nine Inch Nails!) for ever! Living without pain for the first time in over 35 years! Aroostook, the CompUMom

thanks for the advice! i guess i could always bring alternatives to parties and stuff. like if im going to a place that has cake, i'll bring a gluten free candy bar or if im at quizno's or something i'll buy some chips. i do that sometimes and i feel less left out. but i haven't had pizza in years. i just cant seem to find a good gluten free pizza so if its not too much trouble, could ya send me ur recipe???? i miss that cheesy goodness very much! thanks again! p.s. nine inch nails rock.

[ambuh23]

I felt that way too at first! Then I just started ordering around my Celiacs! Hamburger, no bun please! Then I pull a bun from my purse or hoodie pouch! Tater skins and cheese with bacon! At first the family was embarassed but I didn't care! I have to live too, and now they all laugh and support me! I have a great family who are supporting me! When I want pizza I make my own massive topping pizza at home and freeze what is left for another day! I have cookies, cake, donuts, and have adapted most of my recipes to my flour. Granted I am "old" (55) but I am just now starting to live. I have been sick for over 35 years and no one knew what was wrong. Now we do and I have time to make up for!! Drag your cookies along in your purse. Like I said, Pack a homemade hamburg bun in your purse too! Then you can enjoy too! Where there is a will there is a way! And you don't have to go without! If you can't find a good pizza recipe contact me and I'll share mine with you! Have a super day!

Starting my life over at 55! NIN's (for those who don't know that's Nine Inch Nails!) for ever! Living without pain for the first time in over 35 years! Aroostook, the CompUMom

Where do you find these buns and things?? so far all i've found are some cookies and some breakfast bars. Basically the gluten free section at the ingles market. i cant cook, every time ive order around a menu item at a resturant they mess it up and i send it back and by the time i get it back it's either a)still worng or b)everybodys done and i gave up and go home. my family doesn't really cook i'm an only child and my mother pulls long shifts at work. my dad doesnt cook either. so i'm up the creek without a paddle...can i borrow your paddle??

[hannahp57]

I understand how you feel. i have had times at a restaurant where i will order a sandwich without the bread and the waitress looks at me like i am a freak. other times i'll get the sandwich with no bread and explain that i am allergic and ask for a salad with no croutons and they'll mess that up. then look annoyed when i ask for a fresh one!!

you'll start learning to cook more when you are older or just done paying the ridiculous prices! trust me, i only recently started baking and exploring...and its not so hard once you get the hang of it. i promise.

one good brand that makes sandwich buns in schar. you may find it on amazon perhaps.

here's some recipes that i know will turn out well if you ever do decide to try out baking.. of course it will require a special shopping trip because i have yet to find xanthan gum in a regular store..

Open Original Shared Link

https://www.celiac.com/gluten-free/index.ph...hl=pamela's (the very last post has a bread recipe)

it also mentions pamela's bread mix, which means you would only need to use a bread machine or mixer and oven. it is really a good bread. i liked it alot

Open Original Shared Link

a very good treat. you won't feel so bad about missing that cake!

i was diagnosed at sixteen. and i have a twin who is not gluten free and she refused to accept a gluten-free cake on our birthday...so have had to stare at my own cake without being able to taste it. eventually i decided it was time i could take care of myself. three years later (almost!) and i have made just about everything that i have ever stared at with jealousy... oh and one more recipe. poptarts are one thing that made me cry when i first changed to gluten free. if you're in the same boat give these a shot!

Open Original Shared Link

hope this all helps at least a little bit

[ambuh23]

we sell xanthum gum at ingles!!!! i work there by the way so you can find it there, most every store laid out the same so it should be on aisle 4 or you you flours if tehir gluten free section isn't on aisle 4.

Thank you so much for the recipes, i probably would've started cooking by now if my dad (who doesnt cook) would let me cook...confusing i know. Wow a twin without celiacs...now thats a tricky combo...i can't believe that they made you stare at a cake you couldnt touch....im sorry *HUG*

[vickysmores]

first, to the twin who has a non celiac twin- i

[hannahp57]

I dont know if this happens anywhere other than my hometown but here is a typical conversation when offered a beer at a party

"hey you wanna beer?"

me-"no thanks

"why not?"

me-im allergic

"Really? Thats weird. what are you allergic to?"

me-Wheat

"you're allergic to Weed?!"

me-NO. WHEAT!

