Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Bloating Is So Bad! Please Reply Anyone


Raynee

Recommended Posts

Raynee Rookie

I posted recently with my symptoms but for those who did not see it. For 8+ years I have basically looked pregnant but am not. The bloating is so bad and uncomfortable. The gas is horrible at night. I have tried every diet excpet gluten free. I see a doctor next week. I also have eczema, migraines, FATIGUE!!!!, stomach aches constantly, not much diarrhea, but loose stools. I had terrible neurological problems about ten years ago. I also have muscle weakness (upper body), ocular migraines, back pain, etc, etc. My question - it seems the last week my stomach has grown even more (if that is possible). I am uncomfortable standing, sitting, laying - just being awake. Should I try to get in earlier to the doctor even though I only have a week. I mean it has been going on for years now what is another week right. Maybe I am just getting anxious to get there. I am terrified the tests are going to be negative and everyone (family and friends) will think I am exaggerating - Oh, I am 39 years old and tried to get pregnant for 15 years with all the drugs and procedures. Never did and they have no idea why - my husband was tested and fine. Too old now! That would break my heart more than anything to find out if I had just stopped eating gluten I could have had a baby!

DO YOU THINK I AM CELIAC? IF NOT WHAT????? THIS IS MAKING ME CRAZY!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Twiggy Rookie

Hi,sorry i dont have any advice for you but i couldnt red and not post.I am sorry you havent been able to concieve a baby,it would be heartbraking to think it could have been diferent with a diagnosis of coeliac :( i wish you well and hope you get to the bottom of your problems/symptoms (((((hugs to you))))))

ang1e0251 Contributor

I posted recently with my symptoms but for those who did not see it. For 8+ years I have basically looked pregnant but am not. The bloating is so bad and uncomfortable. The gas is horrible at night. I have tried every diet excpet gluten free. I see a doctor next week. I also have eczema, migraines, FATIGUE!!!!, stomach aches constantly, not much diarrhea, but loose stools. I had terrible neurological problems about ten years ago. I also have muscle weakness (upper body), ocular migraines, back pain, etc, etc. My question - it seems the last week my stomach has grown even more (if that is possible). I am uncomfortable standing, sitting, laying - just being awake.

These can all be symptoms of celiac disease or GI. That doesn't mean that is your dx, it means it is a possibility.

Should I try to get in earlier to the doctor even though I only have a week. I mean it has been going on for years now what is another week right. Maybe I am just getting anxious to get there.

If it will give you peace of mind, do try to get into the dr sooner. Insist that they run a full celiac panel. It's a blood test and they can draw bood right away. Try to get your dr to schedule you for an endoscopy with a GI dr. It's not necesary to wait for the blood results to schedule the procedure when you are suffering. If the tests are negative you still need to find out what is wrong. Your dr might not want to do this before the test results are in, but ask anyway, you never know.

I am terrified the tests are going to be negative and everyone (family and friends) will think I am exaggerating -

Even with positive test results, your family may have a hard time with it. But a real dx should give you a lot of peace of mind and put you on the road to recovery.

DO YOU THINK I AM CELIAC? IF NOT WHAT????? THIS IS MAKING ME CRAZY!

You are NOT crazy. You are sick. You may have celiac disease or gluten intolerance. But no matter what, your symptoms are real and are like many I have had. Keep writing and telling us how you are doing. We will always listen to you and reply to your questions.

GFinDC Veteran

While you are waiting for the Dr, you could try eliminating all sugar and dairy from your diet. That might help cut down on the gas and bloating. I sometimes eat salty olives when gassed up and it helps a bit. And simethecone (Gas-x, Phazyme) helps some too. A pro-biotic might or might not help, not sure on that. Stretching excerizes can help too.

Salax Contributor

I would recommend Gas-X as well. I feel for ya. Perhaps eating lighter meals (eggs, soup, etc) without the dairy and sugar as someone sugested would help? I also use vernors ginger ale. Ginger is soothing to the stomach. Peppermint pills are another soother.

Best of luck to you.

strawberrynin Newbie
I would recommend Gas-X as well. I feel for ya. Perhaps eating lighter meals (eggs, soup, etc) without the dairy and sugar as someone sugested would help? I also use vernors ginger ale. Ginger is soothing to the stomach. Peppermint pills are another soother.

Best of luck to you.

Along with all of these great solutions...one thing that always helped me feel a little more comfortable with gas pains was to lay on my right side and curl up. It helps move food/gas along the tract more efficiently.

GFinDC Veteran
Along with all of these great solutions...one thing that always helped me feel a little more comfortable with gas pains was to lay on my right side and curl up. It helps move food/gas along the tract more efficiently.

I used to do that too! I'd lay on my left side for 15 minutes, then right side for 15 minutes, back, and forth, sometimes all night. That and stretching bending any way at all too. It' s strange way to get food moving through gut but better than nothing. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SLB5757 Enthusiast

I know that water makes gas pains feel worse - but it would get the food moving out of your body a little quicker. I always had more severe pain when I layed on my left side so I always sleep on my right side. Walking/any movement will help with the gas pains. If it's bloating you are talking about you almost have to wait until the food passes through your body. I was always unable to pass gas so it made my gas pains terrible. If I took a tums - even though I didn't have severe acid issues - it always made me "pass gas" within about 10-15 minutes which was what I needed to do to feel better. Gas-X may be a better alternative to tums - but tums always made me pass gas instead of only belching.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.