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Periods Off Diet Do They Really Have An Impact?


UnhappyCoeliac

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UnhappyCoeliac Enthusiast

Been of my gluten-free diet for a week now, indulging in any normal food I feel like. I am returning tommorow as my symptoms are fairly limited but I have been naturally slipping more, and a touch of dirhea.

Anyone I will go back on for 4-6mths + now.

At some point this rebellion builds up though, sick of policing food, sick of not feeling normal, sick of being stared at while eating bunless burger, sick fo REGULATION of my life. So hence I go crazy eating all my former favourite foods, then after a week or so I worry about damage I am doing and I hop back on the wagon

How will this affect me? Doc told me he has diagnosed someone 88 with celiac so this guy had had a long life with it not regulating diet at all. I ask because I am travelling oseas for the first time soon, and am most likely not going to be missing out on the taste of the world due to this disease. I will follow it up by 4-6mths each side gluten free though.

My last test result said I had fully recovered besides slightly raised anti bodies, that was in 3mths of GR so yeh someone talk to me, I am sure other people must do this as well, maybe not on this site but three people I have met all in RL at all times say they dumped the diet somewhat

Is a week off really going to do much? :(:huh:<_<


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The Fluffy Assassin Enthusiast
Been of my gluten-free diet for a week now, indulging in any normal food I feel like. I am returning tommorow as my symptoms are fairly limited but I have been naturally slipping more, and a touch of dirhea.

Anyone I will go back on for 4-6mths + now.

At some point this rebellion builds up though, sick of policing food, sick of not feeling normal, sick of being stared at while eating bunless burger, sick fo REGULATION of my life. So hence I go crazy eating all my former favourite foods, then after a week or so I worry about damage I am doing and I hop back on the wagon

How will this affect me? Doc told me he has diagnosed someone 88 with celiac so this guy had had a long life with it not regulating diet at all. I ask because I am travelling oseas for the first time soon, and am most likely not going to be missing out on the taste of the world due to this disease. I will follow it up by 4-6mths each side gluten free though.

My last test result said I had fully recovered besides slightly raised anti bodies, that was in 3mths of GR so yeh someone talk to me, I am sure other people must do this as well, maybe not on this site but three people I have met all in RL at all times say they dumped the diet somewhat

Is a week off really going to do much? :(:huh:<_<

You risk dying painfully of intestinal cancer. Up to you, of course.

tarnalberry Community Regular

Yup, your chances of intestinal cancers, blood cancers (e.g. lymphoma), and nutritional deficiencies (e.g. aenemia and osteoporosis), and developing other auto-immune conditions (like type 1 diabetes), all go up. In some cases, significantly. It's absolutely your choice, but no matter how careful you are, there is a risk of contamination and microscopic amounts of gluten getting in to your body every day. Your body has to repair the damage caused by this, and can likely take care of it, but then giving it this huge insult... Eh... It's not without it's consequences.

(Don't let one anecdotal piece of evidence fool you. Plenty of people die *earlier* due to celiac. Average decrease in life span due to untreated celiac? 10 years.)

Mrs. Smith Explorer

Believe me, if I had found this out a lot sooner, like you I would have done it in a second and saved myself and my family a ton of heart ache and medical bills! I however did not know until I was very ill, couldnt have babies, and very deficient. I would not recomend going back on gluten AT ALL....trust me its not worth it. You should feel lucky that you are so young and can save yourself a lot of pain and misery because it will only get worse. I felt great at 22 and by 28 I was in declining health fast! 2yrs later, I am just now getting back my life. DONT DO IT!

ang1e0251 Contributor

If I recall your main reason for testing were neurological problems affecting your gait and strength. You were afraid of MS and relieved when the diet helped these problems. Do I have your story?

So I guess you have to take yourself back to that moment when you were your sickest and most scared. Is that where you want to be again? I know, you don't like to refer to it as sick because your symptoms were mostly away from the gut. But you were sick and that's what you need to admit to yourself.

The problem with see-sawing back and forth with your health is you don't have a little window into your insides where you can see when damage is done. It just sits there rather silently then gives you the Big Whammy! Would you put a little sugar in the gas tank of your car for a week and then if it doesn't gum up too bad stop doing that for awhile hoping everything will be OK? You wouldn't because an engine can't run on sugar as fuel. It will damage the engine. Your engine can't run on gluten. It will damage it. Your body has been telling you that but you want your own way and don't want to listen to it. Your body will find a more drastic and, heaven forbid, maybe permanant way to get your attention in the long run.

JNBunnie1 Community Regular

If it helps, I can give you a graphic description of what it was like to watch my father die of leukemia. I promise, you don't want to go there.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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