Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg! I Can't Do This.. :(

Vlo1980

By Vlo1980
in Coping with Celiac Disease

Recommended Posts

Vlo1980 Rookie
Vlo1980
Posted

I can't survive on such a strict diet! I'm having a really hard time adjusting and I can't go for very long without screwing up and eating stuff I shouldn't. I don't have time to cook my own meals because I pretty much work 24/7 so I don't know what to do. This is really discouraging and is the last thing I needed right now.

:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TiffLuvsBread Rookie
TiffLuvsBread
Posted

Don't you feel sick as a dog when you eat gluten!?!? I can't imaging eating gluten on purpose, the pain and anguish I would go through for the sake of eating a cookie - absolutely not worth it.

Perhaps you are asymptomatic?

I guess it's hard to tell you to just think about your health - if you are sure you have Celiac Disease or gluten intolerance - because there are people out there that smoke every single day knowing it is killing them.

Is it really such a strict diet for you? It sounds like you eat a lot of fast food or grab your lunch instead of packing it due to time restrictions. For me it's easy to grab a couple pieces of gluten-free bread and some turkey and assemble it later, or pack a salad, maybe get some frozen gluten-free items from the grocery store that you can heat up at work. I replaced all my favorite things (bread/pasta/cereal) with gluten-free versions and it's all the same to me. I just can't eat pizza out at a restaurant (unless they have gluten-free) and I can't eat a brownie that someone brings into work. You have to practice will-power and you will FEEL empowered. It will help you along the way to think about how proud you are of yourself and mentally reward yourself for being good.

The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
I can't survive on such a strict diet! I'm having a really hard time adjusting and I can't go for very long without screwing up and eating stuff I shouldn't. I don't have time to cook my own meals because I pretty much work 24/7 so I don't know what to do. This is really discouraging and is the last thing I needed right now.

:(

Breathe. Relax. Try your best, and try not to worry about it. Check your local health food stores for gluten-free frozen foods. Trader Joe's also has a good selection. The risk of cross-contamination is high, but I've done it and survived.

Just do the best that you can. Read this message board for tips, and ask for help. People here are quick with helpful suggestions and support. You can do it, it isn't as hard as you think, and it gets easier quickly. Good luck to you and welcome to the board.

Edit: Edited out the Taco Bell reference, as the OP doesn't eat fast food and a poster on the Restaurants board at this site points out that Taco Bell crunchy tacos are not gluten free. Good to know.

missy'smom Collaborator
missy'smom
Posted

Go to restaurant websites and print out their gluten-free menus/suggestions. Put them in a folder that has clear pages that you can slide the papers into so that you have your own gluten-free menu book. Keep it in the car or with you so that you can refer to it. Outback has a good gluten-free menu and has curbside to go so if you have one near, you can call in your order and pick it up on the way home. Stick with those chains that are trained well and be clear in your ordering/instructions to avoid CC. Keep a stock of ready to eat stuff at home-canned soups, chili etc. Healthy Choice chicken and rice soup is gluten-free. Invest in some gear for portable lunches. You can buy a thermos and take things like the soup and chili to work for lunch. Consider home appliances that might help-an automatic rice cooker, a crockpot, a bread machine. There are grab and go options for breakfast-various fruit and nut or cereal type bars. What would you normally eat? Perhaps we can help you come up with similar doable options. There are really many more options available than it would seem at first!

Vlo1980 Rookie
Vlo1980
Posted
  • Author

No, I don't eat fast food at all and I'm actually a health nut. I weigh 107lbs and am in very good shape but it is hard to find the time and the energy to learn all this stuff because you have to check for ingredients and additives in everything you buy. It does suck.

Thank you all for your replies. :)

missy'smom Collaborator
missy'smom
Posted

If you need suggestions for brands/products that are gluten-free don't be shy in asking. We've all been there at the beginning, overwhelmed with label reading/research and trying to digest alot of info. at once. Just be specific in what kinds of things you are looking for as we all have different tastes and there is really a wide variety of things available. Check company websites-click on FAQ's or Contact Us to find gluten-free status of products. Don't hesitate to call the 800 numbers on the packages. Many of us have even done it from our cell phones in the market-as long as it is normal business hours. Have you seen this link? Open Original Shared Link or this one? Open Original Shared Link

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Hi Vlo1980,

Can you take a few minutes to make a menu for yourself? Include three meals and two snacks for each day even if you never eat that much. Do the menu as if you are not gluten free and then modify it. If you would normally have a sandwich have a salad and few gluten free pretzels. If you would normally have a bowl of cereal have gluten free cereal. I never eat all of the stuff on my menu but I never run out half way through the work week either.

Relax, deep breath, stretch (lazy cat style), it gets easier!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miles2go Contributor
miles2go
Posted

It sometimes seems like healthy food = whole wheat and its variations and that is always a bit of a hurdle. Breakfast was always the hardest thing for me. If you are used to eating whole grains, there are plenty and in ever-increasing shapes and ingredients. If you eat meat, it is easier, if not, it's entirely possible to do a vegan diet. The easiest thing is to shop the periphery of the grocery store, organic if possible and remember to read the labels of anything packaged. If you are truly a health nut, the 4 1/2 cups of veggies and fruits that you should be eating daily gives you a great start. :rolleyes: Cooking them lightly will help with digestion, if that's an issue. Give us some things you are used to eating...