"oh thats even worse... (and of course) I would DIE without wheat"

that makes me die a little inside every time i have it (haha just kidding). people are genuinely ignorant at times

haha i just had to throw that in. has anyone else ever been misunderstood to have said weed instead of wheat

[Angels~Exist]

It's kind of cruel that we all crave the food we aren't allowed to have! It's worse when someone shoves it in your face. I pretty much gave up on eating out anywhere. Either I take my own food or wait to eat until I get home. I have a celiac card but people just treat me weird when I use it. Sometimes I'm just not in the mood to go through all that!

[G-freegal12]

I know what you mean about being a "freak" but, I hope that once we are older, we will have explained this disorder to so many people everyone will know about it!

[tepy]

I dont know if this happens anywhere other than my hometown but here is a typical conversation when offered a beer at a party

"hey you wanna beer?"

me-"no thanks

"why not?"

me-im allergic

"Really? Thats weird. what are you allergic to?"

me-Wheat

"you're allergic to Weed?!"

me-NO. WHEAT!

"oh thats even worse... (and of course) I would DIE without wheat"

that makes me die a little inside every time i have it (haha just kidding). people are genuinely ignorant at times

haha i just had to throw that in. has anyone else ever been misunderstood to have said weed instead of wheat

yea i get that HEAPS, people makes jokes about me beingallergic to food in general saying that 'tepy is allergic to evreything' when someone offers me a cookie or something... its almost like people act like i am a hassle to be around-what the hell to the think its like to live this way..ignorant f***************

[hannahp57]

yea i get that HEAPS, people makes jokes about me beingallergic to food in general saying that 'tepy is allergic to evreything' when someone offers me a cookie or something... its almost like people act like i am a hassle to be around-what the hell to the think its like to live this way..ignorant f***************

oh yeah that too.. for my a while my friends and people at my high school would always say "oh yeah hannah is allergic to lunch" and crap like that. and for a while at work they called me the girl allergic to everything "even water"

but that last one made me laugh water allergy

[UnhappyCoeliac]

I get where you are coming from

I am 22 but it definitely is socially awkward being young with this disease.

Instead of being ridiculed for being different or not being able to have something I simply dont let on I have it and sometimes refuse food I had one friend saying "oh just because you cant eat this, thats why you think it craps"

If I act like I can have it but then refuse it, it works better for me, good luck its tough

[Jaded]

I used to feel that way all the time and sometimes still do. Especially at family gatherings. Like on thanksgiving when they make the pie ;and the stuffing and you can't have any you have to bring your own. At my best friends wedding i had to make a cake and rolls for me and my parents to take. luckily her cousin was celiac and we saved her from having to make one herself. It was weird cuz when i told her mom i would make a cake she hugged me. but yeah i know. what i thought was worse is when my friends parents make a big deal when they eat. They yell at her for eating when i can't. that pisses me off. I like it better when she just teases me. like making sugar cookies and talking about how good they are.

[Jaded]

thanks for the advice! i guess i could always bring alternatives to parties and stuff. like if im going to a place that has cake, i'll bring a gluten free candy bar or if im at quizno's or something i'll buy some chips. i do that sometimes and i feel less left out. but i haven't had pizza in years. i just cant seem to find a good gluten free pizza so if its not too much trouble, could ya send me ur recipe???? i miss that cheesy goodness very much! thanks again! p.s. nine inch nails rock.

Have you ever tried chebe bread? it makes a great pizza crust and you can add cheese and make a cheese pizza. it's awesome!

