Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long To Expose Child That Has Not Been Exposed


marmar

Recommended Posts

marmar Newbie

My daughter has never been exposed to gluten but I want to get her tested and our labs/insurance only do the antibody test. She is 18 months old. Does anyone know how much gluten (I think it's half a slice of bread per day) and for how long she needs to be exposed before the test will work?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

I believe it's the equivalent of four slices of bread per day for at least a few months.

psawyer Proficient

I've heard a smaller quantity than four slices, but I don't know if half a slice is enough. Mind you, total body weight may be a factor. A child of 18 months would likely need less in absolute terms to trigger the same magnitude of immune reaction. Three or more months would still be the duration, I would think.

ravenwoodglass Mentor

The rate of false negatives in young children is high. For that reason in countries that screen routinely they wait until age four to do so and then they test again at puberty if the child has no symptoms. Is she is gluten free because your home is gluten free or is she gluten free because she developed issues when you added gluten in previously?

Jestgar Rising Star
The rate of false negatives in young children is high. For that reason in countries that screen routinely they wait until age four to do so and then they test again at puberty if the child has no symptoms. Is she is gluten free because your home is gluten free or is she gluten free because she developed issues when you added gluten in previously?

I agree with raven. You could keep her gluten-free until she's older, or give her gluten now and see if she reacts. If you're worried about damage without symptoms, don't change her diet.

  • 1 month later...
marmar Newbie

We've started giving her some gluten every day. I'm a celiac and am worried she may have inherited it.

So far, she hasn't had any symptoms but even if she does test negative I may keep her gluten

intake low until she's older. Why does the antibody test not work in young children?

TotalKnowledge Apprentice
We've started giving her some gluten every day. I'm a celiac and am worried she may have inherited it.

So far, she hasn't had any symptoms but even if she does test negative I may keep her gluten

intake low until she's older. Why does the antibody test not work in young children?

I would think it would be safer to assume she has it. There really is no reason that I can think of that a child that young *should* eat wheat. It can be avoided much easier than adults can avoid it.

Right now she can't tell you how the introduction of gluten is effecting her. An older child can more easily express their discomfort with any of the problems that can be associated with gluten intolerance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jana315 Apprentice

I'm not a DR. but I'm gonna guess that antibody results often give false negatives in little ones because, basically, their immune system is very immature. For instance, if you speak to a seasoned allergist or Dr., they will tell you that babies less than 12 months of age, very, very rarely can have true allergies to any trigger - their bodies just don't produce mature immune system responses. So, this may apply to both Iga & Igg antibodies - just a guess on my part.

Jana

LDJofDenver Apprentice

One thing you might consider is genetic testing (now or a couple years down the road).

Mainly because it would show whether or not she carries the gene for it. If she doesn't, gluten may be something she doesn't need to worry about in her dietary future.

Here's a link to 2 articles about Genetic Testing:

Open Original Shared Link

and 10 Facts About Genetic Testing:

https://www.celiac.com/articles/21567/1/Ten...ting/Page1.html

Here are a couple links to places where you can get the tests done:

www.kimballgenetics.com and www.enterolab.com

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      4

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - Scott Adams commented on Scott Adams's article in Product Labeling Regulations
      2

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    3. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      nothing has changed

    4. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is it gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.