Margaret

tarnalberry Community Regular
tarnalberry
Posted

stick to naturally gluten free foods, and it's easier. "cooking" can take all of 15 minutes to chop veggies and meat and make a stirfry. and fruit, vegetables, meat, rice (gluten-free grains in general) are all naturally gluten free.

Ariauna Apprentice
Ariauna
Posted
stick to naturally gluten free foods, and it's easier. "cooking" can take all of 15 minutes to chop veggies and meat and make a stirfry. and fruit, vegetables, meat, rice (gluten-free grains in general) are all naturally gluten free.

Agreed 100% I too felt very overwhelmed and still do I am only 3 months into my gluten-free way of life but going through the attacks is not worth even one bite of gluten!! I have slowly started finding other gluten-free foods as well as learning to make my old recipes gluten-free. Do your best to relax and when you feel overwhelmed find a quiet place and try to relax through it and remember you are not alone!

ang1e0251 Contributor
ang1e0251
Posted

This big change can feel overwhelming at first. But as a self described health nut, I would think you would be delighted to find another key to excellant health. For you, gluten is poison. It's going to ruin all that good health you've worked so hard to obtain.

Just go back to very basic food for at least a month until you have the hang of it. Then and only then branch out to new foods one at a time. That makes the diet not so overwhelming and doable even if you are busy.

What are you having the most trouble with? You've been given some good suggestions. If that information is incomplete, write back with new questions and we'll try to answer.

KimsHere Newbie
KimsHere
Posted

I was just told yesterday to start this diet and I already want coffee and a bagel with cream cheese. HA!! I love beer, pasta , pizza and all bakery things. I agree with you that this is gonna suck BUT...after feeling awful for the last 6 years and being in the middle of diagnosis for MS I'm thrilled to hear it could be gluten allergies instead of MS.

Sooooo...me and you could be friends and support each other in this new way of (not) eating...lol

When I started to feel overwhelmed I decided to begin with cutting out the known stuff. Like beer and bagels. And coffee!!!! I'm DYING for a coffee right now.....

I'm off to find out if potato chips are on the DO NOT EAT list. If they are, I will cry but just for a few minutes...lol

Kim :P

missy'smom Collaborator
missy'smom
Posted
I was just told yesterday to start this diet and I already want coffee and a bagel with cream cheese. HA!! I love beer, pasta , pizza and all bakery things. I agree with you that this is gonna suck BUT...after feeling awful for the last 6 years and being in the middle of diagnosis for MS I'm thrilled to hear it could be gluten allergies instead of MS.

Sooooo...me and you could be friends and support each other in this new way of (not) eating...lol

When I started to feel overwhelmed I decided to begin with cutting out the known stuff. Like beer and bagels. And coffee!!!! I'm DYING for a coffee right now.....

I'm off to find out if potato chips are on the DO NOT EAT list. If they are, I will cry but just for a few minutes...lol

Kim :P

Go check out the healthfood stores-there are several brands of gluten-free bagels out there, even some mainstream groceries carry them sometimes in the healthfood section or in a separate section of the frozen foods section. They are usually frozen. Plain old cream cheese should be fine. There are even gluten-free beers available. Tinkyada pasta is well liked by most people. Lays STAXX chips-all flavors are made on equipment that is dedicated to gluten-free only.

TiffLuvsBread Rookie
TiffLuvsBread
Posted
When I started to feel overwhelmed I decided to begin with cutting out the known stuff. Like beer and bagels. And coffee!!!! I'm DYING for a coffee right now.....

Wait, what's wrong with coffee.......... ?

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Flavored coffee can have gluten in it. My favorite replacement for mocha capp so far is

large black coffee

2 marshmellows

enjoylife chocolate chips to taste (I like lots!)

The marshmellows keep the chocolate from sinking to the bottom of the cup.

Puddy Explorer
Puddy
Posted

If you are looking for flavored coffees, all of Green Mountain's are gluten free.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Thank you :) My boss and I use to have Hazel Nut coffee when the guys have the day off (Fridays) but since this happened ...... I got glutened once and haven't sniffed Hazel Nut since :(

betsb90 Newbie
betsb90
Posted
I was just told yesterday to start this diet and I already want coffee and a bagel with cream cheese. HA!! I love beer, pasta , pizza and all bakery things. I agree with you that this is gonna suck BUT...after feeling awful for the last 6 years and being in the middle of diagnosis for MS I'm thrilled to hear it could be gluten allergies instead of MS.

Sooooo...me and you could be friends and support each other in this new way of (not) eating...lol

When I started to feel overwhelmed I decided to begin with cutting out the known stuff. Like beer and bagels. And coffee!!!! I'm DYING for a coffee right now.....

I'm off to find out if potato chips are on the DO NOT EAT list. If they are, I will cry but just for a few minutes...lol

Kim :P

I'm having such a hard time with this as well. I can't have yeast, gluten, rice, corn, or dairy. I want to eat all the time even when I'm not hungry just because I have cravings for foods I can't eat. and I work at a bakery. I'm relieved to know I'm on the right track to feeling better, but I feel so frustrated. I'm a college student who's always eaten pretty well, but now I'm scared to even go into the dining halls because I hate feeling like I'm not normal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,136
    • Most Online (within 30 mins)
      7,748
    GFTom
    Newest Member
    GFTom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.