[Jaded]

I understand how you feel. i have had times at a restaurant where i will order a sandwich without the bread and the waitress looks at me like i am a freak. other times i'll get the sandwich with no bread and explain that i am allergic and ask for a salad with no croutons and they'll mess that up. then look annoyed when i ask for a fresh one!!

you'll start learning to cook more when you are older or just done paying the ridiculous prices! trust me, i only recently started baking and exploring...and its not so hard once you get the hang of it. i promise.

one good brand that makes sandwich buns in schar. you may find it on amazon perhaps.

here's some recipes that i know will turn out well if you ever do decide to try out baking.. of course it will require a special shopping trip because i have yet to find xanthan gum in a regular store..

Open Original Shared Link

https://www.celiac.com/gluten-free/index.ph...hl=pamela's (the very last post has a bread recipe)

it also mentions pamela's bread mix, which means you would only need to use a bread machine or mixer and oven. it is really a good bread. i liked it alot

Open Original Shared Link

a very good treat. you won't feel so bad about missing that cake!

i was diagnosed at sixteen. and i have a twin who is not gluten free and she refused to accept a gluten-free cake on our birthday...so have had to stare at my own cake without being able to taste it. eventually i decided it was time i could take care of myself. three years later (almost!) and i have made just about everything that i have ever stared at with jealousy... oh and one more recipe. poptarts are one thing that made me cry when i first changed to gluten free. if you're in the same boat give these a shot!

Open Original Shared Link

hope this all helps at least a little bit

eh i don't like to bother with any recipe that has the xanathan gum. or shortening. did you know betty crocker has three gluten free recipes now? chocolate chip cookies, yellow cake (which we make donuts out of) and devils food cake.

[exsandohs163]

I totally understand..I was diagnosed when I was 19 and before that I always went to random little restaurants with my friends. Then BAM I had to find places where I could eat and not get sick. But luckily my friends are awesome and we go to places that offer gluten-free food. Like UNO's (love their veggie pizza), Qdoba's, five guys burgers and fries, and places like that. I was told that I had celiac when I was 16 and also told that I didn't need to worry about it. But I tried the diet anyway. I remember eating lunch at school and my friends ate their pizza and spicy chicken sandwhiches and I sat there eating rice cakes and carrots. Now it seems like you can find ALMOST anything gluten-free. I buy kinninik(sp?) pizza crusts and they are amazing. lol It will get easier...I find non-gluten-free stuff disgusting now...lol

[DownWithGluten]

It'll make for awkward times at work, too. I started it in college but during that semester I didn't have many friends so, lol, maybe that worked out in my 'favor' gluten wise. But there have been several times I feel left out food wise and...it's always awkward. I'm glad when people do react more like "wow you can't eat anything!" because at least then they understand. Instead of "Well you can have a little then, right?" and don't seem to understand how strident it is. I've had some people even get annoyed that I turned down their food at work b/c I wasn't sure if it was gluten free.

So yeh, I feel your pain. It sucks.

[greenmatter]

Great tips guys!!

[Fitze082]

Where do you find these buns and things?? so far all i've found are some cookies and some breakfast bars. Basically the gluten free section at the ingles market. i cant cook, every time ive order around a menu item at a resturant they mess it up and i send it back and by the time i get it back it's either a)still worng or b)everybodys done and i gave up and go home. my family doesn't really cook i'm an only child and my mother pulls long shifts at work. my dad doesnt cook either. so i'm up the creek without a paddle...can i borrow your paddle??

The brand Chebe makes and amazing pizza crust mix that is easy to make If you have a whole foods market you should definitely go there. If not, order offline. When I was first diagnosed there wasn't that much available and we had to order everything offline. A lot of it was even from canada. Get a good pasta. I love the brand tinkyada. Or try not to focus on what you cant have but what you can have. Eat simple things at home like salad or cereal. It won't be so bad to be around people eating it after a while. Its been 6 years for me now and the smell of breads makes me sick. If you make sure your friends know they tend to be understanding. Or challenge them to try eating gluten free. Oh by the way, if you ever send back a salad make sure you tell them to make it fresh or they might just pick the croutons out and send it back to you

[Fitze082]

yea i get that HEAPS, people makes jokes about me beingallergic to food in general saying that 'tepy is allergic to evreything' when someone offers me a cookie or something... its almost like people act like i am a hassle to be around-what the hell to the think its like to live this way..ignorant f***************

I had a friend like that but she never meant it in a teasing way. She was learning what I couldnt eat and in the beginning it seemed like everything. so she used to say I was allergic to everything and its mother. Kinda weird but it made me laugh about the situation.

