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Burping & Breathing

Foxfire62

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Foxfire62 Newbie
Foxfire62
Posted

I am a recovering celiac, dx in 08-08. My villi went from severely to mildly atrophied/blunted. Right now, I am experiencing problems when drinking. I drink water, and I have been burping a lot and feeling almost like a lump in my throat. When I get this, my blood pressure appears to drop, and I feel tired. I don't understand why that is. I did have back-up/constipation problems, but I'm now having daily BMs.

Has anyone else experienced anything similar?

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tarnalberry Community Regular
tarnalberry
Posted

have you talked to your doctor about this? i vaguely recall this being something specific - when the blood pressure drop is included. it's not all that uncommon to get a fair amount of burpiness if you happen to swallow a lot of air when you're drinking, but if you're avoiding swallowing air, it's a bit unusual.

GlutenGuy36 Contributor
GlutenGuy36
Posted
I am a recovering celiac, dx in 08-08. My villi went from severely to mildly atrophied/blunted. Right now, I am experiencing problems when drinking. I drink water, and I have been burping a lot and feeling almost like a lump in my throat. When I get this, my blood pressure appears to drop, and I feel tired. I don't understand why that is. I did have back-up/constipation problems, but I'm now having daily BMs.

Has anyone else experienced anything similar?

Yes , I have the exact same thing happening to me. I feel like there is a lump in my throat and sometimes it is hard to swallow. I have hypothyroidism and Celiac Disease and a herniated disc in my back plus a ton of symptoms from the Celiac. Some have lessened but I still have alot and I was diagnosed July 14th 2008.

I was always worried that I had something worse. I had tons of Mris, cat scans, seen a hemotologist, endocrinologist etc. I was eating out at mcdonalds for a long time just getting a hmburger without the bun. Probably not a good idea at all. To many cross contamination issues to deal with. I feel like I should be further along in my healing. The lump in my throat thing seems to be far worse after I get glutened though. <Ted>

ang1e0251 Contributor
ang1e0251
Posted

Guys, pleased have your dr check this. My friend just had surgery last week for a cancerous thyroid. Her main symptom was trouble swallowing pills and food. She pushed her dr and he agreed to a sonogram of her thyroid. That showed enlargement which caused them to take a needle biopsy then to surgery. Just make sure you are not in her shoes. At first her dr didn't want to do anything about it. Get it check thoroughly.

Ariauna Apprentice
Ariauna
Posted
Guys, pleased have your dr check this. My friend just had surgery last week for a cancerous thyroid. Her main symptom was trouble swallowing pills and food. She pushed her dr and he agreed to a sonogram of her thyroid. That showed enlargement which caused them to take a needle biopsy then to surgery. Just make sure you are not in her shoes. At first her dr didn't want to do anything about it. Get it check thoroughly.

This is very interesting Ang again you are very informed and a great asset of information. I too have trouble swallowing sometimes and with some foods if they aren't super moist I have problems swallowing them. I have no problem with cereal and saucy stuff but if my chicken isn't really moist I will have problems and then at other times I will just be sitting not eating or anything and will try to swallow and I have to use a lot of effort to get that initial swallow. Weird I think but I really hadn't thought much of it, just figured it was from my GERD... maybe I will have the thyroid check.

GFinDC Veteran
GFinDC
Posted

I have trouble swallowing sometimes too. I get the old glass of water going when that happens. For me it seems to happen further down nearer the stomach, not in the throat. I do have a couple thyroid nodules and a cyst. The doc told me there are different kinds of nodules. Some are active and some are not, and some are calcified. He said the calcified ones tend to be come cancerous a little more often than the non-calcified ones. But the rate of developing cancer is low.

This emedicine article says the cancer rate of nodules is fairly low. And that about 50% of adults have them.

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SGWhiskers Collaborator
SGWhiskers
Posted

Your symptoms are consistent with not fully controlled GERD. They may also be from other causes, so talk to your doctor.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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