[poiuyanthony]

i feel your pain

i used to love pizza soup cake and all that good stuff

and bam its all taken away

i thought it would just pass over but now, after about a year, i realized that its not going anywhere

my friends STILL bug me about it and it makes me furious

i feel like the odd one out

i feel so abnormal and helpless

but dont worry theres hope

ive learnt to deal with it by starring for 10 mins at the display menu and piece together an original piece of work that everyone would die to have (:

you just have to make the best of it since theres nothing we can do for now...

no one really know how hard it is except us

everyone has there own way of dealing with it

you can cook your own favorite food too

and try different gluten free flours to see which one tastes good

there are alot of beauties in life and food is not up there

you have to live an exciting life and learn to eat all u can so maybe your meal might not be different from others if you go to the mall caffeteria

ever since celiac i have taken a very good liking into chicken for some odd reason... but hey... whatever works

all you have to do is try everything now and find out what suits you best

i myself am going through the same exact feeling and to sum it all up

being different is awesome sometimes

and being original and sticking out can be one of lifes greatest achievements <3

it has really opened my eyes

were all here for you (:

[kareng]

If you have a Godfathers pizza near you, check to see if they do gluten free. I haven't had it yet but have checked with the company & it should be done right. I have a 17 year old son who is not Celiac (I am) & he has a friend that he is worried about. She is Celiac & doesn't take care of herself. He tries to get her to eat right & now that I am diagnosed, he has some ideas of places the gang can go & she can safely eat. Also, most good junk food - candy & chips are gluten free, so contribute to the gathering. Good luck. If you need friends or extra moms, we are here for you & we don't care about your curfew.

[Rebecca Madrid]

I felt that way too at first! Then I just started ordering around my Celiacs! Hamburger, no bun please! Then I pull a bun from my purse or hoodie pouch! Tater skins and cheese with bacon! At first the family was embarassed but I didn't care! I have to live too, and now they all laugh and support me! I have a great family who are supporting me! When I want pizza I make my own massive topping pizza at home and freeze what is left for another day! I have cookies, cake, donuts, and have adapted most of my recipes to my flour. Granted I am "old" (55) but I am just now starting to live. I have been sick for over 35 years and no one knew what was wrong. Now we do and I have time to make up for!! Drag your cookies along in your purse. Like I said, Pack a homemade hamburg bun in your purse too! Then you can enjoy too! Where there is a will there is a way! And you don't have to go without! If you can't find a good pizza recipe contact me and I'll share mine with you! Have a super day!

Starting my life over at 55! NIN's (for those who don't know that's Nine Inch Nails!) for ever! Living without pain for the first time in over 35 years! Aroostook, the CompUMom

I am in my first year of university and have had some mild symptoms since I was young, but just started developing severe symptoms over the past few years. After many doctors telling me i was tired, or depressed, I got annoyed and started heading to my own diagnosis. I came to my next appointment and told the doctor exactly what to test me for. Just happened to be right.

Im living provinces away from home and in a residence building with 102 other people, just 3 weeks into my gluten-free diet. I eat at a dining hall with everyone else. They have tried to help me by ordering some bread for me, and some cereal, they also have some pasta to make me lasagna. The problem is I can't go a meal without someone commenting on my "weird" food. It's impossible to avoid.

I'm learning to cope with being different at my meal hall, but the hardest part for me is social time. The house does a lot of events together, karaoke nights, open mic, dance nights, and many other alcoholic events. I have had some issues with finding things to drink at bars, pubs, or even the liquor store as the internet's information often contradicts itself. After so long being chronically sick, im scared to touch anything that may contain gluten and live off mainly salad.

After living the same way for so many years, is there any advice you can give me so I can go out with my friends and not feel so different? It would be nice to enjoy a night the way i used to, without the comments, weird looks and sickness.